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BTD Forums    Diet and Nutrition    The Encyclopedia/ D'Adamo Library  ›  fucus/thyroid
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fucus/thyroid  This thread currently has 8,111 views. Print Print Thread
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Lola
Friday, August 5, 2005, 12:33am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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lynn,
use secretor tier I beneficials, also! )


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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lynn9965
Saturday, August 6, 2005, 3:51pm Report to Moderator Report to Moderator
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Thanks for the infomation, I guess I didn't fully understand the Tier plans. I overlooked the word add. Knowing this information will give me more foods to chose.

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lynn9965  -  Saturday, August 6, 2005, 4:09pm
lynn9965  -  Saturday, August 6, 2005, 4:09pm
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Jane
Monday, August 8, 2005, 1:17pm Report to Moderator Report to Moderator

Kyosha Nim
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lynn,
Hyperparathyroidism is usually caused by a benign tumor of the parathyroid.  I had one in 1996 and had it removed.  I'm certainly not an expert but the danger is that when you have too much calcium in your blood it's because the tumor is causing it to leach out of the bones.  The surgery when I had it 9 1/2 years ago involved an overnight hospitalization. Removing one (people generally have 4 sometimes more parathyroids) is what is generally done.  One of the symptoms is extreme fatigue.  Afterwards, you have to take calcium with vitamin D and you can have symptoms associated with too little calcium (it's almost like you are electric - hard to explain).  My surgery was complicated by the fact that my thyroid was removed at the same time.  
Afterwards when the symptoms are regulated you should feel a whole lot more energized!
Good luck and if your surgeon tells you that you really need to have it out, you probably should.  Never hurts to get a second opinion though!
Jane
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lynn9965
Tuesday, August 9, 2005, 11:29pm Report to Moderator Report to Moderator
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I will have a sonogram of my parathyroid/thyroid tomorrow; then on Tuesday of next week I will go to my doctor's office for a follow-up visit. More blood work will be done since I have been off the calcium supplements for a week; a surgeon suppose to come to talk with me on Tuesday also. I was aware of the tumor; I read a lot of information on the Internet. I will get a second opinion if I have to have the surgery
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Jane
Thursday, August 11, 2005, 3:13pm Report to Moderator Report to Moderator

Kyosha Nim
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lynn,
Good luck!  Let us know how things turn out.   You may find afterwards that it takes a while to stabilize the calcium.  It did for me.  The first few days, weeks (it's been a while so I don't remember everything) I literally had to chew TUMS nonstop.  I had to go for bloodtests frequently to check the calcium levels.  Even 9 1/2 years later, I'm extremely careful to take calcium with D everyday.  I take Cal-Mag- Zinc about 1500mg/day now.

Are you having this done at a major medical center by a surgeon that has done 100s of these?   Don't have it done by someone that does 1 or 2 a year!
Jane
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NewHampshireGirl
Thursday, August 11, 2005, 8:12pm Report to Moderator Report to Moderator

Nomad
Kyosha Nim
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Good advice, Jane, because I understand parathyroids are not always easy to find and you would definitely want a skilled surgeon.
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Jane
Thursday, August 11, 2005, 8:24pm Report to Moderator Report to Moderator

Kyosha Nim
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That's my understanding too.  People usually have 4 but sometimes there are a lot more and still hard to find.  When I had my surgery, the HMO wanted me to have it at a community hospital but I stood my ground and had it at a major medical center by a woman surgeon who did them all the time.  

I finally have received what they are still calling preliminary results on my surgery last month.  I had a granuloma attached to some scar tissue from the original surgery which was attached to my windpipe.  So far (3+ weeks) the cultures on the granuloma are still negative (yay!).  I'm glad that I had it done at Mass General.  It was relatively painless and the recovery was very easy since I had it done with a local.
Jane
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NewHampshireGirl
Thursday, August 11, 2005, 9:09pm Report to Moderator Report to Moderator

Nomad
Kyosha Nim
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As an aside, I'm remembering that last year after my thyroid was removed and I had returned for a followup visit with my surgeon he happened to say that two of my parathyroids are gone, now, because he couldn't separate them out from my thyroid.  I gasped and said, Oh my gosh, do I have enough of them because that means I have only two left!!   He laughed and told me not to worry because one was actually enough.  Well, that made me laugh, too, because I had been so dramatic about it.  

