Hey people...I have a friend who has lupus. She made her doctor do the test twice to make sure.   Her immune system attacks her kidneys.  From what she tells me she has to keep her immune system low, but not too low, which means she cannot have (food wise or medicine wise) or do anything that will boost it.   She had chemo a few years ago to help keep her immune system low.  Eventually, she will need a kidney transplant according to her doctor.  She is at 25% now, but can't have the transplant until her kidneys are at 5%.  Can anyone shed some light on this?  I have lent out my encyclopedia so I can't even look it up in there.  

ANY information or questions would be greatly appreciated.

Debra

The protocols recommended in the Encyclopedia for Lupus are Immune Enhancing, Chronic Illness Recovery and either the Detoxification (B or AB) or Anti-Inflammation (A or O) Protocols.

Quoted from ABJoe

The protocols recommended in the Encyclopedia for Lupus are Immune Enhancing, Chronic Illness Recovery and either the Detoxification (B or AB) or Anti-Inflammation (A or O) Protocols.

Thanks ABJoe.  Immune Enhancing...this means it will boost her immune system, right?  She cannot have this.  

Debra

Well, of course she should see an ND for personalized advice.

For autoimmune disease, what you want is immunomodulation (not stimulation).  So it is not true she cannot do anything for her immune system - she needs to balance it (to stop it from attacking her own body and instead go after the real enemies) rather than stimulate it.  It is misdirected, not "too high".  Again, the best way to do this is with a trained professional.  

The immune-enhancing protocol is now called Immune Support and it is immune balancing for each type.  

Also, there is a correlation between gluten (and casein) and autoimmune disease.  Not sure what her type is, but regardless it is worth it to cut out these foods as well as other major avoids for her type and pro-inflammatory foods (nightshades: potato, tomato, peppers, etc) to calm the autoimmunity that is damaging her kidneys (and other organs).

She can then work on implementing anti-inflammatory/immune modulating supplements, herbs, lifestyle recommendations, etc.

Thank you Kate.  She is type O+.   I would say a nonnie also.   Will see if she will go to a ND and pass this information on to her.  Is your office open yet Kate?

Anything anyone else wants to add...feel free.

Debra

Makes sense she is type O, we tend to have issues with autoimmunity from a overenthusiastic immune system!  So definitely, wheat, dairy, and other major type O avoids like potatoes have to go!  

I am studying for my board exams this summer, then starting practice in October.  I'll be in 2 locations in Toronto - stay tuned to my website (link in my signature) for details!  And of course I will be offering genotyping/SWAMI along with lots of other great naturopathic treatments.

Thanks again Kate.  Went and talked to her today about BTD/GTD.  She is getting more keen onto the idea.  

Looking forward to your practice opening.  

Debra

Quoted from Debra+

Looking forward to your practice opening.  

So am I!  I just have a few pesky exams to finish first...  

Hi Debra+,

I am a type O+ non-secretor and was diagnosed a year ago with an auto-immune disorder.  For me it isn't Lupus but manifested itself as rheumatoid arthritis.  In addition, I was diagnosed with fibromyalgia and have suffered for years with acid reflux, ulcerative colitis, irritable bowel syndrome, skin problems, and chronic sinusitus.  I also had many other unexplained symptoms including numbness in my hands and feet, heart arrhythmias, dental problems, extremely low energy, constant diarrhea, difficulty sleeping, chest pain, high blood pressure, and night terrors.

In June 2010, after my doctor had no answers and wanted to send me BACK to a rheumatologist (who offered no treatment) I instead told my doctor I was going off of all prescription medications (high blood pressure, prevacid for acid reflux, cholestyramine for diarrhea) and all pain relievers (I had been taking high doses of either Tylenol or NSAIDs every night for four years to help me sleep through constant pain).  I did research on arthritis cures and found the gut connection to rheumatoid arthritis and other auto-immune disorders (like Lupus).  I also found the Specific Carbohydrate Diet, the Paleo Diet, and Dr. D'Adamo's Eat Right 4 Your Type Diet.  They are all similar with the most compelling similarity being the avoidance of gluten, dairy, and processed sugars.  I specifically follow Dr D's ER4YT diet because it is more specific to my blood type and my condition than the others.  Also, Dr D has published a book about using the ER4YT diet to treat arthritis and other inflammatory and auto-immune diseases.  Definitely get this paperback for your friend.

