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Migraine without the headache  This thread currently has 3,495 views. Print Print Thread
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Curious
Tuesday, March 9, 2010, 12:09pm Report to Moderator Report to Moderator

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I sometimes have a weird feeling around my eyes: It feels like I have a wave of diamonds coming from either the right hand side of my head or from the left hand side of my head. It moves in a flickering way into my eyes and even though I still see fairly clearly, I find it distressing. It usually last for 10-20 minutes and I have it about every 6-8 weeks. It only started about a year ago.

I have been trying to find out what it is and someone told me that it could be a migrane without the headache. She said the 'flickering diamonds' are like the aura preceeding a migrane and that I was lucky that I do not get the headaches. Does this make sense and does any of you know this?

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ABJoe  -  Friday, January 27, 2012, 5:12pm
Fixed typo in title.
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yaman
Tuesday, March 9, 2010, 12:55pm Report to Moderator Report to Moderator

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Seems similar to what I have been experiencing since my early adulthood. I would describe it as a crescent shaped flickering appearing in my eyesight, thereupon followed by a severe headache..

In time the frequency of that decreased, and the headache altogether disappeared. I still have the flickering now and then, with a sense of wanting to relax. Recently a physician told me that it was a mild case of ischemia, and nothing to really worry about..

Cheers,
Yaman


"You are never given a problem without the will power to solve it"
Richard Bach - Illusions, The Adventures of a Reluctant Messiah
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Ribbit
Tuesday, March 9, 2010, 1:45pm Report to Moderator Report to Moderator

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Yes, it's called "silent migraines".  My sister gets them.  I, on the other hand, get the real migraines.  She has all the leading-up-to-headache symptoms (vision, super-sensitivity to light and sound, nausea), and then it goes away without ever getting the headache.  She saw a doctor who said those were known as silent migraines and told her to be thankful.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Mayflowers
Tuesday, March 9, 2010, 2:09pm Report to Moderator Report to Moderator
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I was told it's called a "migraine effect"  I get them too. I had it last week...I got tunnel vision for a minute then it cleared up. I was also told by a MD that migraines are a vascular insufficiency caused by the chemicals that make the arteries dialate and retract are not secreted sufficiently.  I bet the chemicals in oranges stopped my correct secretion.   Once I stopped eating oranges the migraines stopped by 99.8%
I went most of my life drinking orange juice in the morning because I "thought" it was good for me. It gave me migraine headaches and acne. Oh, and the funny thing is I don't even like oranges or the flavor of orange.   I found out that oranges are an avoid when I started the BTD. I wish I would have known that.  I lived 50 mins away from Dr. James D'Adamo.  50 minutes.     We had no knowledge of ND"s due to my state not licensing them...grrrrr.
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Kristin
Tuesday, March 9, 2010, 2:34pm Report to Moderator Report to Moderator

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I get them too, since my early twenties. I also used to find it quite distressing. Now I hardly notice them at all.    They have decreased in frequency and intensity as I get older too.


The true meaning of life is to plant trees under whose shade you do not expect to sit.

- Nelson Henderson
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Curious
Wednesday, March 10, 2010, 1:24am Report to Moderator Report to Moderator

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Very intersting - thanks everyone. I am so glad that I don't need to worry - and I am glad I don't get the severe headaches.
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Lola
Wednesday, March 10, 2010, 1:46am Report to Moderator Report to Moderator

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try the gentle liver cleanse for explorers in the GTD book, repeat once a month at least......also keep hydrated right!
mine was liver related.....and these guidelines have greatly helped


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Kristin
Wednesday, March 10, 2010, 5:21am Report to Moderator Report to Moderator

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Quoted from Lola
try the gentle liver cleanse for explorers in the GTD book, repeat once a month at least......also keep hydrated right!
mine was liver related.....and these guidelines have greatly helped


So maybe it is not the getting older, but getting healthier....  



The true meaning of life is to plant trees under whose shade you do not expect to sit.

- Nelson Henderson
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Lola
Wednesday, March 10, 2010, 5:49am Report to Moderator Report to Moderator

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and wiser!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Sharon
Wednesday, March 10, 2010, 5:53am Report to Moderator Report to Moderator

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Quoted from 815
I was told it's called a "migraine effect"  I get them too. I had it last week...I got tunnel vision for a minute then it cleared up. I was also told by a MD that migraines are a vascular insufficiency caused by the chemicals that make the arteries dialate and retract are not secreted sufficiently.  I bet the chemicals in oranges stopped my correct secretion.   Once I stopped eating oranges the migraines stopped by 99.8%
I went most of my life drinking orange juice in the morning because I "thought" it was good for me. It gave me migraine headaches and acne. Oh, and the funny thing is I don't even like oranges or the flavor of orange.   I found out that oranges are an avoid when I started the BTD. I wish I would have known that.  I lived 50 mins away from Dr. James D'Adamo.  50 minutes.     We had no knowledge of ND"s due to my state not licensing them...grrrrr.


