Welcome, Guest.
Please login or register


Main Forum Page  ♦   Latest Posts  ♦   Member Center  ♦   Search  ♦   Archives   ♦   Help   ♦   Log In/Out   ♦   Admins
Forum Login
Login Name: Create a new account
Password:     Forgot password

BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  Eye-Opening Articles About Celiac Disease
Users Browsing Forum
No Members and 7 Guests

Eye-Opening Articles About Celiac Disease  This thread currently has 3,392 views. Print Print Thread
3 Pages 1 2 3 » All Recommend Thread
TJ
Saturday, May 15, 2010, 12:40am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
Following up on reading the recent thread about soaking nuts and grains, I started reading about digestive malabsorption, and that let me to these articles about Celiac disease:

http://wiki.medpedia.com/Celiac_Disease
http://www.webmd.com/digestive-disorders/celiac-disease/celiac-disease-symptoms

All this time, I've been thinking that, if you have Celiac, you just get suddenly and obviously sick whenever you eat ANY gluten.  I figured I must just be gluten sensitive instead, since that doesn't happen to me.  Man was I wrong!

So now I'm thinking that I probably DO have Celiac disease after all.  It explains my inability to gain weight, my fatigue and muscle weakness, and my cycling levels of energy (not to mention other stool symptoms) .  I guess this means I'll be ratcheting up to a new, stricter level of compliance:
Quoted from Medpedia
In order to stay well, people with celiac disease must avoid gluten for the rest of their lives. Eating any gluten, no matter how small an amount, can damage the small intestine. The damage will occur in anyone with the disease, including people without noticeable symptoms....Some people with celiac disease show no improvement on the gluten-free diet. This condition is called unresponsive celiac disease. The most common reason for poor response is that small amounts of gluten are still present in the diet.

My main reason for posting here is to increase awareness.  I figured that many of you might also be unaware of the full extent of symptoms!
Logged Offline
Private Message Private message
DenverFoodie
Saturday, May 15, 2010, 12:55am Report to Moderator Report to Moderator

Swami: GT1 Hunter (50%) Non-Taster
Ee Dan
Posts: 1,477
Gender: Male
Location: Colorado
Thanks for sharing.  I found out through the process of elimination that I was wheat/gluten sensitive.  I will research further now.


Every morning create your day.  If you don't, life will for you!

Logged Offline
Private Message Private message Reply: 1 - 60
AKArtlover
Saturday, May 15, 2010, 6:53am Report to Moderator Report to Moderator

centered leaning INTP Explorer, Supertaster, SWAMI
Kyosha Nim
Posts: 2,121
Gender: Female
Location: Midwest, US of A
Age: 39
Hi,

I am working on a documentary about Celiac Disease/Gluten Sensitivity and the path to optimum health.
From my understanding and personal experience, gluten sensitivity can manifest itself in many symptoms similar to celiac. I had a stool test done and saliva swab for the genes (which 30% of population has).

Turns out I do not have the genes. But had many issues related to the symptoms of celiac.

The diagnosis for celiac is done through a blood test (while on gluten), if that is positive, it is followed up by an intestinal biopsy to verify damage.

I would never go back on gluten to have a blood test done anyway. I know the results of eliminating gluten never would be worth giving up.

I had opportunity to interview Dr. Alessio Fasano of the University of Maryland Center of Celiac Research, who encouraged this testing for accurate diagnosis before going off gluten. The stool test results could not be reproduced by their center, leading him to believe they are innaccurate, and the blood tests can only be done when on gluten. http://www.celiaccenter.org/

The alternative is to live "as if" one has celiac avoiding all gluten.

Not sure that gluten itself has any special benefit, other than wheat products are overflowing in our culture and they have a nice texture, taste good, etc. The main issue, for celiacs, is that this product is just about everywhere, is somewhat "hidden" in things when eating out -- and cross contamination could be an issue.
Labels on processed foods have become fairly clear about wheat. There is also a level of this hidden or cross contaminated gluten that is considered "safe" for celiacs and there are labeling guidelines in the works that will address that.

Gluten is indigestible for everyone. It can, however, get through the gut (most notably in people with celiac or leaky gut) and cause a whole host of issues. Dr. Fasano talked about in his lecture that gluten can cause issues in the brain. (I was having incredible brain fog.)

