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Multiple Sclerosis*  This thread currently has 6,530 views. Print Print Thread
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Arit
Friday, March 16, 2007, 5:30pm Report to Moderator Report to Moderator
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Hi,
My 72 year old mum has today been diagnosed with multiple sclerosis.  Her major complaints are numbness of the lower limbs, no strength in anklebone and the knee joints.  Lack of stability when walking, frequent urination, fatigue, pains in her coccyx down her thighs and legs.  She is O type but even though I am also an O, there are food I can eat but she can't tolerate.  Also orthodox medication have never been good for her as she her body reacts to even a mild pain killer but herbal supplements work well for her.

What should she take to ameliorate the problem?  Oh she's also slightly overweight.  We live in Nigeria but I can order supplements if I know the ones which will work for her.

Arit

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Lola  -  Tuesday, February 21, 2012, 6:21am
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KimonoKat
Friday, March 16, 2007, 5:50pm Report to Moderator Report to Moderator

38% HUNTER
Kyosha Nim
Posts: 4,670
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Location: Sherman Oaks, California
What is your Mom's secretor status?  Has she been tested?  If she hasn't been tested, imho, this is key to helping her successfully.

What are the foods that she doesn't seem to be able to eat?

Can you give us an outline of some of her typical meals?



Knowledge is power.  SWAMI gives you the diet that will unlock the key to better health, and it's all based on your unique individuality.
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Lola
Friday, March 16, 2007, 6:22pm Report to Moderator Report to Moderator

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Sa Bon Nim
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Age: 57
a lectin free diet will help her heal, eventually.
talk to her about the importance of btd for her issues.

take a look at the health library series to prioritize her food choices.

the book on arthritis might be a good start.

also the online protocols.......as well as the determinator
http://www.dadamo.com/ingrediator/determinator.htm
http://www.dadamo.com/ingrediator/ingrediator.pl?product=NP007&product=BT002O


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Arit
Saturday, March 17, 2007, 2:58pm Report to Moderator Report to Moderator
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Thanks Kimonokat and Lola.  Here are a list of the foods my mum has aversion for : 1.  Bread (Wheat or white), eggs, melon seeds which we use to prepare our indigenous dish, palm nut, sugar, honey, anything sweet, cocoyam, beans (black eye & kidney), peanuts, pineapple, ripe plantain(has no problem with unripe plantain), Yam that is pounded, but eats boiled yam.

No she hasn't been tested so I don't know her secretor status.

Typical meals?  I wish I knew.  I say this because she hardly eats breakfast but when I have some fruit salad(which consists of watermelon, pineapple, oranges, pawpaw), she takes that in small quantity.  For lunch, she takes our locally made ground/fried cassava with Okro soup or any vegetable soup and for dinner she takes rice with vegetables or boiled yam with vegees or unripe plantain cooked together with a local vegetable and fish.  For fish, if its fresh, she likes it fried even if it's mackerel but she prefers any scally fish.  The fish can also be roasted over coal.  Many times she misses lunch and takes only dinner.  I've often told her she has wrong eating habits and she says many times she doesn't feel hungry.  She likes vegetable salad with salad dressing NOT cream and for snacks she nibbles on carrots which she loves.

I hope this will help.  I'll check out the determinator and ingredia sites.  

Thanks once again.

Arit
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KimonoKat
Saturday, March 17, 2007, 3:32pm Report to Moderator Report to Moderator

38% HUNTER
Kyosha Nim
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Location: Sherman Oaks, California
Is she willing to do a secretor test?  Again, this is key with this particular health issue.

Even if she's not willing to eat meats (beef, buffalo, lamb), if she can concentrate on the beneficial fishes for her type she will be a lot better off.

As far as not eating breakfast....does she eat late in the evening?  This could be why she's not hungry in the morning.

The plantains are an avoid I believe for Type O's.  Regular bananas are okay.  No oranges in the fruit salad; avoid.  Try to include blueberries, cherries, elderberries.