Mayflowers, I used to drink oranges and orange juice everyday because I "thought" it was good for me, too. I was addicted to oranges but didn't really like them either. I got so used to eating them that it became a habit. When I read Dr. D's book, I learned that they are an avoid for AB's so I went off of them and felt so much better and my migraines stopped. I never made the connection between the oranges and migraines until now. I have  many other beneficial fruits like apples, pears, apricots, kiwi, etc. so I don't miss oranges. I got my first migraine with lights and no headache in 4th grade. I got migraines 3 times/year until I started the BTD. I noticed that the migraines came only in the spring.
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Lola
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Quoted Text
arteries dialate and retract are not secreted sufficiently.

http://www.4yourtype.com/prodinfo.asp?number=NP061
http://www.4yourtype.com/prodinfo.asp?number=NP013


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Curious
Thursday, March 11, 2010, 10:51pm Report to Moderator Report to Moderator

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Thanks for the idea about the liver cleanse Lola - it is a good idea. I am currently taking milk thistle, so that would probably help as well.
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NewHampshireGirl
Thursday, March 11, 2010, 11:07pm Report to Moderator Report to Moderator

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I have had these ocular migraines periodically since the age of 35.  It scared the bejeebers out of me at the time.  I now know that when this happens there is something wrong in the gut.  
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Curious
Friday, March 12, 2010, 2:07am Report to Moderator Report to Moderator

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Quoted from NewHampshireGirl
I have had these ocular migraines periodically since the age of 35.  It scared the bejeebers out of me at the time.  I now know that when this happens there is something wrong in the gut.  


Something wrong in the gut??? Do you know what sorts of things are wrong in the gut?
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NewHampshireGirl
Friday, March 12, 2010, 3:26am Report to Moderator Report to Moderator

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What I mean is that I have probably eaten something that did not agree with me but I don't really realize it at the time.  For instance, a bladder infection does not affect only the bladder but your whole system.  So, during that time I might have several days of a Rorschach image appear briefly at intervals before my eyes.  Wow, this is hard to explain!  Anyway, I do believe the gut is very much involved.  Maybe someone else can explain this better.
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Curious
Saturday, March 13, 2010, 12:43am Report to Moderator Report to Moderator

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Thanks NewHampshireGirl. You are probably right, the day before my last 'silent migrane' I ate chocolate. It was homemade and had only great stuff in it (cocoa butter, chocolate powder, almonds, raisins), but I think I ate too much of it. Maybe my body just could not cope with too much fat (as in cocoa butter).
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NewHampshireGirl
Saturday, March 13, 2010, 3:22am Report to Moderator Report to Moderator

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You're welcome, Curious.    I wish some research could be done on this subject but meanwhile I'll stick to my theory.
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Melissa_J
Sunday, March 14, 2010, 3:48am Report to Moderator Report to Moderator

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I agree, for me they are also food/gut related.  Wheat, even in amounts too small to cause other nasty reactions, will give me migraines.  

Caffeine can help migraines, but in some people it has the opposite effect.  It seemed to help mine (though not as much as finding and disposing of the hidden wheat I was taking in).  


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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paul clucas
Sunday, March 14, 2010, 8:11pm Report to Moderator Report to Moderator

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I would call those symptoms stress, as opposed to pain.  Too often the two go together.  

I experienced pain-free stress headaches from my Tomatis therapy.  Other times there was pain and stress.  Since the therapy is meant to rewire the brain through the sense of hearing, it is not surprising that the brain complained about the changes.

I would get migraines with my inability to deal with my life anyways.  Taking the therapy just forced me to knowingly take the stress.  This was not easy at the age of ten.  The payoff was at least a year and a half in development.  Now, I could not imagine my life without having done the therapy.  The weird headaces, being dyslexic, and the "feedback" from my therapy are very private burdens that were often doubted or treated dismissively by those who could not know.

"Invisible handicaps."  


My weight loss goal: 220 lbs.  A 6'4" dyslexic oddball: the size of a line-backer, the silhouette of Winnie-the-Pooh.
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Ribbit
Sunday, March 14, 2010, 9:13pm Report to Moderator Report to Moderator

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Quoted from paul clucas


I experienced pain-free stress headaches from my Tomatis therapy.  


Thanks for the warning.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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paul clucas
Monday, March 15, 2010, 4:08pm Report to Moderator Report to Moderator

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Quoted from Ribbit
Thanks for the warning.
If your experience is like mine, you will merely be trading headaches.  

Do not be convinced that my experience is going to predict yours, however.  We do not share the exact same symptoms, gender, therapy programme (I am assuming this from your comments), age when the therapy is first applied, blood type, or Genotype.  A little thinking with the D' Adamo thinking cap, or looking with the D' Adamo lens will get you out of that OSFA thinking.  Headaches could have more to do with my inherent genetically determine weaknesses.  Not all kids at the centre disliked the therapy to the same degree.  Some would throw temper tantrums (there should be a measure for distance so the Guinness World Record people can quantify this), be grouchy or depressed, or just shrug and draw a picture.  

BTW when you are listening to the filtered music, artistic endevors are best, possibly to engage the right brain while the left is busy.