So, here are the results!  After one day on the ER4YT for Blood Type O, I had absolutely no acid reflux after eating a meal.  This was the first time in six years I could recall not feeling bloated and feeling like I had thumb tacks in my esophogas after eating.  After three days on the plan, my arthritis pain reduced to a level 1-2 from a daily level 7.  After a week, the intestinal pain and diarrhea had cleared up.  Within 10 days after starting the diet I had lost 5 pounds.  The first week, I was hungry quite a bit but I realized it was because I overloaded on fruit and fruit juices (100% natural), which was kind of a carbohydrate overload and my insulin levels went haywire.  After that I cut out the fruit juices and just drink water and I have whole fruits which don't have as much concentrated fruit sugars and also provide fiber.

It is now August 2010 and I've lost a total of 10 pounds.  I'm really not trying to lose weight (although I'm not complaining as I have a little too much still).  I'm eating as much as I want of lean meat protein, vegetables, and a few servings of fruit and nuts per day.  I have a ton of energy, I exercise a lot, I don't feel hungry and I'm nearly pain-free.

The key for me was cutting out gluten, dairy, and processed sugars, with gluten being the most important, I think.  Gluten triggers my immune system to attack.  Two weeks ago, I accidentally had gluten in a restaurant meal and I knew it right away and for the next 10 days.  Within 1/2 hour after the meal, I was bloated and had acid reflux.  Later that day I was a little dizzy and nauseated while the gluten was passing out of my stomach.  Two days later, after the gluten permeated my "leaky gut" and entered my blood stream I felt the full force of the poison.  The gluten lectins settled into my joints (which is where gluten goes in the body) and my immune system attacked.  I was in great pain and had a lot of inflammation that day and it slowly subsided over the course of the next eight days.  So if I have one gluten meal I pay for it for the next 10 days.

While cutting out gluten is not convenient in our society, I do feel lucky to be a Blood Type O--when we feel good, it's like our engine is on and ready to go any time.  Give me a little beef or chicken and I'm good all day.  I don't know whether your friend would have similar results with her Lupus as I've had with handling my immune disorder, but I am glad that I found a way to heal myself when the doctors had no more answers and said my conditions were treatable with more drugs but not curable.  If gluten triggers your friend's immune system to attack and she is able to stop it like I was, this might help.

Good luck to her!

"Wow spinnakertech an O+ nonnie like me   ...what an awesome testimony. I am copying and then going to paste it so I can send it to my friend...if that's okay with you.  She, actually, has been doing a lot better. (Hubby with a bad temper moved out).   No...not on BTD, but I hope this will give her a nudge.  She also has been doing Body Talk with a friend of mine and it's been helping her deal with other issues.    

Thank you for your great testimony.  

Debra

Yes, lectins in foods like wheat, potatoes & dairy cause O's overactive immune system to go beserk on our body.  If she starts cutting out the avoids, she will find herself feeling better & it would back her immune system off.

Quoted Text

I did research on arthritis cures and found the gut connection to rheumatoid arthritis and other auto-immune disorders (like Lupus).  I also found the Specific Carbohydrate Diet, the Paleo Diet, and Dr. D'Adamo's Eat Right 4 Your Type Diet.  They are all similar with the most compelling similarity being the avoidance of gluten, dairy, and processed sugars.

where would we be today, had Dr D not talked to us about the secretor status difference in some of us weirdos????

thanks for sharing your powerful testimonial!
you are on the right track for life now!
welcome!

roostersis...would also give a try to frequence tens technics...kidneys often show up...fear..fear... fear of loosing....... and heavy gossiping internal thoughts...

Quoted from Amazone I.

roostersis...would also give a try to frequence tens technics...kidneys often show up...fear..fear... fear of loosing....... and heavy gossiping internal thoughts...

Yep, yep, yep, Isa...already looked up and discussed this with her.  She now has Louise Hay book.

Thank you everyone for your responses.  Small baby steps on this one...she is doing much better though.  My girlfriend did a Body Talk session on her and she told her she has an intolerance to wheat.  Duh...we knew that.   It is sinking in a little bit more for her.  Those seeds I planted are starting to sprout.  

Debra

bravoooo roostersis ....bravoooo!!!!


btw... if we observe how brutal gossiping, that we are all taking for a normal situation or even act to go for...harms our self... amazing....

