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Help for frustrated friends  This thread currently has 393 views. Print Print Thread
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Adopted4
Friday, May 2, 2014, 2:41am Report to Moderator Report to Moderator

Live Life Joyfully 42% Teacher
Autumn: Harvest, success.
Posts: 375
Gender: Female
Location: Southern MD
Age: 45
I have 2 close friends who's teenage son has had very significant health problems the last couple of years. He was diagnosed with POTS disease which I don't know much about, but it is believed he should completely recover from it in a couple years. He has weekly doctors appointments in/near D.C. which the mom has to drive him to most every week (at least a 1 hour commute each way). She's continuously frustrated with the whole situation. Up until a few weeks ago, the son literally couldn't eat anything for more than a year now since he was diagnosed with POTS, with the exception of a small nibble of food on rare occasion which would always result in his doubled over in severe abdominal pain. He was drinking liquid protein drinks for nutrition. In spite of all the continuous health care, no significant progress was ever being made. The doctors had him on all kinds of drugs for his heart and circulatory problems and I also found out he had been on an antibiotic for MONTHS! Can you believe it?

About a month ago they saw a nutritionist that identified a couple of the medications, including the antibiotic, as being the culprits for his eating problems. Upon taking him off those meds, he started eating some again, with less pain and problems. It seemed like things were looking up. The mom had also started giving her son a Plexus product that is known to stimulate the immune system and she has been promoting it on FB as she and her daughter have been using their products with positive results.

Unfortunately, the son is in a downward swing again and the doctors again seem to be at a dead end as to how to help him until they believe the disease will eventually pass. I know from talking to the mom that this whole experience has been devastatingly stressful for them all, as well as very costly.


A few months ago I gave the mom my "Eat Right" book and I've more than dropped subtle hints about them finding out his blood type and getting him on the path to healing. I mentioned several different "gut healing" supplements that are non-blood type specific, although I recommended they find out his blood type soon. The mom started reading the book, but with everything going on she never did follow through and is just simply submitting to all the poking, prodding, testing, and therapies the traditional doctors recommend.

My heart goes out to them and I pray for them (particularly the son) diligently, but it's obvious these doctors can't heal him and I know in my heart there's so much progress that could be made if the son adhered to a blood type/genotype diet. In this situation, taking him to a practitioner or Dr D. himself would likely be the "miracle" that they're praying for.

What can I tell them about seeing a practitioner or Dr. D? Are there any in the D.C. area? What would it cost them (approximately) to take their son to the clinic in Bridgeport? Would it be a 1 day thing or perhaps several days?

By the way, I know the mom is A and the dad is B (can't remember RH factors), so he could be any type except O.


Coleen ISF-J, Non-Taster
"Religion that God our Father accepts as pure and faultless is this: to look after orphans and widows in their distress and to keep oneself from being polluted by the world." James 1:26-27
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Lola
Friday, May 2, 2014, 3:25am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
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no, he could also be an O

best is to find out for sure

guessing won t work

practitioner registry
http://www.generativemedicine.org/ifhi/memberlist.pl


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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The harder you are on yourself, the easier life will be on you!
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Goldie
Friday, May 2, 2014, 4:10am Report to Moderator Report to Moderator

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Sam Dan
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If they are not committed to Eat Right in the first place then the clinic is not going to help.. The book to start with is good enough.. I would just maybe give the book to the son him self since it comes down to taking control and making decisions.. it would take weeks of eating beneficials before he would be able to test what else is going on.. bring them here and see if that would help them both..

In the very least we would talk about taking power back from hopelessness.



Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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ruthiegirl
Friday, May 2, 2014, 4:53pm Report to Moderator Report to Moderator

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Kyosha Nim
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If none of the doctors already have his blood type on file, maybe you could gift them with a blood typing kit. It's only $10, and they might be willing to use it if it was there waiting for them, and they didn't have to go anywhere or buy anything to find out.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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Adopted4
Saturday, May 3, 2014, 12:07am Report to Moderator Report to Moderator

Live Life Joyfully 42% Teacher
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Posts: 375
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Location: Southern MD
Age: 45
Thanks for the responses. Lola, I hadn't considered the son could be a type O if each of his parents carries a recessive O allele. I'm fairly certain he's a tolerant genotype, nomad or teacher, because of his extensive auto-immune problems and the difficulty in getting him diagnosed. Perhaps he's a nonnie. He also doesn't have any obvious personality traits of a type O.

