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Chronic Fatigue Syndrome  This thread currently has 6,481 views. Print Print Thread
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Ribbit
Tuesday, November 9, 2010, 4:38pm Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 36
Hey, Cowgirl, I just wanted to encourage you to keep searching and keep experimenting.  I have chronic fatigue too, and although it's better with the diet, it's still there.

My husband is a B with energy issues (swings from one extreme to the other) and he came across a book a couple of years ago which literally revolutionized both our lives.  It was about energy management.  I don't remember what it was called, but it was about managing energy rather than managing time.  So many people harp on the idea of "managing time" and "using time wisely", but for those of us with very limited or intermittent energy, that simply doesn't work.  This book is about ignoring the old clock and working when you have the energy----using that energy wisely to do what needs to be done (without overdoing it so you're too tired to do anything at all).  And when you don't have the energy?  Rest!  Sleep!  And recover, knowing that energy will return eventually.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Victoria
Tuesday, November 9, 2010, 6:19pm Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
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Good post, Ribbit!  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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cowgirl1988
Tuesday, November 9, 2010, 11:05pm Report to Moderator Report to Moderator

Summer: Realization, expansion.
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Thank you for that, Ribbit. Every story or idea that pops up is a step forward along this long road so I appreciate reading all these. Thats a very interesting way of thinking, sitting here thinking about that; it makes a lot of sense. Its a shame you can't remember the name of the book as I sure would be keen to read it.

I do feel my biggest problem is as Im over here in USA working for other people; who do not understand this condition - not that it's their fault of course, I just havent taken the time to explain that to them, I put a lot of mental pressure on my body to get all these horses ridden each day as I dont want to come across as lazy...even though laziness has nothing to do with it. Then of course I stress myself out wondering what they're thinking if I take 2hrs for lunch! It makes me wonder why I bother working with horses, as it's so physical...but I will never give it up, and will never give up pushing through this pain in the expletive deleted fatigued body!


Nomad
Supertaster


Love, and Do What You Will  
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cowgirl1988
Tuesday, November 9, 2010, 11:08pm Report to Moderator Report to Moderator

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Ribbit may I ask for how long have you had CFS? And how long did it take you to get mostly ontop of it?


Nomad
Supertaster


Love, and Do What You Will  
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Andrea AWsec
Tuesday, November 9, 2010, 11:11pm Report to Moderator Report to Moderator

SWAMI INFJ Warrior Taster
Kyosha Nim
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Slowly you will figure it out. Feel better


MIFHI

"Do not try to satisfy your vanity by teaching a great many things. Awaken people's curiosity. It is enough to open minds; do not overload them." Anatole France

"Healthy people have the least overt symptoms from eating avoid foods." Dr. D'Adamo
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ABJoe
Tuesday, November 9, 2010, 11:51pm Report to Moderator Report to Moderator

35% Nomad or Teacher - health history dependent
Sun Beh Nim
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CG,
All I can add to the discussion is that I am dealing with this just like the others here...  I have had energy issues since high school, had to take naps during college to have a chance at surviving.  Found BTD in about 2000, but went AWOL for about 3 years, so have been eating per BTD from about 2003, then book GTD since it came out.  I am doing so much detox and healing that I haven't gotten SWAMI...  I can really tell if I don't get enough superfoods in my diet.  Something else has to take their place, but even too many neutral foods cause me to have more pain because the healing is slowed down.  

As others have stated, it is about the digestion and elimination, so that has been my focus for about a year and a half.  I took Deflect, Polyflora AB, Hepatiguard, Nitricycle, Genoma Security, and Catechol as needed - but about 4 months ago really reduced them, and recently have stopped almost all of the supplements.  I'm not sure if it is some reaction to the recent bout of flu I had, or whether I have reached a new plateau...

I still have significant pain and fluctuating energy levels, but part of detox is dealing with the junk deposits and any bacteria or virus activity that can hide in the junk stores.  Every junk deposit that I get rid of is that much closer to good health...  I still have lots to clean out, so onward and upward!

