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At Home Celiac Test  This thread currently has 510 views. Print Print Thread
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italybound
Sunday, May 28, 2006, 3:24am Report to Moderator Report to Moderator

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http://www.celiac.com/st_prod.html?p_prodid=1328

Has anyone ever used this?  
I'm interested on the opinions of others re: this test.
I truly believe my granddaughter has celiac but my daughter is not convinced. Pricking her finger as opposed to having to draw blood from her arm may make it easier. HOWEVER if this test is not reliable and it comes up negative, I'm afraid that will be the end of it until it can no longer be ignored. I don't want that for her.  I am however getting desperate to get her diagnosed one way or the other. She has 5 or 6 symptoms.



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rosieb
Tuesday, May 30, 2006, 5:42am Report to Moderator Report to Moderator

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i just got my son tested at the naturopath (ill email all the details tina)
anyway, she used the muscle test (kinesiology) and got him to hold all different types of food and she tested his resistance to each. he came up for wheat,oats but not rye so he should be ok with gluten.(you shouldve seen his reaction to dairy, it was definately bad. )
anyway this test wouldnt be 100% but a definate start.
naturopaths and homeopaths are so clever!
rosie


A neg nonny. BTDer for 5 years. i love it
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food4health
Thursday, June 22, 2006, 3:45pm Report to Moderator Report to Moderator
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Ok, there has been a lot going on here!  But, to get to the reason for this post...
My doctor now thinks I could have Celiac  Disease due to a recent run in with jolly old fashioned oats!  I have been militant about my wheat, gluten, dairy part of my diet.  Not so militant with my nightshades, vinegar, corn and soy, but very little of them (way down on ingredient lists) maybe 3x week.  
Well, I had 1/4 cup of this oatmeal with my daughter and within the hour I was haveing incredible pain, the runs and incredible nausea.  I fasted with my ImFlamex for 36hours and then had a bit to eat.  I felt it moving through my very sore intestines for hours.  So, fasting again today.  Doc is sending me to have some blood work.  He is not into me going back on Gluten in order to have a clear diagnosis, good, because I wouldn't do that to my family!  Or myself for that matter!
Anyone else have this come about or living with?  From what I have read it is truly impossible to be Gluten Free (Zero Tolerance) unless you are eating only fruits and veggies{(

Any Advice and/or humour will be gladly received!

Thanks in advance,  
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Melissa_J
Thursday, June 22, 2006, 7:59pm Report to Moderator Report to Moderator

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Sounds about the same as how my dx went about.  Don't be surprised if your blood results are negative or only weak positives.  Then comes the decision about whether you want a biopsy...it could probably be negative too.  I didn't get one, but I've read that it's still good to get it done as a baseline level, in case other digestive problems come up later.

A-non and celiac diets are pretty compatible and as easy to combine as any.  I aim for zero gluten, but the O-non diet pretty much is just meat and vegetables, so by avoiding corn and processed foods, zero-gluten goes right along there.  


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Maria Giovanna
Thursday, June 22, 2006, 8:03pm Report to Moderator Report to Moderator

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Hi Trish,
I was a hidden celiac till 40 years old. I had not these big problems beside great colds and osteoporosis bone loss, but not with broken bones or back or hip pains, and I am healing all, too slowly for the bones. This diet has learned me to understand that I can feel so strong and healthy and the most, most compliant I am.  Rice amaranth quinoa millet ( as buckwheat) are glutenfree as meat and fish without breading. Also in  Italy you can do without common wheat bread , pizza and noodles! It is a little hard just dining out.

Best wishes
Maria Giovanna


INTJ Italy celiac��
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food4health
Friday, June 23, 2006, 12:42am Report to Moderator Report to Moderator
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Quoted from Maria_Giovanna
Hi Trish,
I was a hidden celiac till 40 years old. I had not these big problems beside great colds and osteoporosis bone loss, but not with broken bones or back or hip pains, and I am healing all, too slowly for the bones. This diet has learned me to understand that I can feel so strong and healthy and the most, most compliant I am. Rice amaranth quinoa millet ( as buckwheat) are glutenfree as meat and fish without breading. Also in Italy you can do without common wheat bread , pizza and noodles! It is a little hard just dining out.

Best wishes
Maria Giovanna


Well, Maria we have something in common, I just turned 40 and this is finally coming out after years of futile non-diagnosis of a laundry list of pain.  I was fed up, in despair, with two young ones that I longed to be strong for, a husband who was desperate to fix me and no where to turn, when I found this nutritionist who is a BTD'er and that is how she runs her practice!  I went militant for 3 months and felt so much better I couldn't believe it!  Then I had a run in with a heavenly brownie;), struggled back from that, then I had over two weeks of hidden wheat in a rice cereal that over time caused a bad spell, that just ran into this one.  Oatmeal was the culprit and after 3 days I am still feeling really bad!  I pray this passes as I stay, once again, militant to my A nonnie, paleo diet!