So little is known about this that the best expert in the world (Paul Madaule, possibly) would not be able to predict how or if you will be affected.  I am certainly not that expert.  I am not in anyway licensed to give medical advice to anyone for any condition.  My enthusiasm for Tomatis, and other unusual health care systems sometimes falsely gives the impression that I know more than I do.  If this is a problem I will replace my signature with some suitable warning about the severe and narrow limits of my competence.  


My weight loss goal: 220 lbs.  A 6'4" dyslexic oddball: the size of a line-backer, the silhouette of Winnie-the-Pooh.
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Ribbit
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Okay.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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shells
Tuesday, March 16, 2010, 8:10am Report to Moderator Report to Moderator

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This is interesting....I can create these symptoms with a very fuzzy head by eating either chocolate,  chocolate/cream, tomato/cream, tomato concentrate, but bring on the  full migrane by eating any three or by two in combination with the Westerly winds (dry winds from the inland).  

This will occur every time  
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NewHampshireGirl
Tuesday, March 16, 2010, 6:30pm Report to Moderator Report to Moderator

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Shells, that's v-e-r-y interesting.
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italybound
Wednesday, March 17, 2010, 4:52am Report to Moderator Report to Moderator

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I had the wave of diamonds as Curious described, but I referred to it as kaleidoscope like but w/ no color.
The first time it was on both sides. Lasted about 20 minutes. Freaked me out! No headache. I was just standing in my kitchen when it happened.
The second time, it was on both sides as well, but only lasted 5-10 min on the right side. However, this time, my vision on the left side was affected. Blackness started at the upper part of the outside of my eye area. It spread down the outside part of my face next to my eye and over my eye in the eyebrow area towards the center of my face. Then I got hit with the pain in my face (like a stroke), all the way down to my neck. I was driving when this happened. Pulled over of course and within 10 minutes it was all gone. Went to the dr and felt that was well warranted. They put me in the hospital (of course), ran some MRI's and CT scan I think. Kept me overnight. The original dr I went to (neurologist) came in Friday night and told me I had had a TIA and that I was way too young for that!! The next day a different dr came in to see me ( I was none too happy about that at first ). He told me things were fine. I questioned him about what the other dr said and he then told me they had only gotten my test results back that morning! So the other dr made a false diagnosis and w/o looking at the test results. I was not a happy camper with him! I found out later, he had done the same thing w/ another gal that I know and was also referred to him by the same doctor. So after all that, I went and had a THOROUGH eye exam done. He found nothing. It was then that I was told it was likely an ocular migraine. Have not had any since finding out about BTD. I believe it was food related. I ate on the SAD diet at the time these happened. I would think probably from food additives. JMHO



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NewHampshireGirl
Wednesday, March 17, 2010, 3:39pm Report to Moderator Report to Moderator

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Good description of your aura, Italybound.  I was 35 years old at the time of my first ocular migraine and had a new baby at the time.  I remember taking a walk with another mother, each pushing our baby carriages, everything sunshiny and glorious in our lives and then wham this ocular thing happened.  I didn't know what was happening and my legs became a little wobbly from fright but I kept on as if nothing was going on.  I really don't know how many years went by with other occurrences before I learned that these events were called ocular migraines.  
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TJ
Friday, January 27, 2012, 8:15am Report to Moderator Report to Moderator

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Will one of you moderators correct the spelling on this thread so it's easier to find in the search?
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Possum
Friday, January 27, 2012, 9:49am Report to Moderator Report to Moderator

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Glad you resurrected this thread TJ (I may never have found it myself )
Subject is very interesting, as my son & daughter used to occasionally get full blown migraines which would only dissipate once they had thrown up & my Mother & Mother in Law got migraines often...
I have never even had even many headaches myself, but this past year I have 2-3 times had that aura thing happen in just the left eye... No pain but slightly blurry vision on the very outside of the eye, as if there was "something" in my left field of vision & it would only go away if I rested with both eyes shut for 10-20 mins Haven't had it now for a while so wonder if it is the same thing?

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Possum  -  Friday, January 27, 2012, 10:44am
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ABJoe
Friday, January 27, 2012, 5:22pm Report to Moderator Report to Moderator

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Quoted from TJ
Will one of you moderators correct the spelling on this thread so it's easier to find in the search?

Done!


RH-, ISTJ
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D.L.
Friday, January 27, 2012, 6:52pm Report to Moderator Report to Moderator

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Like I said in my previous post, which keeps disappearing then reappearing:
When I first feel a migraine headache coming on, I immediately rub a little essential peppermint oil on my forhead and more on the bottom part of the back of my neck. Not too much, because the fumes will make the eyes water. And not the kind you can swallow. This is the pure essential peppermint oil in the little bottles with the dropper. Swallowing is toxic.  I  used to get migraines so bad that I would have to take to the bed in total darkness with no noise. Then, when I finally threw up and took a nap, I would be very weak. I can tell when one is starting because first I get colorful zig-zag lightening flashes in the corner of an eye, which progresses to full-fledge "stained glass window" effect, but flashing, over my entire eyes and I can't see. Closing my eyes doesn't get rid of it. But since I use the peppermint oil as described above, I shut it down immediately. I don't have them very often anymore, but I carry that little bottle in my purse everywhere I go. I know if I get away from home and that starts, I won't be able to drive.  My mother talked about the aura she got before a migraine turned into the headache stage. I never got the aura ... just the flashing zig-zag progressive lights. After reading this post, I wonder if the orange juice I used to drink every night before bed could have been one factor. I know if I am around cigarette smoke at all I get a full blown one. There are probably several factors involved. I have lots and lots of allergies. Mom said she thought the peppermint oil did something to the blood vessels.
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D.L.
Friday, January 27, 2012, 7:01pm Report to Moderator Report to Moderator