Another part of the healing process is cleaning up old injuries that haven't healed properly.  For the last 2 years, I have been healing part of the cranium and the spinal column from a 8 to 10 foot fall where I landed on my head at about age 7.  I can't tell you how much discomfort this has caused, or how much longer it will take to complete, but I know that I never expected healing at this deep level.  I didn't even realize that there was still damage from this until I started feeling pain along the cranium joints and the bones started to fill in this "trench" across the top of my head.  The depression has filled in about 1/2 way, so there is still some to do...

I hope some of this helps more than it scares you...!     Much success with your healing.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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Ribbit
Wednesday, November 10, 2010, 1:08am Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
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I didn't read the book, it was something my husband came across, but if it's still in a box in the basement, I will one day rediscover it.

I've had fatigue since I can remember. I suppose there was a time I felt normal, but it would have been in kindergarten and early elementary school.  I was diagnosed when I finally dragged myself to an alternative doctor at the age of 20.  No medical doctor had any explanation.  "You're too young to feel like this.  Get more exercise."

It was only in July that I finally got a diagnosis of Lyme disease and I now believe this to be the basis of nearly every health issue I've ever had.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Victoria
Wednesday, November 10, 2010, 2:28am Report to Moderator Report to Moderator

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Sun Beh Nim
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Fatigue is one of the Nomad weaknesses, so you aren't alone, cowgirl.

I've gotten a good perspective by reading a couple of sources on adrenal fatigue and being especially diligent regarding the "getting enough rest and sleep" part.  I don't think you will help yourself in this problem by pushing through the exhaustion.  I know you need to work at your job, just try and provide yourself the best conditions to get enough sleep.  Also, I've really benefited from lying down at the end of my work day, flat on my back with no head pillow, and putting my legs up at an angle /.  I use a huge, overstuffed pillow to support my legs, from the heels to my hips.  20 minutes of utter relaxation does wonders to get me recharged for the rest of my evening.

I've benefited a lot from Dr. D'Adamo's book on Fatigue.  Even though I follow the Nomad diet, I use supplements from the Fatigue book.
http://www.4yourtype.com/prodinfo.asp?number=ED067S

and, good information at this site, plus a book worth reading: http://www.adrenalfatigue.org/about-adrenal-fatigue.html



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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ruthiegirl
Wednesday, November 10, 2010, 4:29pm Report to Moderator Report to Moderator

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Kyosha Nim
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I have fibromyalgia, which is very similar to CFS. The main difference is that fibro includes all-over body pain, but I always found the fatigue to be much more debilitating than the pain ever was. I can funtion with an achey body. I can't function if I'm too tired to move.

I've found a few things that really helped me feel better. First and most important is recognizing and respecting my limits. This was probably the hardest to learn how to do, but the most important. I don't agree to do things that I may not be able to do, and I pace myself with what I do accomplish. As I feel better and have more energy, I need to constantly re-evaluate my limits- it's so easy to over-do things again and suffer a relapse!


The second thing I've done is to recognize and avoid my triggers. SWAMI was a great tool in identifying food triggers- I figured out two on my own (gluten and dairy) and SWAMI really helped me fine-tune things a LOT. But even SWAMI isnt' perfect, and I need to apply common sense to the SWAMI food recomendations. There are also non-food triggers: the weather, an extra-busy day schlepping around with the kids, exposure to environmental toxins such as the town mosquito spraying or walking past purfume displays in the mall.

And sometimes I have a bad day for no apparent reason. Maybe I'm reacting to toxins that had been stored in body fat but are now mobilized on their way out of my body. Maybe I over-did things in my newfound energy. Maybe I was exposed to something in the air I'm not aware of. But I need to listen to my body and rest when I need to, even if I can't figure out why.

