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Fructose malabsorption and other intolerances  This thread currently has 39,059 views. Print Print Thread
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TJ
Saturday, June 12, 2010, 3:59pm Report to Moderator Report to Moderator

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Kyosha Nim
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I recently found a page whose author believes that all food sensitivities arise from only four basic problems:
    1) gluten intolerance
    2) dairy intolerance (casein allergy and lactose intolerance)
    3) fructose malabsorption
    4) yeast sensitivity
(registration required): http://foodintol.com/matrix.as.....amp;utm_campaign=FU1

From what I've learned so far, it makes better sense to me to reorganize those problems into:
    1) gluten intolerance
    2) casein intolerance
    3) sugar malabsorption (including lactose and fructose)
The first two cause leaky gut directly, and the last causing either bacterial overgrowth, or yeast overgrowth which then causes leaky gut.


So right now, I'm gluten-free, and I've gone casein-free to check for casein intolerance.  While I'm at it, I'm trying to kill off any yeast overgrowth AND do a colon cleanse.  With this new point of view, I'm going to be a bit more careful with how I reintroduce foods into my diet.

As much benefit as I've gotten from the BTD and GTD, I'm certain there is still something I haven't addressed yet, and I hope this will help me get to the bottom of it soon!  For you who are still "missing" something, I hope this will be useful to you also.
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ABJoe
Saturday, June 12, 2010, 4:14pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from TJ
I recently found a page whose author believes that all food sensitivities arise from only four basic problems...

I don't believe as this author...  

Having been through serious allergy/sensitivity issues, anything that causes the body to become overly toxic will cause allergic/sensitivity symptoms.  This can include trauma, chemical exposure, drugs - prescription or not, wrong foods, disease, gut flora imbalance, etc...

Most of what you list are or can be symptoms, rather than causes...


RH-, ISTJ
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Goldie
Saturday, June 12, 2010, 5:26pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
Quoted from TJ
I recently found a page whose author believes that all food sensitivities arise from only four basic problems...
I don't believe as this author...  


It might be a good beginning.. to convince sufferers to at least try something.. new like BTD.. as they get interested (away from MD's ) then they will learn as they go.. p/s  I did not listen to the tape..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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marjorie
Saturday, June 12, 2010, 7:09pm Report to Moderator Report to Moderator

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Ee Dan
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Tj- Thanks for the insight. This was beneficial information, and much needed. I am also very cautious ( as other o's) about how much, what kind and when to digest specific fruits because of the high fructose amount. I noticed that pears are pretty high in fructose versus plums. I wonder if this is why I have some digestive issues after I eat a pear which do not seem normal.

Thanks again.
M<
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TJ
Saturday, June 12, 2010, 7:56pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from ABJoe
Having been through serious allergy/sensitivity issues, anything that causes the body to become overly toxic will cause allergic/sensitivity symptoms.  This can include trauma, chemical exposure, drugs - prescription or not, wrong foods, disease, gut flora imbalance, etc...
To clarify, I meant to say non-allergy sensitivities (the author includes "casein allergy" but I think "casein intolerance" is more appropriate).  I wouldn't include chemicals, drugs, or trauma in this discussion.  Since gluten and casein intolerance and yeast overgrowth can cause leaky gut, they open the way for other food sensitivities (i.e. my problem with eggs).
Quoted from marjorie
I am also very cautious ( as other o's) about how much, what kind and when to digest specific fruits because of the high fructose amount. I noticed that pears are pretty high in fructose versus plums. I wonder if this is why I have some digestive issues after I eat a pear which do not seem normal.
Are you referring to that wikipedia link on fructose malabsorption (however valid it may be )?  There is a nice example of foods that are are and not ok (including pears!).
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ABJoe
Saturday, June 12, 2010, 9:49pm Report to Moderator Report to Moderator

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Sun Beh Nim
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Quoted from TJ
To clarify, I meant to say non-allergy sensitivities (the author includes "casein allergy" but I think "casein intolerance" is more appropriate).  I wouldn't include chemicals, drugs, or trauma in this discussion.  Since gluten and casein intolerance and yeast overgrowth can cause leaky gut, they open the way for other food sensitivities (i.e. my problem with eggs).
If you cut out all of the real problems, all you are dealing with are the symptoms of those problems and still not going to get to the root of the problem...  It doesn't appear that you are looking deep enough!