I checked the registry and see there are practitioners in MD and VA. Do they do the same kind of testing and measurements that they do at the clinic in Bridgeport? Also, I'd really need to give the parents some kind of ballpark estimate of what it would cost them should their insurance not cover it. As well, they may want to know what the frequency of follow up appointments might be necessary to ensure a quick and thorough recovery. These would be very significant considerations if I have any chance of at least getting them to seriously consider getting him an appointment.

Goldie, I hear what you're saying but I don't agree in this situation. The book sat in their house for weeks and I have no doubt the son saw it or heard about it from his mom. But until one or both of the parents get on board to start shopping and feeding him properly to help promote healing, he most certainly won't. He's only 16 and not old enough to make these major changes and decisions on his own. I know the potential is there to get him to eat right for his type. Not only have I talked to the mom about the basics of the diet, she's heard me tell the stories of how the diet almost immediately improved my nonnie son's Tae Kwon Do performance and flexibility, and also how the other kids are healthier and generally don't get sick when others around them are. My sons are friends with their son and have mentioned the blood type diet specifically to him as they are concerned as well about his poor health.

Ruth, I know the mom has said to me during conversations about her sons health that there probably are records indicating his blood type being that he's had tons of blood work done these past couple of years. She just has to remember to ask and then take it to the next level. I've mentioned purchasing the kit to her also as well as considering getting him a SWAMI after finishing reading the book. He could most certainly benefit from a personalized diet if they were only willing to spend the $70 bucks and not take him to a practitioner. The results would probably be much faster, but even doing the blood type diet would be a good start.


Coleen ISF-J, Non-Taster
"Religion that God our Father accepts as pure and faultless is this: to look after orphans and widows in their distress and to keep oneself from being polluted by the world." James 1:26-27
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Seraffa
Saturday, May 3, 2014, 12:24am Report to Moderator Report to Moderator

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Type B dad not paying attention to book. Type A mom too fussed with professional details and overwelmed. 16? Oh heck YEAH I wanted to make some better decisions for myself but mum and dad wouldnt take note of the subtleties of what I said! The kid deserves his book. You'd be surprised at what kids think they can't say in front of parents. The focus is on the kid not the skeptical parents.


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Mrs T O+
Saturday, May 3, 2014, 4:26am Report to Moderator Report to Moderator

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Kyosha Nim
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If the kid is computer savvy, maybe he could read this forum & see for himself( if they allow that ).
It is very sad that the parents don't want to try the simplicity of eating healthy food that is safer than those drugs. Sometimes all we can do is pray. It often takes a huge crisis to make people try things.
Don't let him get near Boston!  


Interested in nutrition, lactation, religion, politics; love to be around people; talkative, sensitive, goofy; a "fishy Christian" ><>; left-handed; lived on a farm, small town & big city; love BTD/GTD; A staunch La Leche League veteran; b. 10/1947 Check BTD/GTD on facebook!
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Andrea AWsec
Saturday, May 3, 2014, 4:27pm Report to Moderator Report to Moderator

SWAMI INFJ Warrior Taster
Kyosha Nim
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There is a story about this man and he is on the roof of his house as the flood waters start to rise. He begins to pray for God to rescue him-- he calls out with a sincere heart to God.

A boat comes by which he can easily get into but he refuses the boat and drowns thinking God abandoned him.  Sad but true this happens too many times for me to count.

God sent the boat but the man failed to see that-- we get like this sometimes.

Tell them this story and see if they can identify themselves in this case.

Will pray that God opens their hearts to an unexpected answer to prayer.



Blood typing is not done unless the patient needs to receive blood just cause we do blood work we do not always do typing it is expensive and the insurance companies do not pay for things that are not needed--nor would a doc just order it randomly. I always recheck the blood types of all my patients-- a 10$ kit is easy to use and helps them take the first step.

I have not found anyone who has the knowledge Dr. D'Adamo does. What I do find is that if people don't pay for something they often don't do it-- the more it costs the more apt they are to follow it.  


Getting this kid well will cost something-- funny when I worked with Dr. D in Brooklyn people always found the money to pay for the visit and supplements-- wads of money came out of pockets.





