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Chronic Fatigue Syndrome  This thread currently has 6,290 views. Print Print Thread
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spinnakertech
Tuesday, December 7, 2010, 8:19pm Report to Moderator Report to Moderator
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Quoted from Victoria


I think ghee is a lot better for us than butter.  Some people do very well with butter, but I'm a type B who has to use discrimination when it comes to dairy products.

Ghee is like liquid gold to my body.  That doesn't mean that I overeat it.  1 rounded tsp/day is what I eat, along with a few other kinds of superfood fats.  I'm careful to stay moderate with my fats intake, but still get an assortment fats, such as extra virgin olive oil and fresh wild salmon.  I think of ghee as one of my staples, and yes, it's important to eat it with foods that are compliant.


Ghee starts out as butter but with the casein removed.  That's what turns it from an avoid to a super beneficial.  If dairy is an avoid because of casein (which is usually the culprit), then Ghee is not really a dairy and is fine.
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cowgirl1988
Wednesday, February 23, 2011, 5:30am Report to Moderator Report to Moderator

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Hi all....been a while again since I've been on here. Am now back on home soil in Aust, and silly me has gone and started another job training horses.....its killing me!! Riding 10-15 horses plus general care duties is just too much physical work for me, and I need to quit but am having trouble telling my boss as Im the only permanent worker, so I do not want to let him down. But I know I need to look after myself first.

Just wondering whether anyone does any research on ME/CFS and knows if there is any further evidence of the causes of it? So far I've come across articles on XMRV and links to prostate and leukaemia cancers...but no promises as yet. Anyone heard anything else???


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Lola
Wednesday, February 23, 2011, 5:35am Report to Moderator Report to Moderator

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Sa Bon Nim
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which system are you following?

my patients have been greatly helped by following the fatigue book from the health library series.....food lists, guidelines, protocols and all

also check the online fatigue protocol meanwhile


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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cowgirl1988
Wednesday, February 23, 2011, 8:11am Report to Moderator Report to Moderator

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Thanks, Lola. At the moment I am just following genotype diet & also taking cordyceps and black walnut(which is really helping the bowel movements) capsules. The cordyceps do help with energy levels, currently am waiting for the real thing though as I have only been taking farm produced stuff.

Would love if anyone has any news regarding the causes of CFS


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ABJoe
Wednesday, February 23, 2011, 4:52pm Report to Moderator Report to Moderator

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Quoted from cowgirl1988
Would love if anyone has any news regarding the causes of CFS

From my experience only, I am far more fatigued when the waste/toxin levels in the body are high.  This can be due to sluggish digestion, liver or kidney operation, improper food intake, and/or environmental contaminant exposure.  

In my case, I had a combination of all the above plus some cranial and nerve damage from a fall...  It takes a long time to rebuild all of the body systems that are damaged by the time it gets to CFS...  I've been following BTD, GTD, and now SWAMI, eating almost all beneficial foods and following protocols for internal issues for 5+ years and I still have days where I am functional for only 4-6 hours, then very limited activity for the rest of the day...  This is far better than it was when I was having exhaustive collapses followed by a week in bed, however...


RH-, ISTJ
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SquarePeg
Wednesday, February 23, 2011, 6:44pm Report to Moderator Report to Moderator

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Have you had a sleep study?  If you sleep with a partner, does that person complain that you're snoring or moving abruptly?


My SWAMI diet is a blend of BTD and GTD Explorer, but I'm not totally compliant.  Also I try to choose foods that have a Low Glycemic index.  DW and DD are A+, probably also Explorer.
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Lola
Wednesday, February 23, 2011, 9:29pm Report to Moderator Report to Moderator

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wrong lifestyle and a lectin laden diet might be a few causes...
lack of restorative sleep, adrenal eshaustion, exess stress and poor
management thereof


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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tessieUK
Wednesday, February 23, 2011, 9:54pm Report to Moderator Report to Moderator