Knowledge is power.  SWAMI gives you the diet that will unlock the key to better health, and it's all based on your unique individuality.
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ctconservative
Saturday, March 17, 2007, 3:51pm Report to Moderator Report to Moderator
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Hi arit, sorry to hear about your mum. My dad has ms also, he was diagnosed about 10 yrs ago and he is 53 now. He was in the hospital for 1 month, they didnt know what was wrong with him. Anyway my mother has him eating better, plus he has been taking vitamins, minerals and a grapeseed anioxidant. he has been good on this, but on really HOT days he feel exausted from the ms. About 2 weeks ago he has been really tired, headaches, and dizzy. so he went to the hospital for 3-4 days and they gave him, i think some kind of steroid drip in his arm. Hopefull he will get better. arit keep us posted on your mum. My dad is also o type but he dosnt know his sec. My opinion, ms is from horrible diet(which he had growing up) , and  metals in the body.

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Lola  -  Saturday, March 17, 2007, 3:54pm
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Lola
Saturday, March 17, 2007, 5:12pm Report to Moderator Report to Moderator

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Sa Bon Nim
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Daniel,
can you get your dad to eat right?

53 yo is young!!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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LuHu
Saturday, March 17, 2007, 5:41pm Report to Moderator Report to Moderator

Rh-, dx w/Multiple Sclerosis Spring '04
Autumn: Harvest, success.
Posts: 356
Gender: Female
Location: Southeast USA
Hi Arit and welcome.

I'm happy you found this forum as a resource. I hope your mom will give many of these suggestions a try. I found that I have much relief from many of my symptoms by avoiding the items on my "worst" list for Bs from the LR4YT book. The level of difference with just that degree of compliance is amazing to me, though with the potential for continuing debilitating damage I would certainly advise anyone to be as compliant as possible.

I have to agree, also, that your mom will benefit most by knowing her secretor status. I have a wonderful blood type that does well with a wide variety of foods, but then I tested to be a non-secretor and that changed things significantly. Nevertheless, all the great folks here would encourage you by re-stating "KNOWLEDGE is POWER," to which I would add, knowledge when utilized properly is power.  

I was just chastised by the judge at my disability hearing for choosing to follow a holistic approach exclusively to deal with my MS when I was first diagnosed. Can't even begin to tell you how much that made/makes my blood boil. The arrogance and IGNORANCE of ANYONE who presumes that they have a right to mandate or JUDGE the decisions an individual makes regarding their own life/body is almost incomprehensible to me. I now have to wait perhaps 6 months to see just how arrogant the judge really is as he really does have the authority to use his ignorance and personal bias to deny my ss disability claim. I'm trying very hard to leave those thoughts out of my head, though.

Most of us on the BTD forum do understand that, unfortunately, in the West, most of the population has been duped to believe that you take a pill and abandon all responsibility for the fundamental care of your health/body, like basic nourishment.
OK, gotta  get off this subject line now---it isn't good for one's blood to boil.  

Anyway, your mom is the only one who can live her life with whatever decisions she makes about how she will manage her health. However,  I can offer you this from personal experience. I have had much success with reducing/eliminating symptoms by incorporating the BTD in my overall wellness regime and it didn't take a long time to see the benefit. I can reproduce my symptoms by ignoring the food suggestions as well. Of course I am not free of the effects of the disease, I'm just letting you know that what I eat can affect a measure of the well-being I experience on even a day-to-day basis and I would say absolutely on a long-term one.

My thoughts are with you and your mom and I sincerely hope you will find and implement everything, including the BTD, that is beneficial for you.

My very best wishes to you.


"Some people look out and see a land of giants while others look out and see a land flowing with milk and honey."
(As BTDers, please substitute your most desirable, delightful bennie for the figurative 'milk and honey'!)
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LuHu
Saturday, March 17, 2007, 5:42pm Report to Moderator Report to Moderator

Rh-, dx w/Multiple Sclerosis Spring '04
Autumn: Harvest, success.
Posts: 356
Gender: Female
Location: Southeast USA
Dear ctconservative,

Hi and welcome. Sorry to hear of your dad's illness as well. It appears that a multitude of factors have to 'converge' for MS to manifest. Hope some things you will read here will help you support him as well.