Hope you will have continued success!
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angel
Friday, June 23, 2006, 6:38am Report to Moderator Report to Moderator

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I have celiac, not offically dx until 4 yrs after intro to celiac, the BTD came first just for fun experimentation. I have had biopsies on my upper bowel (EGD) and a colonoscopy. they came out normal but the doctor said avoid those items and stick to a GF diet. It is hard, but it can be done with vigilance and persistance.  Stay with it . your health is worth it.


'And some of us would die-so other men can stand up on their feet like men. A great many are going to die for that. They have in the past. They will a hundred years from now-two hundred. God grant there will always be men good enough.(James Otis)' Johnny Tremain (Forbes)

Freedom is not free!
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Victoria
Tuesday, June 27, 2006, 6:26pm Report to Moderator Report to Moderator

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Quoted from food4health

From what I have read it is truly impossible to be Gluten Free (Zero Tolerance) unless you are eating only fruits and veggies{(


This is probably true if you are eating out or buying prepared foods.  But if you buy whole foods and prepare them yourself, you can totally be gluten free.  Don't worry.  You will feel so much better, and this is actually an added incentive for you to eat carefully.  It will all turn out fine, because as you eat for your blood type AND gluten free, you will heal and experience a much higher level of well being.  



Normal day, let me be aware of the treasure you are.
Let me not pass you by in quest
of some rare and perfect tomorrow.
~Mary Jean Irion
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junevarn
Monday, September 11, 2006, 2:25am Report to Moderator Report to Moderator
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Hi there,

I was tested through http://www.enterolab.com.  It is a stool test, no sticking of needles.

Hope this helps,
June
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italybound
Monday, September 11, 2006, 2:37am Report to Moderator Report to Moderator

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Quoted from junevarn
Hi there,I was tested through http://www.enterolab.com.  It is a stool test, no sticking of needles.Hope this helps,June


thanks for the reply. I have heard about this and thought about doing it as well. Were you diagnosed as celiac? I will look into this. I need to know this is a very accurate test b4 I spend the money.
I will have to do it when I have my g'daughter. Don't want my daughter to know. It's a shame it has to be done that way. One would think w/ 5 or 6 symptoms staring her in the face, she'd get her tested. It's just that the suggestion is coming from me (no med experience) and her dr says the g'daughter doesn't have it or the symptoms. All from just looking at her. Boy is that dr good.   She sees her a handful of times a year and I see her every week. I'm bettin' I'm gonna spot the symptoms more than the dr.    Not to mention Alexis is my priority, to the dr, she's just a number. As in $$$$.  



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junevarn
Monday, September 18, 2006, 4:00am Report to Moderator Report to Moderator
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Hi Italybound,


I had an intestinal biopsy but I was off gluten for at least 6 months at that time. A biopsy only takes one part of the intestine and not the whole thing, so I don't count on that. I just know how I feel now that I am off gluten. I also highly suspect that I'm a nonnie due to all my health problems. Nonnies have low IgA and IgG antibodies.

I also have one of the genes for celiac disease. So my doc at Kaiser doesn't think I'm celiac, but my alternative MD and chiropractor say that the stool test and the fact that I feel so much better after being off gluten says that I am gluten intolerant. I go by that. I also have an enlarged thyroid and anti-thyroid antibodies.(autoimmune).

The research shows that a lot more people are gluten intolerant than they previously thought. I believe that DR. Fine's test is the more accurate test although a lot of MD's haven't heard of the latest research.

Hope this helps,
June

P.S. I loved Italy, I was there twice.JV
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angel
Wednesday, November 8, 2006, 4:29pm Report to Moderator Report to Moderator

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I went back to my old internist in West Jordan. I haven't seen him in two years. He is very kind Doctor that speaks frankly, but not demeaning. I was able to discuss some problems I have been having. I am redoing all of my blood work a metabolic panel, CBC, TSH, IGA, tissue tranglutimase. the last two will show indicators or immune system function or reaction in the past.

I am frustrated because the doctor locally will not do testing unless he has a history of me seeing him for these complaints and will not take records from the internist I was seeing two years ago. That is why I went back to the old one. But ow he wants to repeat blood testing to check my status and there is a possibility that I will have to do the gluten challenge for three months at the least. I left the appoint ment in shock. I got into my car and called my husband. I told him I may not be easy to live with over the next few months and explained what I may have to do. I was in tears. My husband a being a truly supportive person said ' I know it won;t be
easy, but we'll get thorugh it (the gluten challenge) together '. We discussed it he said give the doctor 6 months to figure it out and get a diagnosis. Then we will get a good ND locally and plan a trip to Conn. to see Dr D.  