There are other lectins in food, as we know from Dr. D's research, that are damaging to the gut as well. My intuitive understanding is that eliminating wheat alone (or allergens) would not be fully effective until the gut is not under assult from lectins that are blood type specific. I also think that it makes sense that the gut can heal itself by getting the proper things it needs from diet (including blood type specific probiotics). The gut replaces itself quite often. The key for celiacs in healing, I believe, can be expedited by a blood type specific diet.

Looking to interview Dr. D at some point to discuss these ideas and others in depth.

Hope this helps.  

p.s. In talking with Dr. Fasano, there is a lot of misinformation abounding on the internet about celiac and gluten sensitivity. Be diligent and skeptical in your research.


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
Logged
Private Message Private message Reply: 2 - 60
Andrea AWsec
Saturday, May 15, 2010, 11:21am Report to Moderator Report to Moderator

SWAMI INFJ Warrior Taster
Kyosha Nim
Columnists and Bloggers
Posts: 7,692
Gender: Female
Location: Long Island, NY
Age: 51
Wow Angela..


MIFHI

"Do not try to satisfy your vanity by teaching a great many things. Awaken people's curiosity. It is enough to open minds; do not overload them." Anatole France

"Healthy people have the least overt symptoms from eating avoid foods." Dr. D'Adamo
Logged
Site Site Private Message Private message Reply: 3 - 60
tessUK
Saturday, May 15, 2010, 12:17pm Report to Moderator Report to Moderator
Guest User
I don't think I have caeliacs, even though I could fit some of the symptoms, from the fact that when I've eaten a lot of wheat in the past, I've podged up a bit-even though my body still felt hungry-obviously it was taking some calories from the gluten. I seem to be (since starting the diet) highly, highly lactose intolerant, however. So viligantly staying away from all diary (except ghee)- even products containing, 'possible traces of milk,' might be the key to feeling well for me.

I hope that this is the answer for you TJ. Fingers crossed. It is a really hard thing living with fatigue, to cope in yourself-then the added stress of the 'helpful' advice everyone wants to give you!! (No sleep hygeine will NOT stop me feeling tired all day and wired at night Grrrr)    No-one seems to understand my approach of focusing all my energy on finding the cure to my fatigue, instead of managing symptoms. I don't know if you find the same??      
Logged
E-mail E-mail Reply: 4 - 60
TJ
Saturday, May 15, 2010, 1:24pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
Quoted from AKArtlover
The alternative is to live "as if" one has celiac avoiding all gluten.
That's what I'm going to go for.  Although I take a piece of gluten-containing bread every Sunday, I don't know if that would be enough for the test.  But the biopsy would show the damage, if I was in a position to get that done.
Quoted from AKArtlover
There are other lectins in food, as we know from Dr. D's research, that are damaging to the gut as well. My intuitive understanding is that eliminating wheat alone (or allergens) would not be fully effective until the gut is not under assult from lectins that are blood type specific.
I've been following Dr. D's diets since August of 2007.
Quoted from 7966
No-one seems to understand my approach of focusing all my energy on finding the cure to my fatigue, instead of managing symptoms. I don't know if you find the same??
Mom seems to understand.  Most people don't.  Our culture is all about quick fixes instead of real healing.
Logged Offline
Private Message Private message Reply: 5 - 60
Lola
Saturday, May 15, 2010, 3:38pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
Posts: 51,347
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 58
Dr D has done a lot of research concerning the damages done by the WGA
wheat germ agglutinin found in wheat.....
http://www.dadamo.com/science_bloodgroups_digestion_references.htm

you might want to search for it as
WGA
http://www.dadamo.com/science_lectin_abstracts.htm
http://www.dadamo.com/forum/convert3/config.pl?read=170
http://www.dadamo.com/science_lectins_mitogens.htm

and it goes on and on.....
enjoy!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
Logged
Private Message Private message YIM YIM Reply: 6 - 60
AKArtlover
Saturday, May 15, 2010, 6:00pm Report to Moderator Report to Moderator

centered leaning INTP Explorer, Supertaster, SWAMI
Kyosha Nim
Posts: 2,121
Gender: Female
Location: Midwest, US of A
Age: 39
Quoted from TJ
That's what I'm going to go for.  Although I take a piece of gluten-containing bread every Sunday, I don't know if that would be enough for the test.  But the biopsy would show the damage, if I was in a position to get that done.


Yeah, I don't know that they will go to biopsy unless you have a positive blood test. I have no clue how much biopsy is or if insurance would cover it. Pretty invasive idea, but the best they can do now.