My best to you and to him.  


"Some people look out and see a land of giants while others look out and see a land flowing with milk and honey."
(As BTDers, please substitute your most desirable, delightful bennie for the figurative 'milk and honey'!)
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ctconservative
Saturday, March 17, 2007, 10:50pm Report to Moderator Report to Moderator
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Ty Luhu for your kind words.. Luhu do u have ms? I actually know 3 people that have ms my dad, a friend, that its hard for him to walk, and cant drive at all, and a lady that can only move from her neck up its very sad. she cant talk either.  its pretty scary those 2 people are younger than my dad   and lola my mom has him eating alot better.
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LuHu
Sunday, March 18, 2007, 2:08am Report to Moderator Report to Moderator

Rh-, dx w/Multiple Sclerosis Spring '04
Autumn: Harvest, success.
Posts: 356
Gender: Female
Location: Southeast USA
Hi ctc,

Yes, I do. I am ambulatory with a few 'issues.' Yes, it can be a really, really crummy diagnosis and you're right, it is darned scary. My mother had primary progressive and my sister has what looks to be RRMS as do I. Have you read/learned about the different types and their 'typical' prognoses?


"Some people look out and see a land of giants while others look out and see a land flowing with milk and honey."
(As BTDers, please substitute your most desirable, delightful bennie for the figurative 'milk and honey'!)
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Arit
Monday, March 19, 2007, 11:14am Report to Moderator Report to Moderator
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Thanks everyone for your good advice.  She's willing to do anything to make her fit again.  I'll therefore arrange for her to take the secretor test and while waiting for that, I'm putting her on a strict BTD diet.

A friend of mine recommended three Tianjin Tasly Pharmaceutical products from china which are 1. Danshen tea(composition - Radix Salviae, Miltiorrhizae, Radix Astragall, Radix Notoginseng, Green tea) which is a detox; (2) Red Yeast tabs (contains red yeast rice and corn starch) and Omega -3 fatty acids (contains DHA, DPA, EPA).  She's  taking these and says she no longer feels the pins and needles in her fingers and she can now chew with the right side of her mouth.  Her main problem is from her waist down where the numbness pains, weakness etc is concentrated.  She walks with difficulty.

Over the weekend I searched the net for a solution and found two sites which wrote extensively about MS and proferred solutions.  I received a reply this morning to my enquiry and one of them organichope@organichope.com recommends a product called KALAWALLA.  Has anyone heard of this product and perhaps tried it out? The mail I received says and I quote "Kalawalla works by regulating the immune system.  It regulates the CD4/CD8 levels back to their normal values.  It thus prevents the overacting of the immune system (T cells), preventing the attack of myelin in the central nervous system (CNS).  Once the immune system has been completely regulted, your CNS will begin to regenerate myelin on its own.  By indirectly restoring the myelin back to normal, Kalawalla can reduce, or even eliminate most MS symptoms".  The other site tcmtreatment@tcmtreatment.net has sent me a patient form to fill and return so their "experts can give a correct diagnosis and recommend the best treatment strategy".  With these informations, I'll be able to decide what is treatment is best for my mum.  I know however that the BTD will go a long way in regulating her system.

Arit
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italybound
Monday, March 19, 2007, 11:56am Report to Moderator Report to Moderator

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I think LuHu has some info to share, but I'll let her do that.




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Lola  -  Tuesday, March 20, 2007, 12:22pm
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ISA-MANUELA
Monday, March 19, 2007, 1:03pm Report to Moderator Report to Moderator
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oooo yesss.. I am soo curieuse to hear something from her
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Arit
Monday, March 19, 2007, 2:44pm Report to Moderator Report to Moderator
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Quoted from pkarmeier
I think LuHu has some new info to share, but I'll let her do that.