I didn't expected such a deeper feedback of vibes by outer mental attacks... mann heavy for both... the one who does and the receiver.... and yep they're bound....together... round after round....baahhh.... while a thought gets  along with a feeling... often this has tendencies to manifest....yiiikes...take care folks how you are thinking....entre-autre....

Quoted Text

Hi Debra+,

I am a type O+ non-secretor and was diagnosed a year ago with an auto-immune disorder.  For me it isn't Lupus but manifested itself as rheumatoid arthritis.  In addition, I was diagnosed with fibromyalgia and have suffered for years with acid reflux, ulcerative colitis, irritable bowel syndrome, skin problems, and chronic sinusitus.  I also had many other unexplained symptoms including numbness in my hands and feet, heart arrhythmias, dental problems, extremely low energy, constant diarrhea, difficulty sleeping, chest pain, high blood pressure, and night terrors.

In June 2010, after my doctor had no answers and wanted to send me BACK to a rheumatologist (who offered no treatment) I instead told my doctor I was going off of all prescription medications (high blood pressure, prevacid for acid reflux, cholestyramine for diarrhea) and all pain relievers (I had been taking high doses of either Tylenol or NSAIDs every night for four years to help me sleep through constant pain).  I did research on arthritis cures and found the gut connection to rheumatoid arthritis and other auto-immune disorders (like Lupus).  I also found the Specific Carbohydrate Diet, the Paleo Diet, and Dr. D'Adamo's Eat Right 4 Your Type Diet.  They are all similar with the most compelling similarity being the avoidance of gluten, dairy, and processed sugars.  I specifically follow Dr D's ER4YT diet because it is more specific to my blood type and my condition than the others.  Also, Dr D has published a book about using the ER4YT diet to treat arthritis and other inflammatory and auto-immune diseases.  Definitely get this paperback for your friend.

So, here are the results!  After one day on the ER4YT for Blood Type O, I had absolutely no acid reflux after eating a meal.  This was the first time in six years I could recall not feeling bloated and feeling like I had thumb tacks in my esophogas after eating.  After three days on the plan, my arthritis pain reduced to a level 1-2 from a daily level 7.  After a week, the intestinal pain and diarrhea had cleared up.  Within 10 days after starting the diet I had lost 5 pounds.  The first week, I was hungry quite a bit but I realized it was because I overloaded on fruit and fruit juices (100% natural), which was kind of a carbohydrate overload and my insulin levels went haywire.  After that I cut out the fruit juices and just drink water and I have whole fruits which don't have as much concentrated fruit sugars and also provide fiber.

It is now August 2010 and I've lost a total of 10 pounds.  I'm really not trying to lose weight (although I'm not complaining as I have a little too much still).  I'm eating as much as I want of lean meat protein, vegetables, and a few servings of fruit and nuts per day.  I have a ton of energy, I exercise a lot, I don't feel hungry and I'm nearly pain-free.

The key for me was cutting out gluten, dairy, and processed sugars, with gluten being the most important, I think.  Gluten triggers my immune system to attack.  Two weeks ago, I accidentally had gluten in a restaurant meal and I knew it right away and for the next 10 days.  Within 1/2 hour after the meal, I was bloated and had acid reflux.  Later that day I was a little dizzy and nauseated while the gluten was passing out of my stomach.  Two days later, after the gluten permeated my "leaky gut" and entered my blood stream I felt the full force of the poison.  The gluten lectins settled into my joints (which is where gluten goes in the body) and my immune system attacked.  I was in great pain and had a lot of inflammation that day and it slowly subsided over the course of the next eight days.  So if I have one gluten meal I pay for it for the next 10 days.

While cutting out gluten is not convenient in our society, I do feel lucky to be a Blood Type O--when we feel good, it's like our engine is on and ready to go any time.  Give me a little beef or chicken and I'm good all day.  I don't know whether your friend would have similar results with her Lupus as I've had with handling my immune disorder, but I am glad that I found a way to heal myself when the doctors had no more answers and said my conditions were treatable with more drugs but not curable.  If gluten triggers your friend's immune system to attack and she is able to stop it like I was, this might help.

Good luck to her!

Please place this on: Garlands for Dr D.  It is the centerpiece of his work.. considering HE is A this is even more amazing, as he did not buy into one diet for all -such as vegetarian- which would have been so much easier, as so many other have done so.. the difference in is HIS approach to individualism.. one at a time.. tremendous.. !