I'm not sure what denomination or religion you are, but my pastor has said it is ok if I take gluten-free communion wafers that I make myself. I ground up some gluten free oats in a Magic Bullet and made a dough with just that and water and cut them into circles. I put them into the toaster oven at a low temperature till they dried out.

Oats were a possibility of a making a flat type bread in Bible times. There is a Jewish company that puts out gluten-free (oat) matzah (forgive me if spelled wrong) around Passover.

There is also some type of organization that makes wafers that does the lowest level wheat allowable by the Catholic church.

Forgive me I don't have the links. Maybe google gluten free communion wafers?

Tess, what you are doing in your journey is what most of the people on the board are doing-- they want real health that is lasting. I commend you.

Many blessings.


And thanks Lola for the references.  



"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
Logged
Private Message Private message Reply: 7 - 60
Lola
Saturday, May 15, 2010, 6:15pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
Posts: 51,347
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 58


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
Logged
Private Message Private message YIM YIM Reply: 8 - 60
TJ
Saturday, May 15, 2010, 8:00pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
We usually just use plain old sliced bread torn into small pieces.  Technically, we can use any kind of food we wish, so I might just bring a slice of dried banana!
Logged Offline
Private Message Private message Reply: 9 - 60
Eric
Saturday, May 15, 2010, 9:41pm Report to Moderator Report to Moderator

Kyosha Nim
Posts: 935
Gender: Male
Location: Western Mass
Age: 30
TJ, for a few months I would bring rice bread to church.  Now I just skip the bread & take the water... bishop said that was fine.  But I don't know if you're that sensitive to wheat.  That one little piece will have me feeling awful for the next 5 or 6 hours.


Logged Offline
Private Message Private message Skype Skype Reply: 10 - 60
Ribbit
Saturday, May 15, 2010, 10:47pm Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
Kyosha Nim
Posts: 8,156
Gender: Female
Location: Atlanta, Georgia
Age: 37
When I switched to spelt (when I was diagnosed with a wheat allergy 13 years ago), I convinced the church lady who made our communion bread to use spelt instead.  I supplied her with the flour and she was willing to use it.  I almost burst out laughing that first Sunday when the pastor pulled the white cloth off the flat bread and looked down at it.  He stared hard it and picked it up.  He kind of tilted his head to one side and then started breaking it into bits as if he wasn't sure how hard it would be to tear.  He looked a little fierce (but then, he was a fierce person--I'm so glad to be out of there).  My mom and I nearly cracked up.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
Logged Offline
Private Message Private message Reply: 11 - 60
TJ
Sunday, May 16, 2010, 12:01am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
In a way, I wish I DID have an acute, violent reaction to everything I shouldn't eat.  It would be so much easier to spot!  But I can eat wheat without noticing any obvious or immediate consequences.  That is why I had ruled out Celiac.  I don't KNOW that I have it, but I'm considering it a definite possibility, and I am going to act like I do and see what happens.
Logged Offline
Private Message Private message Reply: 12 - 60
Possum
Sunday, May 16, 2010, 12:15am Report to Moderator Report to Moderator

Rh- Explorer/Gatherer
Ee Dan
Posts: 5,410
Gender: Female
Location: Wellington, New Zealand
Age: 53
Quoted from AKArtlover
I ground up some gluten free oats in a Magic Bullet and made a dough with just that and water and cut them into circles. I put them into the toaster oven at a low temperature till they dried out.
I do the same but I cook the balls of "dough" in a circular waffle maker...It squashes them & works a treat & so fast.. They come out looking like those expensive gourmet wafer/crackers...


Logged Offline
Private Message Private message Reply: 13 - 60
AKArtlover
Sunday, May 16, 2010, 7:58am Report to Moderator Report to Moderator

centered leaning INTP Explorer, Supertaster, SWAMI
Kyosha Nim
Posts: 2,121
Gender: Female
Location: Midwest, US of A
Age: 39
Quoted from TJ
In a way, I wish I DID have an acute, violent reaction to everything I shouldn't eat.  It would be so much easier to spot!  But I can eat wheat without noticing any obvious or immediate consequences.  That is why I had ruled out Celiac.  I don't KNOW that I have it, but I'm considering it a definite possibility, and I am going to act like I do and see what happens.


I think what convinced me that gluten was an issue was for awhile before I got my stool test, I avoided wheat for a few days, continued to eat what was left of  my normal diet which wasn't blood type anything. Then I reintroduced some wheat. My energy would go down awhile after eating. I would wake up the next day with what I would call a wheat hangover. More brain fog, stinky mood, rumbles in the intestines.