C'mon LuHu, I'm waiting, waiting, waiting for the info you have  
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Schluggell
Monday, March 19, 2007, 4:26pm Report to Moderator Report to Moderator

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Kalawalla, Calaguala, Anapsos, Rapuani
{supposedly Polypodium leucotomos, also P. aureum - Polypodiaceae}

A northern relative of 'Samambaia', indigenous to Guatemala/Honduras - A cousin to the Licorice Fern.
This "Kalawalla" does seem to have some good reports for nervine ailments. Though never tried it, the Licorice Fern does have its own 'magyckal action' in the body so wouldn't be surprised. Just guessing that it is the "Root" that is consumed not the spores for this effect. These ferns in particular readily hybridize so I believe therein lies the confusion as to its Botanical Name. Ferns are a much underrated and underused substance in the West.
Other Polypodium sp. are known to contain Thiaminase and some, so are not advised for long-term congestion due to robbing body of Vitamin B.
A "leaf extract" has been used in Europe for Sunburns {but here I am guessing that its the spores that are important}.


Herr Schlggell -- Establish a Garden; Cultivate Community. "To see things in the seed, that is genius. He who obtains has little. He who scatters has much. The way to do is to be." -Lao Tzu
Bruno Manser, Ned Lud, August Sabbe, Richard St. Barbe-Baker, Eddie Koiki Mabo, Masanobu Fukuoka
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Arit
Monday, March 19, 2007, 6:31pm Report to Moderator Report to Moderator
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Quoted from Schluggell
Kalawalla, Calaguala, Anapsos, Rapuani
{supposedly Polypodium leucotomos, also P. aureum - Polypodiaceae}

A northern relative of 'Samambaia', indigenous to Guatemala/Honduras - A cousin to the Licorice Fern.
This "Kalawalla" does seem to have some good reports for nervine ailments. Though never tried it, the Licorice Fern does have its own 'magyckal action' in the body so wouldn't be surprised. Just guessing that it is the "Root" that is consumed not the spores for this effect. These ferns in particular readily hybridize so I believe therein lies the confusion as to its Botanical Name. Ferns are a much underrated and underused substance in the West.
Other Polypodium sp. are known to contain Thiaminase and some, so are not advised for long-term congestion due to robbing body of Vitamin B.
A "leaf extract" has been used in Europe for Sunburns {but here I am guessing that its the spores that are important}.



Thanks Schluggell for the information.  It's very important to know the Polypodium sp. robs the body of Vitamin B.  If I have my mum try it, I'll have to add a natural source of B vitamins.

Arit
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LuHu
Monday, March 19, 2007, 10:13pm Report to Moderator Report to Moderator

Rh-, dx w/Multiple Sclerosis Spring '04
Autumn: Harvest, success.
Posts: 356
Gender: Female
Location: Southeast USA
Hi Everyone,

Not enough time to say much right now, but what I mentioned to Italy was how true the correlation between low vitamin D3 levels and immune system problems was for me. (Isa, you sent me info on this also! ) It's been in the news, but it isn't publicized enough imo. I had to request the test myself, even when seeing an MS specialist. My levels were quite low and I have supplemented since w/a lot of Vit D3. (Pure Encapsulations 5,000 IU capsules). When you do that it is advised that you monitor your levels regularly to avoid overdosing.

I first read about this in an article about MS and Vitamin D3 deficiency. Also gives important advice about which test to ask your lab for. http://www.mercola.com/2001/apr/25/vitamin_d.htm

Arit, the lack of naturally produced Vitamin D3 in the southern hemisphere is rare, so I don't know if this info in particular would be as beneficial in your mom's case. Has she ever lived in the northern hemisphere? It is really hard to know what to do when the cause of an illness is not really known. I feel like I grasp at help from a million different sources, too. I have read about Kalawalla also. I would like to know what experiences you have with it. According to their info, one could see 'results' w/in six months. I wonder what their 'results' means.   They did have a generous money back guarantee when I last checked out the info.

Ctc, Arit, does your dad/mom, respectively have any amalgam fillings?  That is one 'risk' factor that I have aplenty.