So, that's my bit of humor for today  

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lynn9965
Friday, August 12, 2005, 12:40am Report to Moderator Report to Moderator
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Thanks for the information/advise. I will talk to a surgeon on Tuesday, whoever does my surgery will have to be an expert (a surgeon who does 100's of this type of surgeries). I was reading on the internet about Minimal Parathyroid Surgery (The Minimally Invasive Technique Utilizing Intraoperative Nuclear Mapping is the way to go instead of the general surgery).  http://www.endocrineweb.com/minimalpara.html
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Jane
Friday, August 12, 2005, 2:05pm Report to Moderator Report to Moderator

Kyosha Nim
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I remember seeing something on that somewhere as well.  The issue usually is that the parathyroids are sometimes difficult to locate and are behind the thyroid.  Good luck and keep up updated!  

Where are you located?
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lynn9965
Friday, August 12, 2005, 11:10pm Report to Moderator Report to Moderator
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I live in Maryland
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Jane
Monday, August 22, 2005, 7:49pm Report to Moderator Report to Moderator

Kyosha Nim
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lynn9965,
How are you?  I've been thinking about you!
Is your surgery scheduled?  
Jane
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lynn9965
Saturday, August 27, 2005, 5:14pm Report to Moderator Report to Moderator
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I'm doing okay. I feel tired a lot/backaches/headaches/nauseous, but today I am feeling better than I have felt in weeks (I drank some chamomile tea last night, I've been taking cayenne pepper and kelp for about a week). I had a Sestamibi scan done on Wednesday to locate which parathyroid is hyperactive. My doctor should receive the results next week.

I am planning on having the surgery at UVA in Charlottesville, VA. I'm scheduled to have a consultation with the surgeon on 7 September. My doctor recommended a doctor at Washington Hospital Center in DC. I called her office, but she will not be available to see me until October 6 for a consultation. My calcium level is 13.5. So I don't think I should wait too long.

Revision History (4 edits)
lynn9965  -  Saturday, August 27, 2005, 5:18pm
lynn9965  -  Saturday, August 27, 2005, 5:18pm
lynn9965  -  Saturday, August 27, 2005, 5:17pm
lynn9965  -  Saturday, August 27, 2005, 5:16pm
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Jane
Wednesday, August 31, 2005, 5:20pm Report to Moderator Report to Moderator

Kyosha Nim
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I know you'll be glad to have the whole thing over and done with.  Charlottesville, I hear that is a beautiful place and I know that UVA has a good reputation.  I wish you the best.
I'm doing fine.  The surgeon cut over the previous scar but it really doesn't look that bad.  The first time around I had what looked like a pouch for a few months.  I wore a lot of scarves.  This time around I didn't need to do anything.
I'm very interested in hearing how things go.  If you ever want to talk, PM me and I'll get my number to you.
Jane
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lisajones2275
Wednesday, August 31, 2005, 10:12pm Report to Moderator Report to Moderator
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Quoted from pkarmeier

Cheryl, good info on the fucus. I am wondering, however, how one would know if the thyroid is really gone or if you just have poor function? Does the TSH  test answer this question?


I don't feel like lab test are very accurate.  My mom had the papilary cancer and her labs had always been normal.  
My test were normal as well but i had my thyroid out in June.  I followed my thyroid by getting regular sonos and an uptake+scan.  It really helped me to follow it more closely with visuals and measurments.  I also don't think that every synthetic thing is bad.  some meds are good and people should think that there are also natural things that are bad too.  some times i think that some people go over the edge with the whole "natual" thing.  Some of both is good.
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NewHampshireGirl
Saturday, September 10, 2005, 8:29pm Report to Moderator Report to Moderator

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Kyosha Nim
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Lynn9965 how was your consultation?  Have you decided to have this done in Charlottesville or D.C.?

Thinking about you!  
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lynn9965
Monday, September 12, 2005, 6:13pm Report to Moderator Report to Moderator
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I had the consultation last Wednesday at UVA. The doctor confirmed what I saw on my Sestamibi scan; that I have a tumor on one of my right parathyroid glands. I am still planning on seeing the surgeon at Washington Hospital Center for a second opinion in October. I am scheduled for surgery at UVA on 16 November, he is so booked up for surgeries. When I talked to the surgeon at UVA he told me that he knows both doctors at WHC and in Florida. He told me both are highly skilled surgeons and they are an expert in their field. If the doctor at WHC can do my surgery before 16 November I will probably let her do the surgery. but I haven't made up my mind, my parents want me to have the surgery at UVA.