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Ee Dan
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Oh, and I, too, have been taking milk thistle for an inflamed liver (which is now ok), plus L-carnitine, fish oil, ubinquinol(Co-Q10) and other supplements for the past year.
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Ribbit
Saturday, January 28, 2012, 1:01am Report to Moderator Report to Moderator

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TJ, thanks for resurrecting the thread.  My memory is fading, and I'd forgotten this had a name.  Migraine without the pain.  I think I need to treat myself as if I always have a migraine, because I think I do, whether or not I actually have the headache.  I have seen a neurologist since this thread was started, and he confirmed that that's what I've got.  

Possum, I never thought about throwing up making me feel better.  But if I start doing that......will it ever end?  I feel nauseated after every single meal as it is anyway.  


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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TJ
Saturday, January 28, 2012, 1:14am Report to Moderator Report to Moderator

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Don't add bulimia to the list!  I don't think a migraine has ever made me throw up.  Darkness, quiet, and sleep are usually enough for me.
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Possum
Saturday, January 28, 2012, 4:00am Report to Moderator Report to Moderator

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Quoted from Ribbit
Possum, I never thought about throwing up making me feel better.  But if I start doing that......will it ever end?  I feel nauseated after every single meal as it is anyway.
Jeepers do you?? Must be something that is causing that??!! Wonder what it is? Have YOU ever looked into things like salicylates etc?

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Beachgirl
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I started getting auras a few years ago... I, not so lovingly call them, "eye-graines".  Sometimes it feels like something is swirling at the outer edges of my vision & it will make me incredibly nauseous.  The first time it happened, I went to my eye doctor & she checked everything out & said it all looked fine.  I tend to get them when I've really over done things w/ my eyes... like reading an 800+ pg. Stephen King book in a day & a half.  (or spending too many hours on the computer)    I haven't noticed a food correlation, but will keep an eye out if I get one again.  Mine tend to last for about 20 mins - a half hour as well.  It's very unsettling.  These days, I tend to get more of the full blown migraines, mainly when my hormones shift or when I need to visit my chiropractor... those usually last 3 or 4 days!


Whenever I feel blue, I start breathing again!
Goal weight acheived!!  Woo Hoo!!!!
DH of 18 yrs. O+, DS 17yo O, DS 5yo O, not sure on the boys' RH status.

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Tom Martens
Saturday, January 28, 2012, 6:17pm Report to Moderator Report to Moderator

O Neg - ENTJ -SWAMI says GT-1 Hunter
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For those of you who see "stars" in your eyes, be sure you get a full eye exam which includes getting your eyes dilated.  Many non eye related diseases are detected through your eyes.


Be who you are.  Those who mind don't matter, those who matter won't mind.

FIfHI

M,M LeA+ LeB-

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PCUK-Positive
Sunday, January 29, 2012, 1:40am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Timing of this thread is cool, as I am working with someone who has a hard to figure headache. no obvious food causes. not BTD but super plain eater BT A, looking some stuff like msg as a cause, will check back if any success.

I must say though that if you use something like peppermint oil to ease the pain (which is cool)but why not look for the cause more and stop that. mean that in a nice way.

if super compliant then look at the sugars, artificial etc...


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Sunday, January 29, 2012, 2:56am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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forgot to add Aspartame as a possible culprit E951

MSG is E 621 plus ones containing glutamate's = 620,622,623,624,625,627,631,635. but the sources are endless.

random's such as gelatin, oh and many in pet foods too. tetra sodium pyrophosphate.

both "possibly" linked to the following Chronic fatigue Syndrome, Alzheimer's, Post Polio Syndrome, Carpel Tunnel Syndrome, MS, Eosinophilia Myalgia Syndrome, Lyme disease, Manic depression, Epilepsy, Graves Disease, Heart disease.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer

Revision History (1 edits)
PCUK-Positive  -  Sunday, January 29, 2012, 3:34am
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cowgirlmama04
Monday, February 27, 2012, 2:36pm Report to Moderator Report to Moderator

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I have had migraines since I was 14, some with pre cursor's such as blurry vision and tunnel vision. The worst was when I would get the numb face and arms, and the slurred speech and inability to put together a coherant sentence. I thought that I was having a stroke, and it turned out to be sever migraines. I wasn't able to find what the trigger's were, but I am hopeful, because since I changed to the BTD, I haven't had a migraine. 3 weeks without a migraine is like heaven for me, I was getting them at least once a week.
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Lola
Monday, February 27, 2012, 4:53pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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those will be a thing of the past

make sure you keep hydrated and follow your guidelines, tweaking as you see fit.....
finding out your secretor status and GT are great moves toward a personalized approach