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Hi Cowgirl

I have Chronic fatigue too since 6 years. I have been doing a form of alternative treatment called Heilkunst for 3 1/2 years, which has got me a lot better. Nutrition is really really important to health, but it is not the full picture. In the Heilkunst system of medicine, as well as dealing with nutrition, hydration, dormition factors-emotional and physical shocks/trauma sustained from birth to present time are treated for using homeopathic remedies. Also 'miasms' which are inherited weaknesses/predispositions for disease. Further there are higher levels of disease beyond this (such as chtonic realm) as Heilkunst really goes up to the soul/spiritual level of healing. These root causes of disease (miasms, emotional trauma etc)cannot be erased through eating and living well alone but require energetic medicine (homeopathic remedies) to be removed. If you are looking for holistic treatment to tackle your fatigue I really recommend Heilkunst. I find it very resonablly priced as well for what you get. I pay around £50 every 6 weeks for my consultation which includes all remedies.  

You were asking about causes of chronic fatigue. In Heilkunst it is understood that all chronic conditions involve some miasmic influence (weaknesses to the constitution that we are born with and are passed on genetically.) The cancer miasm particularly (although not exclusively)is indicated in chronic fatigue, so you might find that you have some history of cancer on either side of your family.

If you want to know anymore you can just PM me. Wishing you luck with everything anyway.  
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anhmnancy
Thursday, February 24, 2011, 3:29pm Report to Moderator Report to Moderator
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Just finished readng Living Well With Autoimmune Disease by Mary Shoman and I learned that Chronic Fatigue is an autoimmune problem.  I have hashimoto's thyroid disease and I this book helped explain a lot of things that my doctor didn't know.  
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Mayflowers
Thursday, February 24, 2011, 3:35pm Report to Moderator Report to Moderator
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I take Corvalen and it's helped greatly. I first read about it in a magazine and Dr. Oz said to take 3 scoops a day starting out and then 1 scoop after you feel better.  I have a lot more energy when I take it. It's a little expensive but it's worth it!  I think I have mild CFS so I take one scoop a day in the moring..

http://www.iherb.com/Bioenergy.....gb&utm_medium=f3
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Lola
Friday, February 25, 2011, 5:54am Report to Moderator Report to Moderator

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Sa Bon Nim
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anhmnancy,
did that book also explain how this BT/GT approach, in other words, a physiologically right diet, free of lectins, is anti inflammatory by excellence thus helping your
hashimoto's thyroid disease?

give us your BT, and welcome aboard!
here are more threads for you
http://www.google.com/custom?q.....itesearch=dadamo.com


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Lola
Friday, February 25, 2011, 6:01am Report to Moderator Report to Moderator

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Dr Oz doesn t bother with individuality, let alone BTs or subgroups thereof......


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Mayflowers
Friday, February 25, 2011, 8:35pm Report to Moderator Report to Moderator
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Quoted from Lola
Dr Oz doesn t bother with individuality, let alone BTs or subgroups thereof......


Dr. D and Dr. Oz are friends.. so if Dr. D would formulate an energy formula for A's I'd take it. He hasn't ...
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cowgirl1988
Friday, May 6, 2011, 2:06am Report to Moderator Report to Moderator

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Some exciting news...I have elected to be part of a research program on chronic fatigue syndrome that they're conducting right here in South Australia. The other day, I was required to wear a blood pressure monitor for 24hrs, and wear a fancy pedometer which is still on until tomorrow. Tomorrow I am going to have some MRI and 3 other neurological scans done, and on Monday, going to see a neuropsychologist. They have already tested quite a few patients and have found many differences in blood pressures & more so, in brain activity.

I asked the doctor who's conducting the study if he could tell me a little about the findings of the research; without going into scientific detail (which is waaaay over my head! ) basically there is a lot more activity in the mid-brain ~ the central nervous system ~ The cause, however, is still quite unclear; he said it may be something to do with when we have some kind of severe inflammation in the body (from an illness eg glandula fever etc) the body releases chemicals. It may be that these chemicals stay in the body, causing it to become toxic to the system.

Not sure how it's all connected but they have approval to release the documents in an article which should be out very soon.....exciting stuff!! Hopefully it will provide a lot clearer answers than what I have just tried to explain  


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TJ
Friday, May 6, 2011, 2:35am Report to Moderator Report to Moderator

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That's exciting, you'll have a chance to learn a lot about your body!  Even if they aren't taking BT/GT into account, that information is still as individualized as it gets.
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cowgirl1988
Friday, June 24, 2011, 9:04am Report to Moderator Report to Moderator

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Well...has this been an exciting day or what!!! Today was a visit to a naturopath whom I've never seen before - he is truly amazing. He asked of my symptoms, which he genuinely took in with great interest, and really understood the ups and downs of CFS as he has dealt with such patients with much success. He took a sample of blood, and put it under the microscope which came up on a tv screen and began searching through; explaining what was what when he came across it.

