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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  GoldenHar's Syndrome
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GoldenHar's Syndrome  This thread currently has 505 views. Print Print Thread
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zola
Friday, September 22, 2006, 7:56pm Report to Moderator Report to Moderator

GT4 - Explorer
Autumn: Harvest, success.
Posts: 487
Location: WA, USA
Age: 41
Have any of you know anyone with this syndrome. I'd be interested in learning more about some real life experiences. Thanks!


It is so pleasant to explore nature & oneself at the same time, doing violence neither to her nor to one's own spirit, but bringing both into balance in gentle, mutual interaction.

Johann Wolfgang Von Goethe
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Lola
Friday, September 22, 2006, 10:04pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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Posts: 50,663
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 57
can you tell us more on this syndrome?
can t seem to find anything......


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Vicki
Friday, September 22, 2006, 11:13pm Report to Moderator Report to Moderator

Using Custom SWAMI Food List
Sun Beh Nim
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Zola,

Here is a personal account posted to a web page:  http://home.att.net/~jnozum/Goldenh.htm
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Lola
Saturday, September 23, 2006, 12:44am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
Posts: 50,663
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 57
thanks Vicki!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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resting
Saturday, September 23, 2006, 12:05pm Report to Moderator Report to Moderator

probable non-sec
Sam Dan
Posts: 1,797
Gender: Male
Location: Timmins, Ontario, Canada
Age: 67
Hi zola,

wondered about how effective the therapy at http://www.drdeanhowell.com + http://www.allergies-asthma-sinus-relief.org/products/serralone.php might be ?????????

John


“The object of life is not to be on the side of the majority but to escape finding oneself in the ranks of the insane.” – Marcus Aurelius

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ISA-MANUELA
Saturday, September 23, 2006, 1:32pm Report to Moderator Report to Moderator
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heavy stuff
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girly
Saturday, September 23, 2006, 5:48pm Report to Moderator Report to Moderator

Rh +...other stuff to come
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Makes my problems seem so trivial. What a journey this fellow has had. Lord bless his life and make him feel important and wanted.





Mom to 4 B's...living with extreme food allergies to wheat, all dairy, eggs and pineapple !! ( Me, not the kids..)
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zola
Sunday, September 24, 2006, 10:10pm Report to Moderator Report to Moderator

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Autumn: Harvest, success.
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Location: WA, USA
Age: 41
I read this account. Very moving. The fellow that I know with this is 3 yrs old and on an upswing. He has had jaw surgery and is going through speech therapy. I'm happy to report his energy levels are excellent and he is very wiley and full of life. He has to drink meal replacements which would be a major drag for me. He makes a good amount of mucus - which I can relate to as an A. Thanks for your input on this John. The article mentioned that there have only been 200 cases of this since 1967. What I understand it to be is a congenital (born with) defect of no or partial lower jaw bone (mandible). This makes breathing problematic and tracheostomies common.


It is so pleasant to explore nature & oneself at the same time, doing violence neither to her nor to one's own spirit, but bringing both into balance in gentle, mutual interaction.

Johann Wolfgang Von Goethe
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