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Joyce
Monday, February 27, 2012, 5:30pm Report to Moderator Report to Moderator

62% Warrior - Rh+
Sam Dan
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Trigger for me is citric acid and/or not enough [supplemental] magnesium.
Aura starts with unreadable letters and then zigzags working outwards over my field of vision, occasionally blank bits in field also.
I've just had a full eye exam, field of vision etc.... as one of my routine glaucoma check ups....nothing extra appears wrong there.
Rarely a headache, though used to get them once a month at peri menopause, but I can feel unwell for a few hours/half a day.
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snazzyshazz
Wednesday, February 29, 2012, 3:50am Report to Moderator Report to Moderator

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Quoted from D.L.

When I first feel a migraine headache coming on, I immediately rub a little essential peppermint oil on my forhead and more on the bottom part of the back of my neck. . . But since I use the peppermint oil as described above, I shut it down immediately. I don't have them very often anymore, but I carry that little bottle in my purse everywhere I go.


Thank you so much for posting this, D.L. I have since tried the peppermint oil, and it works for me too! I am still working out my triggers, so prevention is not entirely possible yet. The little bottle of peppermint oil in my purse has become my constant companion, just in case.

Thanks again!


FIfHI

"The mind is nourished by what it receives; the heart by what it gives."
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Possum
Wednesday, February 29, 2012, 4:14am Report to Moderator Report to Moderator

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Quoted from Possum
...this past year I have 2-3 times had that aura thing happen in just the left eye... No pain but slightly blurry vision on the very outside of the eye, as if there was "something" in my left field of vision & it would only go away if I rested with both eyes shut for 10-20 mins Haven't had it now for a while so wonder if it is the same thing?
Strange as this morning I had it again for the first time in ages & am now wondering if exposure to fumes precedes them for me? Spent all day in town on Monday (including waiting for 3/4hr for relatives on wharf, while stinky trucks stopped & backed up nearby) filled car with petrol on Tuesday, washed clothes, including bed linen, (with enviro friendly detergent but with essential oils in it ) & was also exposed to neighbour's washing as I went out to line myself (stinky regular smelly stuff) Then to top it off, used an old crock pot that has a part plastic outer & noticed it smells when heated...Slept really heavily last night, then when came back from city drop off this morning, I had an instant sun glare induced "headache" Ok later when crockpot turned off...
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Ribbit
Friday, March 2, 2012, 9:41pm Report to Moderator Report to Moderator

~W~A~R~R~I~O~R~ Defender, Survivor
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I probably posted this before, but the less metal I have in my mouth, the fewer migraines I have.  I got another metal bridge taken out and I haven't had one since.  I still have one filling to be removed, and then I'm metal-free!


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

Family: 3 As, 1 B, 1 AB, 1 O
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Joyce
Sunday, March 4, 2012, 5:53pm Report to Moderator Report to Moderator

62% Warrior - Rh+
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Quoted from Ribbit
I probably posted this before, but the less metal I have in my mouth, the fewer migraines I have.  I got another metal bridge taken out and I haven't had one since.  I still have one filling to be removed, and then I'm metal-free!


I do wonder if the rigidity of metal [besides toxic effects] could cause or aggravate head problems. I always thought of teeth as rigid structures until a dentist explained to me that they are supposed to move slightly.
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zenphoenix
Friday, March 9, 2012, 2:25am Report to Moderator Report to Moderator

54% Explorer-LDN-HSP-INFJ-SuperTaster
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glad this thread was resurrected!

i have dealt with silent migraines for YEARS...it went undiagnosed for almost 20 years, at which point i was so sick i could not work.

A new doctor in my home town figured it out.  Went to a neurologist, had an MRI etc. What i learned is that a migraine is a neurological issue... regardless of whether or not one gets a headache. In fact the most common sympton of a migraine episode is nausea. The "headache" is only one symptom of a list of many that defines a migraine and less than 60% of migraineurs experience the headache.

Those who do not get the headache part are not "free and easy"... left untreated it causes a lot of chronic problems as the frequency of the episodes (basically the brain goes off on it's own little trip) will increase, causing a myriad of physical symptoms and fatigue. When it is not dealt with correctly, the cycle of "brain attack" and recovery becomes chronic, with no breaks or appropriate recovery time and can result in other problems like depression or bipolar problems, seasonal affective disorder, chronic fatigue syndrome, fibromyaligia, chronic pain syndrome, etc.

I know for me... a migraine is very traumatic, even without the headache. My senses literally assault me - i experience not just the visual auras and other visual hallucination, but also allodynia, olfactory hallucinations, auditory hallucinations, severe nausea, balance issues, all over body pain, sensitivity to light, emotional instability, the inability to think, inability to speak coherently... i would imagine that my sense of taste would be wonky too, but i can't eat when that happens. One episode usually lasts for 4-8 hours.... i have had it last as long as 3 days and it leaves me absolutely drained for days after.