RH-, ISTJ
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PCUK-Positive
Saturday, June 12, 2010, 10:21pm Report to Moderator Report to Moderator

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Kyosha Nim
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very helpful, just another line to follow that fits M.

can i buy a breath hydrogen tester, how does that work exactly.

i will shortly have all Dr D's Books and one of his dads to, there all in the post ay the mo - but does the diabetic book suggest lowering foods high in fructose.



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Lola
Saturday, June 12, 2010, 11:44pm Report to Moderator Report to Moderator

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google those......around 2000 dollars the one recommended by Dr D for clinical use.

Andrea got hers used for much less, you need to ask or google around for opportunities arising.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Goldie
Sunday, June 13, 2010, 1:23am Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text
but does the diabetic book suggest lowering foods high in fructose.


I would say it advocates fruits as every so often .. but experience for me( very limited) I find that it makes me ravenously hungry, and then I eat all things in sight.. for MY ADULT sugar issues .. .. I feel much better without all the sweets, even without the fruits reccomended.

but a child is maybe different.. I really don't know, but I would try only one item at a time.. and even then only limited to fruits highly or super beneficial to start..

Pineapple is the one fruit in both BTD and Gatherer.. beneficial .. so that would be easy..  maybe for a while it may be enough,, in juice,  or whole..  




  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
Sunday, June 13, 2010, 2:06am Report to Moderator Report to Moderator

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Quoted from ABJoe
If you cut out all of the real problems....
Joe, my apologies that I didn't grasp your point the first time.

Toxins, other allergies, and trauma are NOT the only ways to develop other kinds of food sensitivities.  For some, those sensitivities are root causes in themselves.  If my small intestine is unable to transport fructose efficiently, or if it gets shredded by gluten or casein, does that necessarily imply that I have other hygienic issues to deal with?  It may be true for some, but others are simply "made that way".  As far as candida goes, you do have to dig deeper for that--perhaps down to fructose malabsorption.
Quoted from PCUK-Positive
can i buy a breath hydrogen tester, how does that work exactly.

Quoted from Goldie
Pineapple is the one fruit in both BTD and Gatherer.. beneficial .. so that would be easy..  maybe for a while it may be enough,, in juice,  or whole..
Interestingly, pineapple is listed as safe for those with fructose malabsorption, because it has more glucose than fructose, and the glucose facilitates the transport of fructose out of the gut.
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Possum
Sunday, June 13, 2010, 5:40am Report to Moderator Report to Moderator

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Oh My Goodness!!!! Thankyou again TJ!!! I so love to add up/connect the dots & I am tempted to feel stoked as I think my problems (ok not the mental ones, but then again  maybe even those too* ) seem connected to fructose malabsorption... & with diabetes in the family, this is no surprise...

(To me) it all makes so much sense - all my problem foods are high in fructose even (!!!) onions
The list is: leeks, onion, spring onion, asparagus, sorbitol, xylitol, dried fruit, honey, coconut, red ripe tomato, fruit juices, apple, pear, guava, honeydew melon, nashi fruit, pawpaw, papaya, quince, star fruit, watermelon...
Apparently, some effects of fructose malabsorption are decreased tryptophan*, folic acid and zinc in the blood...Interesting
& symptoms can be: diarrhea and/or constipation (at the risk of TMI... I don't get the former but I do sometimes fluctuate b/n being too loose, constipated & normal) & my Mother suffered from IBS...from the same types of food...