MIFHI

"Do not try to satisfy your vanity by teaching a great many things. Awaken people's curiosity. It is enough to open minds; do not overload them." Anatole France

"Healthy people have the least overt symptoms from eating avoid foods." Dr. D'Adamo

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Andrea AWsec  -  Saturday, May 3, 2014, 5:42pm
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Mrs T O+
Saturday, May 3, 2014, 9:24pm Report to Moderator Report to Moderator

Concealed Carry Gatherer! SWAMI Explorer Blend
Kyosha Nim
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Andrea: I like that story. The version I heard was that God sent 3 different things including a helicopter & when the man died he asked God, "Why didn't you help me." He said, " I did. I sent a boat, a ? , &  helicopter."

This country is full of folks who keep rejecting the various alternative lifeboats & suffer for it. Some finally wake up & get the help they need. It sure is frustrating.


Interested in nutrition, lactation, religion, politics; love to be around people; talkative, sensitive, goofy; a "fishy Christian" ><>; left-handed; lived on a farm, small town & big city; love BTD/GTD; A staunch La Leche League veteran; b. 10/1947 Check BTD/GTD on facebook!
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Averno
Saturday, May 3, 2014, 10:36pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Mrs T O+
Andrea: I like that story. The version I heard was that God sent 3 different things including a helicopter & when the man died he asked God, "Why didn't you help me." He said, " I did. I sent a boat, a ? , &  helicopter."

This country is full of folks who keep rejecting the various alternative lifeboats & suffer for it. Some finally wake up & get the help they need. It sure is frustrating.


There is a great  "3 boats..." scene in the movie North Fork.

BTW I searched POTS disease, landed on Wikipedia, and two things jumped out-  excess cathecolamines are related in the hyperadrenergic form of the disease, and that a strict gluten-free diet offers some relief for some patients.


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Averno  -  Saturday, May 3, 2014, 10:51pm
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PCUK-Positive
Sunday, May 4, 2014, 12:27am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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the fastest way to get a handle on everything is to do a swami pro and get dna data interpreted by a practitioner interested in that area. I am convinced of that now. and having been studying everything in this area for a lot of years, full time that's what i would do.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Adopted4
Sunday, May 4, 2014, 1:57am Report to Moderator Report to Moderator

Live Life Joyfully 42% Teacher
Autumn: Harvest, success.
Posts: 375
Gender: Female
Location: Southern MD
Age: 45
Andrea and Mrs. T, I'm familiar with the story too. The point is "The Lord helps those who help themselves". Isn't it the truth though?

Averno, my friend told me that the nutritionist they recently saw also recommended a gluten free diet, and I think maybe dairy/casein free too if I remember correctly. The problem is, without thorough knowledge of what foods/products contain gluten, I'm afraid he is probably still consuming some in smaller amounts.

Just to let everyone else know, I wrote down a list of names from the practitioners registry who are based out of Maryland/Virginia. I'm giving the list to my friends tomorrow and I"m praying they will pick up the phone and call one or more of them soon. I'm sure I"ll get an update from them on the status of their sons current health from this past week and maybe this will be the catalyst to get them to change doctors or at least include one from the registry.


Coleen ISF-J, Non-Taster
"Religion that God our Father accepts as pure and faultless is this: to look after orphans and widows in their distress and to keep oneself from being polluted by the world." James 1:26-27
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Amazone I.
Thursday, May 8, 2014, 8:24am Report to Moderator Report to Moderator

Rh+ GT 4...E/..INTJ ....prop.=non-taster..
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Averno is right and all that renifles to me like an AB nonnie-explorer ....


MIfHI K-174
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ruthiegirl
Friday, May 9, 2014, 4:04pm Report to Moderator Report to Moderator

SWAMI O+ Gatherer, Healing from Fibromyalgia
Kyosha Nim
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At age 16, I had the skills to cook for myself but I couldn't get myself to the store.  And while I had the skills to prepare one or two specific meals, I was in NO way organized enough to do any meal planning or co-ordinate the time it took to cook and work that into my daily routine on top of homework, etc. At that age, cooking was a fun activity that I engaged in when I was in the mood to do so. At that age, my brother could make killer french fries (he'd learned how in home ec class) but he couldn't make anything else- and I'm honestly not sure if his cooking skills have improved since then.

I think it's a lot to expect a 16 year old to overhaul his own diet. Some individuals are capable at that age, but I don't think it's the norm. And it's especially hard for a person with health issues. I don't know the specifics of his illness, but anything that saps energy or creates brain fog is only going to make it HARDER for him to care for himself- even adults who have been cooking for themselves for YEARS often have trouble continuing when they  get sick.


Ruth, Single Mother to 19yo   O- Leah , 18yo O- Hannah, and  12yo B+ Jack


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