Results...I have parasites, a virus (the Glandula Fever which I had about 8years ago), acid crystals, yeast-candida, fungus growing on the yeast, poor white blood cells, clotting of red blood cells as the fluid around is acidic, signs of poor lymph & poor liver...........no wonder I feel like c**p!!!!!

He was very pleased to hear that I already have begun to heal the body by being on BTD/GTD, the supplements, and goji juice. So now the real journey to bring this illness to an end has begun. This guy really impressed me and I have a lot of faith that he can help heal this body.

For someone that was always the biggest health/fitness freak, I'm the sickest person I know of! Now for long!!    


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Possum
Friday, June 24, 2011, 9:38am Report to Moderator Report to Moderator

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Wow Cowgirl1988 & B's are supposed to be more tolerant?   You poor thing!!!
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ABJoe
Friday, June 24, 2011, 5:24pm Report to Moderator Report to Moderator

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Quoted from cowgirl1988
He took a sample of blood, and put it under the microscope which came up on a tv screen and began searching through; explaining what was what when he came across it.

The live blood analysis is really a great tool.  A good practitioner can point out and use a lot of information from it.

When it was done for me, there were only 3 white cells in the entire slide and all three were already damaged.  Unfortunately, the practitioner couldn't tell why there weren't any white cells, so we still had a huge guessing game to get through.

I understand about being a "very sick, health conscious person".  I was eating about 90% avoids, but killing myself for the trouble.  Now I eat about 100% medicinal foods and healing.  It will take some time, but at least you are on the right path.

It looks like you need to focus on healing the liver...


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer

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TJ
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Quoted from Possum
Wow Cowgirl1988 & B's are supposed to be more tolerant?   You poor thing!!!
Lol!
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cowgirl1988
Sunday, June 26, 2011, 12:10am Report to Moderator Report to Moderator

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Quoted from ABJoe

The live blood analysis is really a great tool.  A good practitioner can point out and use a lot of information from it.

When it was done for me, there were only 3 white cells in the entire slide and all three were already damaged.  Unfortunately, the practitioner couldn't tell why there weren't any white cells, so we still had a huge guessing game to get through.

I understand about being a "very sick, health conscious person".  I was eating about 90% avoids, but killing myself for the trouble.  Now I eat about 100% medicinal foods and healing.  It will take some time, but at least you are on the right path.

It looks like you need to focus on healing the liver...


ABJoe, I agree, the live blood analysis was fascinating - and this practitioner definately knew his stuff. I'm in the same boat with the white blood cells too; what did you do to help support those cells???

As a starting point, Im taking a product called "Clear The Way", meant to help clear the parasites and virus. Im not sure if there are meant to be any side affects from it, but am feeling quite ill; maybe this is the detox???

We have a range of products through out a program he's give me to get through one at a time....going to prove costly but one can't put a price on feeling healthy!

How to help the liver..????


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ABJoe
Sunday, June 26, 2011, 6:43am Report to Moderator Report to Moderator

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Quoted from cowgirl1988
As a starting point, Im taking a product called "Clear The Way", meant to help clear the parasites and virus. Im not sure if there are meant to be any side affects from it, but am feeling quite ill; maybe this is the detox???

Detox can be a very unpleasant task...  Hopefully, yours won't take as long as mine.
Quoted from cowgirl1988
We have a range of products through out a program he's give me to get through one at a time....going to prove costly but one can't put a price on feeling healthy!

How to help the liver..????

I've used Hepatiguard and Detoxical-D, along with the easy liver cleanse described in The GTD book, Explorer section.  I skip the step that affects the gall bladder, since I have had trouble with that...  
I use red beets (or a Standard Process product called A-F Betafood for acute attacks) to aid the gall bladder.
I have also had a homeopathic remedy for a bile duct blockage...  