I've been on SWAMI for about 6 months, after being on BTD for over a year, and I'm still healing. You've only been on SWAMI for 3 months. While that's long enough for healing to begin, it's not long enough to completely heal from a lifelong condition. Supplements would probably speed up healing- if you can't afford them, then healing will simply take longer. It's still hapening, but at a slower pace.

Be patient with yourself. And try not to get too jealous of those "I've been on  BTD for 2 weeks and I feel great!!!!" testimonials.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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Ribbit
Wednesday, November 10, 2010, 10:39pm Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
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I had an ND explain to me once the difference between CF and FMS.  He said if you have CF, the fatigue overwhelms the pain and you can sleep.  If you have FMS, the pain overwhelms the fatigue and sometimes you hurt too bad to sleep.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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angel
Friday, November 19, 2010, 4:03am Report to Moderator Report to Moderator

A 'Hunter' working on a relaxing into farm life.
Ee Dan
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I have CFS but also something of and oxymoron called Benign Joint hyper Mobility Syndrome (BJHS)-Meaning I am quite flexible even for my age, but as I get older it starts to hurt more. I am tired all of the time and I hurt as well. It does cause issues sleeping for me. I am still working throght it. I ahve found yes I must exercise regardless of how I feel at least three times a week with weights and then I am also working from 2 times a week up to 6+ times a week to walking or stationary bike. My combo may also be aggravated by Candida which probably has been around 15+ years. I am a Gulf War Veteran. The timing is right for what the doctor guestimates. So life will go on from there. Good luck. Keep Moving. Eat right. Things will work out right eventually.  


'And some of us would die-so other men can stand up on their feet like men. A great many are going to die for that. They have in the past. They will a hundred years from now-two hundred. God grant there will always be men good enough.(James Otis)' Johnny Tremain (Forbes)

Freedom is not free!
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ABJoe
Friday, November 19, 2010, 4:17am Report to Moderator Report to Moderator

35% Nomad or Teacher - health history dependent
Sun Beh Nim
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Quoted from Ribbit
I had an ND explain to me once the difference between CF and FMS.  He said if you have CF, the fatigue overwhelms the pain and you can sleep.  If you have FMS, the pain overwhelms the fatigue and sometimes you hurt too bad to sleep.

With this definition, I alternate between the two...  


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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trish44
Saturday, November 20, 2010, 12:06pm Report to Moderator Report to Moderator

Hunter
Sam Dan
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Also, for what it is worth, get your vit D level checked.  I would have sworn that I had CFS until I began taking it.  At 2000 mg of d3 I got it up to 35, and felt human again.  Now I am taking 5000 for 60 days and then back down to 2000.  Will know next week what my level is now.  It is worth a try!!!


Trish44 (type O)
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Amazone I.
Sunday, November 21, 2010, 3:53pm Report to Moderator Report to Moderator

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Kyosha Nim
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low dosed olive leafs seem to do the trick as well... have an eye onto the beautiful descriptions of all those herbs please: http://www.herbwisdom.com

amazing how different infos can be... some claim hey ther's n o t h i n g to be seen as backgroundinfos and then they popp in with biggest lists of clinicaL researches... great to know that we always have to be careful... *be sceptical and learn to listen*

                                            


MIfHI K-174

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Amazone I.  -  Sunday, November 21, 2010, 8:24pm
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Victoria
Sunday, November 21, 2010, 6:20pm Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
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Thank you for that link, Isa.  nice site.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Amazone I.
Sunday, November 21, 2010, 8:24pm Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
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half of mine...ya always welcome...


MIfHI K-174
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cowgirl1988
Wednesday, December 1, 2010, 9:49pm Report to Moderator Report to Moderator

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Well it's been a while since I've had a chance to get on  here, so I havent got to read the last few posts as I dont have much time! Thank you all again for your input. Ive started a new job in Texas, still working with horses. Theres a big show on at the moment so we have been starting work at random hours each day, from 2.30am, 7am and pretty much non-stop all day! Its crazy but surprisingly my body is beginning to cope with it quite well and am getting much fitter. I try to continuously eat during the day when i can. Have worked out there were a few things I wasn't checking closely enough that I wasn't meant to be consuming...so was quite sick for a little while, also have worked out that my body doesnt deal with any dairy what-so-ever.