"Incidentally, the diagnostic test, is similar to that used to diagnose lactose intolerance. It is called a hydrogen breath test and is the method currently used for a clinical diagnosis. When a breath test cannot be performed, a stool test may be used."
http://en.wikipedia.org/wiki/Fructose_malabsorption)
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PCUK-Positive
Sunday, June 13, 2010, 12:34pm Report to Moderator Report to Moderator

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Kyosha Nim
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Can someone join the dots - Emily seemed to have a copper deficiency and an Isoflavonoids deficiency. does that tie in at all.

Although i think with M, she has a few issues, chemical, fruit and veg and pollen / dust mites.

how do i supplement this area without adding to the problem?

specifically from hair test but not an exhaustive list below.

Avocado     Barley flour     Beef     Butter fat     Chickory     Cranberry     Eel     Fennel fresh     Green pepper     Hazel nut     Herring     Honey     Linseed     Oat flour     Papaya     Plum     Radish
Sardines     Sesame seed  
  

Non food items Non food items found to show an intolerance
-Ampicilloyl Is used in penicillin based drugs
-Budgie droppings
-Chicken droppings
-Duck feathers
-Formaldehyde Used as a preservative in vaccines. Can be applied in medicine to dry the skin, such as in the treatment of warts. Many aquarists use formaldehyde as a treatment for parasites.
-Isocyanate Used in the production of polyurethane. They create polyurethane foams, elastomers, paints or adhesives
-Marguerite
-Pepper tree
-Pigeon droppings
-Timothy pollen A type of grass pollen
-Storage Mite Linked to house dust mite normally found in more agricultural surroundings
-Swine Epithelium Epithelium is skin or cells
-Trichophyton A fungus found in athletes foot etc.
-Trimellitic anhydride A highly reactive chemical used commonly in the production of paints and plastics. It is also used in the production of dyes, insecticides and polyester resin.

Nutrition Deficiencies
The information is given just as a guideline not as a diagnosis.

Copper
Isoflavonoids




Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Sunday, June 13, 2010, 7:19pm Report to Moderator Report to Moderator

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Kyosha Nim
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I edited my first post to reflect the idea that yeast overgrowth stems from sugar malabsorption.
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TJ
Sunday, June 13, 2010, 7:33pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from Possum
Oh My Goodness!!!! Thankyou again TJ!!! I so love to add up/connect the dots & I am tempted to feel stoked as I think my problems (ok not the mental ones, but then again  maybe even those too* ) seem connected to fructose malabsorption... & with diabetes in the family, this is no surprise...
Lol, I have nine websites on fructose malabsorption open in my other browser window!  There's a lot of info to sift through!  Let me reassure you that most mental problems are just physical problems.  The mind = body + spirit/soul.  Our souls don't get depression, anxiety, paranoia, hallucinations, or any other kind of "crazy": those arise from weaknesses in the flesh.
Quoted from PCUK-Positive
Can someone join the dots - Emily seemed to have a copper deficiency and an Isoflavonoids deficiency. does that tie in at all.
PC, I wish I could but I don't know much about hair testing.  Is Emily your partner?  Green peppers, papaya, honey, and chicory for some, are FM problem foods, so it may be part of the picture.


I plan to put together a little primer on FM, seeing how this is likely an issue not only for me but also for my brothers.  I've got to finish looking through what I've found, "digest" it , organize it, and connect some more of those dots.  I will plan on posting it here if/when I finish!  That will save others a lot of trouble researching.
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PCUK-Positive
Sunday, June 13, 2010, 8:31pm Report to Moderator Report to Moderator

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Kyosha Nim
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Thanks, Emily is my 4 year old daughter. very bad skin reaction to a few things - polyester, fruit, some vegetables and at some times pretty well everything upset her. she has calmed down a lot since BTD but reacts badly to fruit and carbs generally.
main skin issue on left cheek, but this is a weak area from scratching, neck, back, arms legs chest all can be spotty. apart from that a very healthy actie bright child.