I got a similar but less severe effect from processed sugar after giving that up a several years before (most obvious sources in a conscious way) depending on the quantity. I remember the last birthday cake I ate where my husband and I thought-- why not, let's have some? The desire link was totally broken by our body's responses. I think our family has finally accepted 3 or 4 years later when we politely decline.





"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." Psalm 139:13,14
Logged
Private Message Private message Reply: 14 - 60
KHT140
Tuesday, June 1, 2010, 3:52am Report to Moderator Report to Moderator
Guest User
In regards to communion, my daughter was on a gluten free, dairy free diet 14 years ago. We went to the following site after my pastor said it was okay to have her use the non-wheat host. Now my church is offering gluten-free hosts for those who need it! Things have really changed for the better.

http://www.ener-g.com/store/detail.aspx?section=15&cat=15&id=21
Logged
E-mail E-mail Reply: 15 - 60
Frosty
Tuesday, June 1, 2010, 3:56am Report to Moderator Report to Moderator

GT2 - Gatherer - Rh+ SWAMI - Slight Taster
Ee Dan
Posts: 978
Gender: Female
Location: Valley of the Sun Phoenix, Arizona
Age: 50
Quoted from Ribbit
When I switched to spelt (when I was diagnosed with a wheat allergy 13 years ago), I convinced the church lady who made our communion bread to use spelt instead.  I supplied her with the flour and she was willing to use it.  I almost burst out laughing that first Sunday when the pastor pulled the white cloth off the flat bread and looked down at it.  He stared hard it and picked it up.  He kind of tilted his head to one side and then started breaking it into bits as if he wasn't sure how hard it would be to tear.  He looked a little fierce (but then, he was a fierce person--I'm so glad to be out of there).  My mom and I nearly cracked up.


I am laughing at this (pastor's reaction) so hard I am crying.  Fantastic story to share and a great one to end my day!



Happiness cannot be traveled to, owned, earned, worn or consumed. Happiness is the spiritual experience of living every minute with love, grace and gratitude. - Denis Waitley
Logged
Site Site Private Message Private message YIM YIM Windows Live Messenger WLM Reply: 16 - 60
Beckyb
Tuesday, June 1, 2010, 12:19pm Report to Moderator Report to Moderator

I am fearfully and wonderfully made Ps.139:14
Kyosha Nim
Posts: 181
Gender: Female
Location: Southern Maryland
Age: 61
Don't know how helpful this may be for anyone else, but I always take some Deflect a few minutes before the communion tray of unleavened bread is passed among the congregation...and then I only take the very smallest portion imaginable since we individually break off a small amount ourselves i.e. The communion bread is not pre-apportioned into "wafers". Taking the Deflect right before that tiniest piece of communion bread seems to help a lot.


Rh+,Mesomorph,Gatherer, BTD since 1998.
Logged
Private Message Private message Reply: 17 - 60
Melissa_J
Tuesday, June 1, 2010, 7:37pm Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
Administrator & Blogger
Posts: 5,045
Gender: Female
Location: Utah, USA
Age: 39
I once took the bread at sacrament, but had a hard time sitting through the rest of church if I did.  Now I can bring my own bread and they'll bless and pass it to me, or I just have some in my bag.  Without two celiac kids I would just skip the bread, but they need something.  All of the above solutions are fine with my bishop.  

If that's all the gluten you're eating, then the standard blood tests will probably be negative, except for antigliadin IgG...you have to be off gluten a good long time for that one to switch back to negative, it has a long memory.  

My brother and niece both had negative blood tests (except for anti-gliadin IgG, which most doctors don't care about), but fought for biopsies anyway and got positive biopsies.  My sister and nephew weren't so lucky or convincing, even though they had endoscopies done, the doctors didn't biopsy for celiac because the standard blood tests were negative (they were in there anyway, would have been so easy just to check).  Most of the standard tests are IgA-based, but celiac disease can cause IgA deficiency, and those with IgA deficiency are more likely to have celiac, so that throws it all out the window unless there's a lab and doctor that does the IgG versions of everything as well.  My osteopathic doctor is one of the few who care about the antigliadin IgG, but he doesn't usually order biopsies, so I am not biopsy proven  (I wish I'd gotten the biopsy when I first brought it up with my doctor, he just said, if wheat makes you sick don't eat it, so I didn't go gluten free for five more years, I didn't think I was celiac and wasn't serious about eliminating all gluten).  My oldest son would be much healthier and have much better teeth if I'd gone gluten free initially.  I felt fine with some gluten, wheat is the thing that makes me very sick, other gluten just upsets my stomach a bit, but it was still doing damage. It's only very recently that all my other food allergies and intolerances and weird reactions have calmed down, it's taken that long to heal the leaky gut and other problems gluten caused.