I the meantime, I need to see an allergist and have food allegy testing done. I have quit taking all my supplements; Both because of the possible challenge and financially I can not afford to buy them anymore.

I am truly scared to do the challenge and the damage it will inflict on my system. Is there another way to this? Any suggestions.


'And some of us would die-so other men can stand up on their feet like men. A great many are going to die for that. They have in the past. They will a hundred years from now-two hundred. God grant there will always be men good enough.(James Otis)' Johnny Tremain (Forbes)

Freedom is not free!
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Vicki
Wednesday, November 8, 2006, 4:55pm Report to Moderator Report to Moderator

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I would not do a gluten challenge.  The simple thing to do is avoid gluten.  Food allergy testing is very unreliable.  If you really want to spend money on a gluten test, this lab is recommended by Melissa, who is celiac, and others:  http://www.enterolab.com

A food diary is one of the best ways to find food sensitivities.  Focusing on healing foods is often the key to recovery, rather than focusing on avoids.  
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Lola
Wednesday, November 8, 2006, 5:17pm Report to Moderator Report to Moderator

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yes, I agree!
do the elimination diet........a food log or diary is a great idea!

why do more damage to your system, just so the Drs can see results?

do what feels right for you, following BTD guidelines.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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The harder you are on yourself, the easier life will be on you!
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Melissa_J
Wednesday, November 8, 2006, 6:04pm Report to Moderator Report to Moderator

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There's still no guarantee you'd get an accurate result on the test, even after 3 months of eating gluten.  My gastro wanted me to do a challenge, and I just said the price is too great, the stakes are too high, I KNOW it will make me sick and then some.  So he said, "ok, we can just assume you have it and treat you as celiac"

It was easy, of course I potentially have some severe side effects of gluten these days, so it was easy to say no.  One day I expect to slip up again accidentally and get a skin biopsy for dermatitis herpetiformis...then the doctors will have their results.  I didn't get into the right dermatologist in time to get a biopsy, but he was pretty sure I had it, even willing to prescribe dapsone if I'd been willing to take it.  I'm not going to do it on purpose, but my skin is very sensitive to trace gluten, so it will probably happen.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Elizabeth
Wednesday, November 8, 2006, 10:00pm Report to Moderator Report to Moderator

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If you are an O, you lose NOTHING by going gluten free, and are likely to gain a lot!  I am very close to it--certainly no wheat, and only spelt or rye a little, and trying to do it less often.  When I do manage a week or two grain free, I feel much better and lose a little weight without trying.  I do not have a terrible reaction to gluten, but what I have to grain makes me use less and less.  Good luck!
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angel
Thursday, November 9, 2006, 6:41pm Report to Moderator Report to Moderator

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**I forgot to mention that MY Internist told me that Just a little gluten who not hurt in minute amounts, i.e., crumbs etc. I did challenge him and ask So a little arsenic everyday won't kill you poison is poison anyway you cut it. that is my rant for the day

I have to tell you the more I go through, the more I want to buy that plane ticket to Dr. D. I know the diet works and the supplement s are valid. I think he has done more vigorous testing that the FDA does on the latest and greatest super drug. That's another blog totally.

I went in to see the allegist and had no visible reactions to the foods tested the top ten plus nightshades in a skin test. the next step is finding a GI. Who work with me.

The reason behind doing this is getting the VA to grant me a a small stipend to help offset the cost of supplements that work versus getting free(taxpayer paid) meds from the VA that just suppress the reaction and coverup the problem. Plus to be honest I am sick of taking meds that supress the immune system and never really finding the underlying cause.

I appreciate all of the responses. Melissa which doctor did you see and where in SLC is he. I'll Drive if I need to to see a doctor.



'And some of us would die-so other men can stand up on their feet like men. A great many are going to die for that. They have in the past. They will a hundred years from now-two hundred. God grant there will always be men good enough.(James Otis)' Johnny Tremain (Forbes)

Freedom is not free!
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Melissa_J
Thursday, November 9, 2006, 9:12pm Report to Moderator Report to Moderator

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He's down in Provo, actually, Dr. Bodily, but I think I have a reference to one in SLC as well, I just need to find it...my dermatologist (Woseth) recommended one highly, but he wasn't on my insurance plan.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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ABJoe
Thursday, November 9, 2006, 9:12pm Report to Moderator Report to Moderator

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Quoted from angel
I went in to see the allegist and had no visible reactions to the foods tested the top ten plus nightshades in a skin test.


As someone else stated, the standard allergy testing is not accurate and a doctor told me that you can take the shots for a year and they MAY help.