My neurologist actually said that in some ways it's too bad that i don't get the headaches more often (i've had only a handful of classic migraines, the rest are as described above) as those are easier to treat and i would have been diagnosed earlier.

I have found that managing through diet has been the most successful. BTD/SWAMI have been great for that. Now if i could only manage the weather...


"Our lives are frittered away by detail. Simplify, simplify." ~Henry David Theroux
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Ryacob
Friday, March 9, 2012, 9:09pm Report to Moderator Report to Moderator
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Has anyone found healing for ‘silent migraines’? I suspect I have been suffering from these for eight years.   Dizzy; lightheadness, feeling like going to pass out, weakness in arms /hands and legs; constant 'cloudy head', pressure in eyes, unable to focus, tunnel vision, black and white "kaleidoscope" like figures in the corners of both eyes, have on occasions had numbness of entire left side of body, feeling of being pulled down and severe fatigue.  

I have had EKG, MRI, CAT SCAN, and BOOLD WORK with everything normal.  I have been told it is vertigo, but I don't think that is what it is.  

Most recently, I have had very debilitating non stop episodes (every day), causing me to miss work and severely limiting my life.  I am struggling with the MD to take me seriously and look into this. I was actually told to see a psychiatrist by one doctor.  I finally saw an ENT, based on my symptoms he suggests I may be experiencing 'silent migraines'.  

I started BTD just a week ago and I am hoping for some relief.  

What I would love to know is of those who have been diagnosed with this...how did you go about it?  Was your GP hip to it or did you have to battle to get to the correct doctor? In additon to feeling horrible daily, battling for someone to help me is becoming overwhelming.  

Also what is the treatment for healing? I would like to not just mask the symptoms with more pills but to heal completely.  

Any input would be life changing.  
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ABJoe
Friday, March 9, 2012, 10:37pm Report to Moderator Report to Moderator

35% Nomad or Teacher - health history dependent
Sun Beh Nim
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Quoted from 18090
Has anyone found healing for ‘silent migraines’? I suspect I have been suffering from these for eight years.   Dizzy; lightheadness, feeling like going to pass out, weakness in arms /hands and legs; constant 'cloudy head', pressure in eyes, unable to focus, tunnel vision, black and white "kaleidoscope" like figures in the corners of both eyes, have on occasions had numbness of entire left side of body, feeling of being pulled down and severe fatigue.

What I would love to know is of those who have been diagnosed with this...how did you go about it?  Was your GP hip to it or did you have to battle to get to the correct doctor? In additon to feeling horrible daily, battling for someone to help me is becoming overwhelming.  

Also what is the treatment for healing?


I have had many of these symptoms.  I have had these based on other people's description, but could also never get a diagnosis.  Every Dr. I have seen about them, basically brushed it off as "all in my head" because I didn't look sick or have any other symptom.  I even had a Dr. tell me that I was faking having no energy...
  
What has helped me the most is following Dr. D.'s diet recommendations.  I started with the Blood Type diet, moved to the Genotype diet, and now have my personalized SWAMI diet.  My recommendation is to:
1. make sure you eat little to no avoids and replace them with as many beneficial foods as possible.
2. do as much as possible to heal the gut.  Deflect and Polyflora for your type and ghee or Intrinsa are great assistants.
3. liver cleansing would probably help.  I would do the gentle cleanse from The Genotype book rather than a harsher program.

I still can't exercise to the extent I should be able to, but I am also healing far deeper than I knew I was going to need.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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zenphoenix
Monday, March 12, 2012, 6:11am Report to Moderator Report to Moderator

54% Explorer-LDN-HSP-INFJ-SuperTaster
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rya - as i mentioned in my post above yours, i went undiagnosed for around 20 years. In that time i saw about 20 different doctors and specialists (i lost count somewhere around 1. I've had every diagnosis under the sun... depression, bi-polar, chronic fatigue, SAD, MS, hypoglycemia, glaucoma, vertigo, fibromyalgia (although this one turned out to be true, just not as severe as diagnosed), whiplash, thyroid condition, high blood pressure (which is hilarious, i have very low bp!), anemia (pick one) etc...

Here is how i got my diagnosis...

Suspecting that i had migraines of some sort...

1. i first listed every symptom / ill feeling that i had.

2. talked to all the people i knew who had migraines to understand what their symptoms were. I paid attention to when my friends were getting migraines to see if there was a correlation to me (ie, one friend had a lot of problems with weather induced migraines... the days she was sick, so was i).

3. I tracked my episodes and what may have brought it one (ie the weather, stress, lack of sleep etc)

4. i called all of my family and quizzed them on whether or not they have ever had a migraine... i described the symptoms of auras, etc. Turns out that neither of my parents had a migraine condition, but paternal grandfather had rather severe migraines, as did a great aunt on my birth mother's side.

5. Tried to recount in writing my medical history / dr's visits and diagnosis

6. I took all of this in to the new doctor in my town and talked, showed him everything and asked him what this could possibly be. He took one look at everything i had written down and said... you have migraines, rather severe ones in fact.