RH-, ISTJ
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paul clucas
Monday, June 27, 2011, 12:22am Report to Moderator Report to Moderator

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Quoted from cowgirl1988


ABJoe, I agree, the live blood analysis was fascinating - and this practitioner definately knew his stuff. I'm in the same boat with the white blood cells too; what did you do to help support those cells???

As a starting point, Im taking a product called "Clear The Way", meant to help clear the parasites and virus. Im not sure if there are meant to be any side affects from it, but am feeling quite ill; maybe this is the detox???

We have a range of products through out a program he's give me to get through one at a time....going to prove costly but one can't put a price on feeling healthy!

How to help the liver..????
Get help from the Aussies on the board with local secretor testing, if you do not already know.  How did you discover that you are a Nomad, Cowgirl1988?

Blood Type Liver Protocol:  http://www.dadamo.com/protocols/19.html


My weight loss goal: 220 lbs.  A 6'4" dyslexic oddball: the size of a line-backer, the silhouette of Winnie-the-Pooh.
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cowgirl1988
Tuesday, June 28, 2011, 11:05am Report to Moderator Report to Moderator

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Quoted from paul clucas
Get help from the Aussies on the board with local secretor testing, if you do not already know.  How did you discover that you are a Nomad, Cowgirl1988?

Blood Type Liver Protocol:  http://www.dadamo.com/protocols/19.html


Paul, I got the whole genotype testing kit which had the secretor test etc, Im a secretor. That test showed that I am a Nomad, and also Swami says that Im a Nomad too

Thanks ABJoe....Im hoping the detox doesnt take too long either, I was feeling really horrible yesterday and today, migraines, headaches, nausea etc. Not sure if it was part of detox or a deepening of symptoms....a little worried about my liver at the moment


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nowishow
Thursday, June 30, 2011, 9:48pm Report to Moderator Report to Moderator

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Quoted from cowgirl1988


Thanks ABJoe....Im hoping the detox doesnt take too long either, I was feeling really horrible yesterday and today, migraines, headaches, nausea etc. Not sure if it was part of detox or a deepening of symptoms....a little worried about my liver at the moment


I am being treated for Lyme disease, so I'm in a similar if not the same situation as you. I've been told that most of the pain is caused by my body fighting of the bugs and the reaction to the toxins the dead bugs give off. So, you need to detox your body as much as possible. Things I've found to help detox as you heal are:

Red Root tincture - Helps spleen and liver (I could actually feel it work on my spleen)
Apple pectin - helps carry out the toxins
Coffee enemas - I can't do these but I hear they help
Clay baths
Epsom baths
Soda baths - see recipe below
Oxigenated Magnesium - (not magnesuim oxide) this is a bowel cleanser

It helps speed up the healing if you can detox as much as possible. I've been under treatment for about a year and I started doing much better as I increased my detoxing.

Soda Bath

1/2 box Borax ( sodium tetraborate) about six cups
3 cups baking soda
2 cups cornstarch

Soak in lukewarm water (not hot) for 35 minutes. Get as much of you in the tub as possible. Rinse after but do not wash until next day. This is my favorite detox. At first it wiped me out. I had to reduce the amount and the time, but after a while it got better and I started doing it twice a week. Now I only need to have one twice a month.


"Anxiety is the gap between now and then"

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cowgirl1988
Friday, July 1, 2011, 11:25am Report to Moderator Report to Moderator

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Quoted from nowishow



Red Root tincture - Helps spleen and liver (I could actually feel it work on my spleen)
Apple pectin - helps carry out the toxins
Coffee enemas - I can't do these but I hear they help
Clay baths
Epsom baths
Soda baths - see recipe below
Oxigenated Magnesium - (not magnesuim oxide) this is a bowel cleanser

Soak in lukewarm water (not hot) for 35 minutes. Get as much of you in the tub as possible. Rinse after but do not wash until next day. This is my favorite detox. At first it wiped me out. I had to reduce the amount and the time, but after a while it got better and I started doing it twice a week. Now I only need to have one twice a month.


If you have experienced the benefits, then I am all for it. Will have to do a little research on some of the things you have listed. Am glad it has been benenficial for you and hope you continue to soldier through it! Goodluck and thank you  


Nomad
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