I went to the doctor that developed the NAET technique.  She used an energy based test that proved to be very accurate.  The treatment technique eliminated allergies - you are no longer allergic to the items you have treated and passed.  I did become allergic to some items again and determined that these were items that BTD said I shouldn't eat...

Read more about NAET or find a practitioner at http://www.naet.com


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Melissa_J
Thursday, November 9, 2006, 9:16pm Report to Moderator Report to Moderator

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Quoted from angel
**I forgot to mention that MY Internist told me that Just a little gluten who not hurt in minute amounts, i.e., crumbs etc. I did challenge him and ask So a little arsenic everyday won't kill you poison is poison anyway you cut it. that is my rant for the day


I heard something similar from a pediatric GI I heard speak once, and that's the thinking that got me into trouble.  She said that people used to not be so fanatical about avoiding gluten and cross contamination, but their villi still healed.  That may be true for children who are diagnosed young, but for those diagnosed later in life, it's really too much of a risk (there's more involved than just villi anyway, plenty of people are made sick by gluten with no damage to their villi - as in some cases of dermatitis herpetiformis and gluten ataxia).  When there are serious complications, compliance needs to also be serious.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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ABJoe
Thursday, November 9, 2006, 9:33pm Report to Moderator Report to Moderator

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Quoted from angel
I have multiple chemical allergies

NAET can fix those, also.  I had allergies to formaldehyde, perfumes, plastics, rubbers, paints, oil products, alcohol, etc.....  I still avoid excessive contact with all of these items, but they don't pput me in bed like they used to.  


RH-, ISTJ
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Melissa_J
Friday, November 10, 2006, 5:22am Report to Moderator Report to Moderator

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An interesting link to celiac disease, with the chemical allergies... according to the articles on zonulin research, the hormone zonulin weakens the barriers/defenses in the intestines, the lungs, and the blood-brain barrier.  From that info, I'd suppose that many celiacs are sensitive in all three areas.  (my lungs are ok, but I do have to avoid breathing in any type of chemical when possible, and the blood-brain barrier seems to be lacking a bit too)


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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slyparrot
Monday, November 20, 2006, 12:07am Report to Moderator Report to Moderator

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Screw doctors!  OK, I don't mean to sound too hasty, but I seem to be better off without them.  Here is what a gluten-free diet has done for me.

Bumps on my upper arms are gone.
Acne Rosea is 97% gone, left small permanent vein damage on nose.
Itchy painful bumps on scalp are gone.
Geographic tongue is gone.
Overall itchy skin and waxy skin layer is gone.
Mood is stable. No more ups and downs or moodswings. I feel like someone has injected me with a happy drug!

I never had a biopsy done nor do I care to do so.  If I know this is what my body wants than so be it.  Like someone mentioned above, why put yourself thru *poison* just so someone can document it and pump your system full of drugs.  Yep, screw doctors and the entire medical system (except Dr. D!)  I have learned more from this website than I can express and thank each and every single one of you!!!!!!!!!!!!!


Type O+, Non-Secretor, Explorer, Super-Taster, Virgo, ESTP and Libertarian
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angel
Thursday, November 23, 2006, 3:38am Report to Moderator Report to Moderator

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Well here is the latest acording to all testing I am now normal and healthy and can anything I want.
Problem is the corn gives me headaches and makes me nauseaous. Wheat makes my tummy hurt even in minute amounts (wheat starch). Spelt seems tolerable, as long as it is on an imfrequent basis. But for the most part I am sticking to BTD guidlines anyway. I just mjay add the occasional Spelt something or other.


'And some of us would die-so other men can stand up on their feet like men. A great many are going to die for that. They have in the past. They will a hundred years from now-two hundred. God grant there will always be men good enough.(James Otis)' Johnny Tremain (Forbes)

Freedom is not free!
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italybound
Thursday, November 23, 2006, 2:26pm Report to Moderator Report to Moderator

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Quoted from angel
Well here is the latest acording to all testing I am now normal and healthy and can anything I want.


Problem w/ these tests, is there are, once again, a one size fits all tests. All the things that Dr. D tests for re: the reaction in our blood, are not taken into consideration. Thus, IMHO, I would take those test results w/ a grain of  salt and do what the below is telling you.

Quoted from angel
Problem is the corn gives me headaches and makes me nauseaous. Wheat makes my tummy hurt even in minute amounts (wheat starch). Spelt seems tolerable, as long as it is on an imfrequent basis. But for the most part I am sticking to BTD guidlines anyway. I just mjay add the occasional Spelt something or other.


Yep, you're doing what your body is telling you to do and not the 'one size fits all' medical doctors. Good for you!!!  You will heal faster and feel much better doing so. Keep it up! You'll never be sorry.  



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