I found out that in cases of "silent" migraine, they do use family history as a means of verification, so it is important to question everyone. My grandfather and great aunt's history was enough to show that there was family history.


The best treatment for me... at first, i willingly took the meds because i was so sick i had been unable to work for several months and i needed to get back on my feet so to speak. However, i actively started researching food and supplements, etc. I managed to figure out some of my triggers quite quickly, some took longer. But even then i was still getting more than 8 a month.

After i started following BTD they got somewhat better, but since i switched to SWAMI last august and did a liver cleanse (also august), i have had only 1.

l-arginine is really good for Bs... you need it! it helped me a lot. So did Vitamin D. Find out about your blood pressure... low bp can be a migraine problem, you may need to add sea salt to your diet. And visulization... Bs a re super good at visualizing and it works.


"Our lives are frittered away by detail. Simplify, simplify." ~Henry David Theroux
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Spring
Monday, March 12, 2012, 2:21pm Report to Moderator Report to Moderator

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Ee Dan
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Quoted Text
I even had a Dr. tell me that I was faking having no energy...

This sort of thing makes me want to whack somebody with a few choice words! The nerve of the old goat!!


"We are all born ignorant, but one must work hard to remain stupid." -- Benjamin Franklin
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Symbi
Tuesday, March 13, 2012, 6:08am Report to Moderator Report to Moderator

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Age: 40
Sometimes I can prevent a migraine by laying down and relaxing no meds needed.  Or is it a vascular-type headache?  Get many kinds of headaches.  The auras are rare for me, sometimes I can wake up with one in the morning or I got a really colourful one once   after being on the computer too long.  Trippy stuff normally only last 20 minutes and then are followed by a full blown migraine.  Usually starts in the middle of vision and jagged lines spread and more to the outside, diamonds is a good description  .  Sometimes you can tell one is coming (prodomal stage) feeling clumsy, out of it, irritable, sore neck, heightened sense of smell/sight/hearing could be hours/days before the aura.  Come to think of it maybe I always have migraines!  

My migraine triggers: Changes in weather, stress, hormones (low oestrogen during menstruation), missed meals, too little or too much sleep, food containing amines (MSG, chocolate, fermented foods, red wine) flashing lights or too much light and sound or smell, can trigger them in me.  Often it takes a few of those things lining up at once like a perfect storm to trigger one.

Funny I used to think I was having sinus infections but tightness in the sinuses is often a symptom of migraine.  Apparently many people mix them up.  Took many unnecessary antibiotics in the bad old days for migraines.    Now I use a nasal saline spray everyday so sinuses are tip top (tip learned on here  ).  

Caffeine can sometimes stop or lessen a migraine if you have some early on during the headache phase.  It works cos it works as a vasodilator (opens blood capillaries, which are dilated during aura and then tighten (vasosconstrict) during the headache phase).  Even the small amount in green tea may be enough.  Not totally your friend, caffeine can trigger a headache if your body is used to having some and you forget to have the usual amount (like forgetting to have coffee on a weekend when you normally have one at work).  Gave up coffee but will have one if I'm out and about to get a migraine.

Unfortunately they are severe in my life and had to give up some favourite foods like raspberries (diamond) (full of natural preservative sodium benzoate) guaranteed headache.  Still have chocolate (neutral) in small amounts, though I wouldn't eat any during a migraine.  Tamari also can do it (black dot)(MSG).  Tomatoes also contain natural msg and I still love them (Diamond if I don't, avoid if I add my joint problems in).  Was glad that white wine moved above red wine in my SWAMI cos white doesn't give me as bad a headache.  My SWAMIXpress has put most amine high/fermented foods lower in the list like it knew me or something!  

Hard to avoid changes in weather and hormones so bummer I actually take some triptan medication (synthetic serotonin) when they are really severe.  Not sumatriptan which is a sulphur drug, but Zolmitriptan.  The excellent diet has reduced them in duration and severity and knowing what triggers them (maybe different for you) and a steady lifestyle really helps.

I'm not in the medical field but suffer migraines and have done some research, kept a diary to identify my triggers, read some books by neurologists.  Hope this info helps someone.  Pretty good if just having a cuppa can reduce a migraine.  


INFJ ex-Ghee Whiz, GTD Explorer Sept_09 - SWAMI Mar_10

Family - O+ DH and DD (both hunter-ish)
IBS, Fibro, Hashimotos, Adenomyosis, Oral Lichen Planus, Breast Cancer, Terminal case of Optimism
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Ryacob
Tuesday, March 13, 2012, 4:54pm Report to Moderator Report to Moderator
Guest User
Quoted from zenphoenix
rya - as i mentioned in my post above yours, i went undiagnosed for around 20 years. In that time i saw about 20 different doctors and specialists (i lost count somewhere around 1. I've had every diagnosis under the sun... depression, bi-polar, chronic fatigue, SAD, MS, hypoglycemia, glaucoma, vertigo, fibromyalgia (although this one turned out to be true, just not as severe as diagnosed), whiplash, thyroid condition, high blood pressure (which is hilarious, i have very low bp!), anemia (pick one) etc...