I have faith in God that He will either remove the tumor or He will help me to decide which of the two surgeons (UVA or WHC) I should allow to do the surgery.

Thank you for your concern and I hope that you are doing well!
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Jane
Monday, September 12, 2005, 7:32pm Report to Moderator Report to Moderator

Kyosha Nim
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Thanks for keeping us in the loop.  I wish you the very best.
Jane
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NewHampshireGirl
Friday, September 16, 2005, 10:46pm Report to Moderator Report to Moderator

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Kyosha Nim
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Lynn 9965, thank you for keeping us up to date.   We shall pray for excellent results.  
New Hampshire Girl  
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tishtish
Friday, September 30, 2005, 12:59pm Report to Moderator Report to Moderator
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I had my thyroid removed 33 years ago. Unfortunately the doctor who removed it did so without justification.  I know this because I made copies of my medical records due to all of my medical problems.  I took those records to another doctor years later, and his first question was, why did they remove your thyroid?  He advised me that it could have been taken care of just through meds, and probably been corrected.  If at all possible, I would not advise anyone to have theirs removed.  I was not put on syntheroid until a few years later, so now after reading the comments here, I'm wondering if maybe it wasn't all taken, because I hate the thought of having to take meds forever.  Once you've lost it, it's what you have to live with. I've tried taking fucus, but am not able to continue.  It make me feel too hyped(jumpy).  I've been in and out of the BTD for a few years now, and when I can stick to it, I can tell the difference in a major way. Bad habits are so hard to break...Test shows my TSH is normal, but would like a more natural way to address this.      
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Lola
Friday, September 30, 2005, 4:51pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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sorry you had to go through this.......
but so glad you found BTD! )


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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trish44
Monday, October 3, 2005, 11:54am Report to Moderator Report to Moderator

Hunter
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I see these posts are getting old, but just now had time to browse.  I had a partial thyroidectomy in 1987, and spent over 15 years on Synthroid and a few more years on Armour.  Then in 2003 was diagnosed with Hodgkins, spent six months on chemo.  Early this year had my thyroid levels checked, and was told they were normal.  How can this be?  Could it have been the ten months on prednisone after the chemo?  I am greatly fatigued, sometimes depressed, and generally do not feel good.  I feel as though I need the supp.  Does anyone have a suggestion?  I would appreciate any thoughts.  Trish


Trish44 (type O)
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trish44
Monday, October 3, 2005, 12:01pm Report to Moderator Report to Moderator

Hunter
Sam Dan
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Forgot to mention that was off Armour from Nov. 03 all thru chemo and prednisone......


Trish44 (type O)
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NewHampshireGirl
Monday, October 3, 2005, 12:38pm Report to Moderator Report to Moderator

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Kyosha Nim
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Trish44 you have some important questions left unanswered.  My advice would be to make an appt. with your regular M.D. for an in-depth talk session.  Write down every big and little thing that concerns you and hash it out with your doctor.  Be firm with him about how you feel and ask him to help you maintain a better quality of life than the one you're having now.  Impress upon him how important this is to you because it is your life, no one else's.

It's simply not right that you should go day by day feeling not up to par and maybe depressed, just waiting for the night when you can sleep again, just to begin the cycle all over the next day.

Let us know what your plan of action is for the future.  We're concerned about you.  
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italybound
Monday, October 3, 2005, 1:07pm Report to Moderator Report to Moderator

~Concealed~Carry~Hunter~
Kyosha Nim
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tishtish and Jenny, you really need the T3 and T4 tests done on the thyroid. The TSH is not a TRUE indicator of how your thryoid is functioning.
Also, all of the questions you have, go to google and just type it in. It will bring up lots of things at which to look .  This is how I got alot of the info to help my mom. It just helped me to know where to look and for what to look. Along w/ all of you great people here and my naturopath and chiro. But google can be a wealth of information. I just googled yesterday on info for ataxia. Found a bunch of good stuff.




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