OK. Gotta run, but I will look for more on this topic, later, of course!  



"Some people look out and see a land of giants while others look out and see a land flowing with milk and honey."
(As BTDers, please substitute your most desirable, delightful bennie for the figurative 'milk and honey'!)
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LuHu
Monday, March 19, 2007, 10:21pm Report to Moderator Report to Moderator

Rh-, dx w/Multiple Sclerosis Spring '04
Autumn: Harvest, success.
Posts: 356
Gender: Female
Location: Southeast USA
Hi Schluggel,

Kalawalla site says they use the extract and the rhizome.

http://www.aragonproducts.com/theproducts.cfm?master=6918

Schluggel, I've got a question totally that doesn't belong in this thread, but since I've got your ear (eye)  . . . What chemical component of squash (in my case, mostly yellow summer squash) could be responsible for making my hands peel. Really, REALLY, peel? It is MORE pronounced when I must cut away a lot of the outer skin due to bruising or gashes and I hold onto the squash without its peeling.

thanks!


"Some people look out and see a land of giants while others look out and see a land flowing with milk and honey."
(As BTDers, please substitute your most desirable, delightful bennie for the figurative 'milk and honey'!)
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italybound
Tuesday, March 20, 2007, 1:43am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from LuHu
What chemical component of squash (in my case, mostly yellow summer squash) could be responsible for making my hands peel. Really, REALLY, peel? It is MORE pronounced when I must cut away a lot of the outer skin due to bruising or gashes and I hold onto the squash without its peeling.


can I take a guess here.......... .............pesticide?




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Lola
Tuesday, March 20, 2007, 1:57am Report to Moderator Report to Moderator

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Arit,
she should avoid the corn starch in the RYR sup.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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ctconservative
Tuesday, March 20, 2007, 2:03am Report to Moderator Report to Moderator
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yes luhu my dad has a few fillings. i new that mercury can be a big problem on our bodies. i wonder if we all did a once or twice a year detox if it would help with the mercury leeching into our systems??
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Don
Tuesday, March 20, 2007, 3:02am Report to Moderator Report to Moderator

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Quoted from ctconservative
i wonder if we all did a once or twice a year detox if it would help with the mercury leeching into our systems??

No, you are underestimating the impact mercury has and how hard it is to remove from the body.



FIFHI; ISTP;
Started BTD 3/2002, with 2 O- secretor teenage sons
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ISA-MANUELA
Tuesday, March 20, 2007, 8:49am Report to Moderator Report to Moderator
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dearest LUHU
how did the *neurorecovery* aminoacids worked for you from Solgar
That was one of my very first recommends in your concernes
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Schluggell
Tuesday, March 20, 2007, 9:14am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from LuHu
...What chemical component of squash (in my case, mostly yellow summer squash) could be responsible for making my hands peel...


A casual Googling reveals that this is actually pretty common.
Though I have yet to meet anyone even casually allergic to any Cucurbitaceae sp.
Unfortunatelt the documents I've seen so far are on medical websites that I amnot a member, thus can't access the full article.

Summing up: Mentioned in the headings is a reaction to 'Pumpkin Seed' - HOWEVER the article summaries only seem to mention the reaction due to the Squash Pulp as you mention.

Also of interest is that this is related to a cross-reactivity to many other fruits. Cucurbitaceae sp. Cross-Pollinate {Self-Hybridize} readily, and the majority of commercial food crops and Nursey trade plants are hybrids which produce sterile pollens and thus increase the potential for allergic reactions.


As to MS I've had several members of the family come down with this and in the long-term it is not pretty. Curiously both were in Naval Submarines for years...And they loved Peanut Butter.


Herr Schlggell -- Establish a Garden; Cultivate Community. "To see things in the seed, that is genius. He who obtains has little. He who scatters has much. The way to do is to be." -Lao Tzu
Bruno Manser, Ned Lud, August Sabbe, Richard St. Barbe-Baker, Eddie Koiki Mabo, Masanobu Fukuoka

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