Here is how i got my diagnosis...

Suspecting that i had migraines of some sort...

1. i first listed every symptom / ill feeling that i had.

2. talked to all the people i knew who had migraines to understand what their symptoms were. I paid attention to when my friends were getting migraines to see if there was a correlation to me (ie, one friend had a lot of problems with weather induced migraines... the days she was sick, so was i).

3. I tracked my episodes and what may have brought it one (ie the weather, stress, lack of sleep etc)

4. i called all of my family and quizzed them on whether or not they have ever had a migraine... i described the symptoms of auras, etc. Turns out that neither of my parents had a migraine condition, but paternal grandfather had rather severe migraines, as did a great aunt on my birth mother's side.

5. Tried to recount in writing my medical history / dr's visits and diagnosis

6. I took all of this in to the new doctor in my town and talked, showed him everything and asked him what this could possibly be. He took one look at everything i had written down and said... you have migraines, rather severe ones in fact.


I found out that in cases of "silent" migraine, they do use family history as a means of verification, so it is important to question everyone. My grandfather and great aunt's history was enough to show that there was family history.


The best treatment for me... at first, i willingly took the meds because i was so sick i had been unable to work for several months and i needed to get back on my feet so to speak. However, i actively started researching food and supplements, etc. I managed to figure out some of my triggers quite quickly, some took longer. But even then i was still getting more than 8 a month.

After i started following BTD they got somewhat better, but since i switched to SWAMI last august and did a liver cleanse (also august), i have had only 1.

l-arginine is really good for Bs... you need it! it helped me a lot. So did Vitamin D. Find out about your blood pressure... low bp can be a migraine problem, you may need to add sea salt to your diet. And visulization... Bs a re super good at visualizing and it works.


THank you so much!  This is really helpful.  
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pipnjohn
Wednesday, May 9, 2012, 9:55am Report to Moderator Report to Moderator

ENTP/ISTJ/45YRS married
Kyosha Nim
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Age: 74
Quoted from Curious
I sometimes have a weird feeling around my eyes: It feels like I have a wave of diamonds coming from either the right hand side of my head or from the left hand side of my head. It moves in a flickering way into my eyes and even though I still see fairly clearly, I find it distressing. It usually last for 10-20 minutes and I have it about every 6-8 weeks. It only started about a year ago.

I have been trying to find out what it is and someone told me that it could be a migrane without the headache. She said the 'flickering diamonds' are like the aura preceeding a migrane and that I was lucky that I do not get the headaches. Does this make sense and does any of you know this?


I have had this all my life and could never get any satisfaction as to what it was!

I take a teaspoon full of "slippery elm powder" mixed into a 8oz glass of water every morning and never get the aura over the rest of the day!

An alternative practitioner told me that it is caused by leaky gut and is caused by undigested protein getting into the blood and causing problems for the liver and kidneys etc.

I don't reckon it is migraine and believe the the alternative medical practitioner is/was right, it's leaky gut or bowels.

I get it about 5 hours after eating a meal. (unless I take the Elm powder every morning)

Your symptoms are exactly the same as mine, try Slippery Elm, works for me!

I have been using the Slippery Elm (successfully) to prevent this for about 10 years now!

Cheers, John.


 
 Would that God the gift to give us
 to see our selves as others see us.   Robbie Burns  
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Possum
Wednesday, May 9, 2012, 10:05am Report to Moderator Report to Moderator

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Ee Dan
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Quoted from pipnjohn
I don't reckon it is migraine and believe the the alternative medical practitioner is/was right, it's leaky gut or bowels.

I get it about 5 hours after eating a meal. (unless I take the Elm powder every morning)

Your symptoms are exactly the same as mine, try Slippery Elm, works for me!

I have been using the Slippery Elm (successfully) to prevent this for about 10 years now!

Cheers, John.
makes sense since the eyes & the liver are connected

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TJ
Tuesday, May 15, 2012, 2:23am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from pipnjohn
An alternative practitioner told me that it is caused by leaky gut and is caused by undigested protein getting into the blood and causing problems for the liver and kidneys etc.
Right on.  It affects everything else, too, since your immune system identifies those proteins as "not self", and an inflammation reaction starts wherever they go.
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SandrAruba
Friday, May 18, 2012, 3:20pm Report to Moderator Report to Moderator

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Ee Dan
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I've been having migraines attacks since I was ten or so. They would start with shimmering/flashing diamonds, however you want to describe it. That would get bigger and bigger at one point almost blocking my view. Then it would disappear and at the same time the headache would start. When I was younger I would also throw up, and then a couple of hours in bed where it would hurt so much that even my pillow felt like brick.

I found out that if I get a bright flash (sun flashing of a window or something like that) in my eyes it could trigger the migraine. I also found out that as soon as the shimmering starts and I drank something with lots of sugar in it I would not throw up, but I did get the splitting headaches

Last time I had the shimmers I drank a lot of pineapple juice and it just went away, no head ache nothing. Last time I had a migraine attach was 3 years ago.




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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  Migraine without the headache

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