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 zola |
| Friday, September 22, 2006, 7:56pm |
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 GT4 - Explorer Autumn: Harvest, success.  Posts: 487
Location: WA, USA
Age: 40
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Have any of you know anyone with this syndrome. I'd be interested in learning more about some real life experiences. Thanks! |
| It is so pleasant to explore nature & oneself at the same time, doing violence neither to her nor to one's own spirit, but bringing both into balance in gentle, mutual interaction.
Johann Wolfgang Von Goethe |
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| Lola |
| Friday, September 22, 2006, 10:04pm |
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 GT1; L (a-b-); (se); PROP-T; NN Sa Bon NimAdmin & Columnist  Posts: 49,367
Gender:  Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 56
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can you tell us more on this syndrome?
can t seem to find anything...... |
| ''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you! |
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| Vicki |
| Friday, September 22, 2006, 11:13pm |
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Using Custom SWAMI Food List Sun Beh NimModerator  Posts: 3,852
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| Lola |
| Saturday, September 23, 2006, 12:44am |
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GT1; L (a-b-); (se); PROP-T; NN Sa Bon NimAdmin & Columnist Posts: 49,367
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 56
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thanks Vicki! |
| ''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you! |
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| resting |
| Saturday, September 23, 2006, 12:05pm |
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 probable non-sec Sam Dan Posts: 1,797
Gender:  Male
Location: Timmins, Ontario, Canada
Age: 66
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| ISA-MANUELA |
| Saturday, September 23, 2006, 1:32pm |
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Guest User |
 heavy stuff  |
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| girly |
| Saturday, September 23, 2006, 5:48pm |
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 Rh +...other stuff to come Autumn: Harvest, success. Posts: 152
Gender: Female
Location: Canada
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Makes my problems seem so trivial. What a journey this fellow has had. Lord bless his life and make him feel important and wanted. |
|  Mom to 4 B's...living with extreme food allergies to wheat, all dairy, eggs and pineapple !! ( Me, not the kids..) |
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| zola |
| Sunday, September 24, 2006, 10:10pm |
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GT4 - Explorer Autumn: Harvest, success. Posts: 487
Location: WA, USA
Age: 40
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I read this account. Very moving. The fellow that I know with this is 3 yrs old and on an upswing. He has had jaw surgery and is going through speech therapy. I'm happy to report his energy levels are excellent and he is very wiley and full of life. He has to drink meal replacements which would be a major drag for me. He makes a good amount of mucus - which I can relate to as an A. Thanks for your input on this John. The article mentioned that there have only been 200 cases of this since 1967. What I understand it to be is a congenital (born with) defect of no or partial lower jaw bone (mandible). This makes breathing problematic and tracheostomies common. |
| It is so pleasant to explore nature & oneself at the same time, doing violence neither to her nor to one's own spirit, but bringing both into balance in gentle, mutual interaction.
Johann Wolfgang Von Goethe |
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