Way to go spinnakertech

Quoted from Debra+

"Wow spinnakertech an O+ nonnie like me   ...what an awesome testimony. I am copying and then going to paste it so I can send it to my friend...if that's okay with you.  She, actually, has been doing a lot better. (Hubby with a bad temper moved out).   No...not on BTD, but I hope this will give her a nudge.  She also has been doing Body Talk with a friend of mine and it's been helping her deal with other issues.    

Thank you for your great testimony.  

Debra

Hi Debra,
I did the exact same thing.  My friend has Graves Disease & RA.  I have been NAGGING her to go on the BTD.  I don't know, she is on thyroid hormone they "killed" her thyroid & on immuno suppressant & steroids.  She is addicted to pastries, cakes & other sweets.  She says she is so sick of taking meds that she won't take the Polyvite O & Polyflora O I ordered for her.  I can't seem to get her to @ least do the diet for 2 weeks.  I explained to her about the connection of wheat & soy to her disease but..... she is addicted to pastries, cake, etc.  
I'm a little frustrated that she won't ever try avoiding the wheat, soy, corn.  She doesn't eat night shades though because her Dr. told her not to.

Quoted from kauaian

My friend has Graves Disease & RA.  I have been NAGGING her to go on the BTD.  I don't know, she is on thyroid hormone they "killed" her thyroid & on immuno suppressant & steroids.  She is addicted to pastries, cakes & other sweets.  She says she is so sick of taking meds that she won't take the Polyvite O & Polyflora O I ordered for her.  I can't seem to get her to @ least do the diet for 2 weeks.  I explained to her about the connection of wheat & soy to her disease but..... she is addicted to pastries, cake, etc.  
I'm a little frustrated that she won't ever try avoiding the wheat, soy, corn.  She doesn't eat night shades though because her Dr. told her not to.

Perhaps starting the whole diet it too intimidating for her, even for 2 weeks, and she is probably exhausted by the effects of the diseases on her body.  When I started the diet I felt better almost immediately from my symptoms:  rheumatoid arthritis, fibromyalgia, acid reflux, colitis, irritable bowel syndrome, headaches, sinusitis, difficulty sleeping.  And the things that made the most difference for me to eliminate were gluten and corn.  The second most important things were reducing sugar and dairy.  See if you can get her to go for 4 days without gluten and corn.  She may see such an amazing transformation just in those 4 days that she may be willing to move forward with the diet.

Good luck.

Don't forget to send the link for the "lime Aid" blog from The Shift.

roostersis Debra, I justamente got my first contact to such a lady in her 30ties with nearly same issues...I think Moducare might be one of the options as well  
at this moment I don't know her bloodtype  but I'm going to ask her to send me some hairsamples.. so far ...we'll see during the tests what will show up... she also have to take immunsuppresiva but those cause heaviest depresions to her ... now we're at the same point mentioned above...fear..fear...fear..... but here I guess it's merely who can I trust and what am I able to stand for without fears to loose ....what !      always the same questions ..... the mind-body-connection isn't seen by the whitecoated..... they only treat symptoms and we have to solve the true problems  and causa;)

btw. Debra thanx for a second time to have helped me out of my own delemma
often we even don't remark while settling back into old behaviours...patterns etc....
we truly have to be vigilant....

I keep testing positive for Lupus, although my rheumatologist said that I do not have any of the damage at this point. That is his assumption based on blood work.  

I have been following the SCD diet the past year so some of the damaging foods have already been avoided.  I am trying to head off the damage by utilizing the GTD.  I have only been on it a few days but am seeing slight improvement.  

It makes sense to me that the genes that are responsible for making my immune system work are sleeping.  I know in time that this will get better as I figure out how to eat.  Not eating enough is an issue for me.  I do supplement but am going to order the supplements recommended for me in Swami.  

Reading how this diet has helped others gives me so much hope.  

vacowgirl,  thank you so much for your kind statement

Quoted from Whimsical

Makes sense she is type O, we tend to have issues with autoimmunity from a overenthusiastic immune system!  So definitely, wheat, dairy, and other major type O avoids like potatoes have to go!  

I am studying for my board exams this summer, then starting practice in October.  I'll be in 2 locations in Toronto - stay tuned to my website (link in my signature) for details!  And of course I will be offering genotyping/SWAMI along with lots of other great naturopathic treatments.

Good Luck

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