Also, from the other blood food intolerance tests I had done....well I've been eating all those foods I was supposedly intolerant to and had no side affects yay!!! Hopefully things keep improving from here! Thank you all so much for your support  


Nomad
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Love, and Do What You Will  
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Victoria
Thursday, December 2, 2010, 1:47am Report to Moderator Report to Moderator

Swami Nomad 56%
Sun Beh Nim
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Congratulations on your new job, and I hope it goes very well for you!  

I don't remember if you said this in an earlier post, but have you tried eating ghee?



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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Sun0605
Friday, December 3, 2010, 10:59pm Report to Moderator Report to Moderator
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Okay, I have to share something that I just found.  A retired chiropractor gave a small bit if information on Sea Salt and Adrenal Fatigue.  In short it says to mix either 1/8 or 1/4 teaspoon of Sea Salt, not refined salt, with water till disolved or to put the small amount on your tonque to let disolve.  Do this when you wake up.  It says you can also do this again later in the day.  My blood tests show my adrenals to be weak and this sea salt must be magical for me because I have consistently had more energy consistantly for a week now.  Hope this suggestion is okay to put out.  
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Mayflowers
Saturday, December 4, 2010, 1:03am Report to Moderator Report to Moderator
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Quoted from Ribbit

It was only in July that I finally got a diagnosis of Lyme disease and I now believe this to be the basis of nearly every health issue I've ever had.


Talk to Chloe. She had Lymes as well. I believe she cured herself naturally. I don't sense any Lymes. It's a bacteria, your body can kill it.  
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JJR
Saturday, December 4, 2010, 6:15pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Quoted from ABJoe

With this definition, I alternate between the two...  


Yeah, me too!


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Lola
Saturday, December 4, 2010, 8:04pm Report to Moderator Report to Moderator

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Sun0605,
I have been adding sea salt to my bottle of water for years!!!
so good!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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cowgirl1988
Monday, December 6, 2010, 11:44pm Report to Moderator Report to Moderator

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Victoria, I have tried ghee but I dare say I was probably eating foods I was meant to be avoiding at the same time so I wouldnt know how or if it affected me. I have recently been sticking strictly to the diet and have tried eating very small amounts of butter and cheese but my body doesn't cope with them at all....so Im a little worried about consuming ghee again too.....what do you think?


Nomad
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Love, and Do What You Will  
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Lola
Tuesday, December 7, 2010, 12:27am Report to Moderator Report to Moderator

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Sa Bon Nim
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compliance and determination might heal your reaction to certain foods, specially if those are in your beneficial list.....

Dr D has written an allergies book
http://www.4yourtype.com/prodinfo.asp?number=ED062S


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Victoria
Tuesday, December 7, 2010, 1:44am Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from cowgirl1988
Victoria, I have tried ghee but I dare say I was probably eating foods I was meant to be avoiding at the same time so I wouldnt know how or if it affected me. I have recently been sticking strictly to the diet and have tried eating very small amounts of butter and cheese but my body doesn't cope with them at all....so Im a little worried about consuming ghee again too.....what do you think?


I think ghee is a lot better for us than butter.  Some people do very well with butter, but I'm a type B who has to use discrimination when it comes to dairy products.

Ghee is like liquid gold to my body.  That doesn't mean that I overeat it.  1 rounded tsp/day is what I eat, along with a few other kinds of superfood fats.  I'm careful to stay moderate with my fats intake, but still get an assortment fats, such as extra virgin olive oil and fresh wild salmon.  I think of ghee as one of my staples, and yes, it's important to eat it with foods that are compliant.

When dealing with a chronic condition such as chronic fatigue, my own approach is to eat all superfoods and minimize the neutrals.  No avoids/toxins at all.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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