With my kids, I haven't waited for positive tests, they both had the gene tests and one had the stool test, but I couldn't stand watching them get sicker and sicker while I fought for the tests, only to have the tests possibly be negative because the damage wasn't extensive enough, yet.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
Logged Offline
Private Message Private message Reply: 18 - 60
TJ
Tuesday, June 22, 2010, 6:24pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
For those who were following this thread but not a couple others I've been on, I did take a small piece of sacrament bread again this Sunday.  I felt fine Sunday, despite only having about 3-4 hours of sleep the previous night, BUT Monday I felt totally wrecked, like fibromyalgia + hangover.  SO, it wasn't an acute reaction, but it was an obvious one, once other confounding sensitivities were not in play, and one I'd had gluten out of my system for a while.  I'm just amazed that such a tiny bit could affect me like that!!
Logged Offline
Private Message Private message Reply: 19 - 60
Amazone I.
Tuesday, June 22, 2010, 6:45pm Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
Kyosha Nim
Columnists and Bloggers
Posts: 16,374
Gender: Female
Location: CH-Benglen Kanton Z�rich
Age: 57
yep...yup... toll .. the word a w a r e n e s s ....goes' for it but please onto dif. levels... it's really important...
hey... it might be also that it was an acute reaction of mental discussions to the body... called psychosomatic reaction... we can't say no... but we can't say yes..either.. so what!!  Btw...remember Dr. D always mentioned that those issues might effect us 500 times harder than imagined...after havin been compliant...  and if somebody really reacts on gluten& gliadin, so all but really all grains should be eleminated which are containing any kind of that stuff!... nothing else is practicable... but yep up to you to proceed ....


MIfHI K-174

Revision History (1 edits)
Amazone I.  -  Tuesday, June 22, 2010, 7:45pm
Logged
Private Message Private message Reply: 20 - 60
unveganista
Tuesday, June 22, 2010, 6:47pm Report to Moderator Report to Moderator
Guest User
I never cheat with gluten.  That tiny infinitesimal amount can do damage that takes up to two years to repair or cause scarring that lasts forever.  I've even known people who have had to go on steroids because they "cheated" one too many times.  BAD GLUTEN, BAD!
Logged
E-mail E-mail Reply: 21 - 60
marjorie
Tuesday, June 22, 2010, 7:30pm Report to Moderator Report to Moderator

Hunter/Aquarious/Counselor
Ee Dan
Posts: 1,628
Gender: Female
Location: Colorado
Age: 39
I think I had gluten somewhere in the last few days.. my left eye is swollen, my stomach is a mess, I am cloudy and not right.

I did not document everything this week, but I was blaming the bison for not feeling ok, b/c I had too much protein in a previous thread.. however, I just realized I did injest some tuna with a sauce on it from a restaurant on Sunday and I did not ask about the gluten.. does teriyaki have gluten???

I also waitress at a diner with tons of gluten products and I wonder if some gluten got into one of the salads I ordered..

How does black pepper mess up our system? The bison burger I got from whole foods had pepper on it and cajun spices.. interesting, I wonder if this was the problem and not the meat itself.
Logged Offline
Private Message Private message Reply: 22 - 60
marjorie
Tuesday, June 22, 2010, 7:32pm Report to Moderator Report to Moderator

Hunter/Aquarious/Counselor
Ee Dan
Posts: 1,628
Gender: Female
Location: Colorado
Age: 39
question: how long does it take to get the wheat out of our systems? I am still not feeling well.
Logged Offline
Private Message Private message Reply: 23 - 60
deblynn3
Tuesday, June 22, 2010, 7:43pm Report to Moderator Report to Moderator

GT2 Gatherer rh+;Prop-Taster
Ee Dan
Posts: 2,615
Gender: Female
Location: Arkansas
Age: 57
I leave off the sauces that restaurants use to often they are thickened with flour. (gluten)


Swami, 100% me..
Logged Offline
Private Message Private message Reply: 24 - 60
3 Pages 1 2 3 » All Recommend Thread
Print Print Thread

BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  Eye-Opening Articles About Celiac Disease

Thread Rating
There is currently no rating for this thread