eats like a horse and drinks like a fish. get very bad tempered shen noy instantly fed. lol


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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ABJoe
Sunday, June 13, 2010, 10:15pm Report to Moderator Report to Moderator

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Quoted from TJ
For some, those sensitivities are root causes in themselves.  If my small intestine is unable to transport fructose efficiently, or if it gets shredded by gluten or casein, does that necessarily imply that I have other hygienic issues to deal with?  It may be true for some, but others are simply "made that way".
I hope you find the answer following this line of thinking...


RH-, ISTJ
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Goldie
Sunday, June 13, 2010, 10:32pm Report to Moderator Report to Moderator

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Sam Dan
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Quoted Text

Pineapple is the one fruit in both BTD and Gatherer.. beneficial .. so that would be easy..  maybe for a while it may be enough,, in juice,  or whole..




Quoted Text
Interestingly, pineapple is listed as safe for those with fructose malabsorption, because it has more glucose than fructose, and the glucose facilitates the transport of fructose out of the gut


Interesting.. so there may be a difference between sugar and sugar???



Quoted Text
Avocado     Barley flour     Beef     Butter fat     Chickory     Cranberry     Eel     Fennel fresh     Green pepper     Hazel nut     Herring     Honey     Linseed     Oat flour     Papaya     Plum     Radish
Sardines     Sesame seed


am I to understand that these are NOT good for M?? My answer.. she has no need for any.. so why would it matter..

The same for the other stuff you mentioned.. no need for that either.. so in my mind what is the problem??.. ONCE you know the issue then stay away.. simple?? or am I not getting it??


Quoted Text
eats like a horse and drinks like a fish. get very bad tempered she not instantly fed.



I find that completely compatible with HYPOglycemia..    you can have that even without the diabetes marker.. and I would expect severe cases of it to be re-active to all sort of 'stimulants' ..
//// then again Hyperglycemia .. but she is so young and I am certain you did a 'fasting blood sugar' test already.. to rule out pre-diabetes!

I used to say if I have a vile temper.. then just feed me.. do it fast and it does not matter what it is.. any food.. wait 5 min and I will be fine..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
Sunday, June 13, 2010, 11:33pm Report to Moderator Report to Moderator

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Kyosha Nim
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Oh, lightbulb!  "M" = "Emily", right?  That makes a lot more sense than "Menopause".

PC, could you fill me in on this hair testing and how it's used to determine sensitivities?
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TJ
Sunday, June 13, 2010, 11:35pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from ABJoe
I hope you find the answer following this line of thinking...
Who knows what the future holds.  This may be the bottom line for me, or it may be that I have to follow this road for a time before deeper problems can be uncovered and addressed.
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Goldie
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Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Possum
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In what way Goldie?
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PCUK-Positive
Monday, June 14, 2010, 9:46am Report to Moderator Report to Moderator

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Kyosha Nim
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thanks goldie very helful


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Monday, June 14, 2010, 9:23pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Hair test website

http://www.testyourintolerance.com/default.html

By the way these items listed below we got a reaction to using detailed exclusion diet. facial rupture and raised skin on other parts of bidy too.

Again pleae note that i think Emily has at least two issues one of which is fructose - have have her off wheat, dairy, corn, anyway and have had an improvement - we also follow BTD fairly compliantly except for birthday parties - which is when we get reaction the most.

actual tested challenge reaction from food include some may have underlying reaction form other things mixed with the food of course.

rainbow trout, Kale, Spinach, Parsley, Bananas, Butter, Avocado, chicory, peach, pear, apple, papaya, flax seed oil, carrots, parsnips, celery, leek, red grapefruit, Orange, melon, kiwi, strawberries, figs, guava, watermelon, sardines, sunflower oil (on anything = major reactions), some nuts, sometimes - almond but okay when roasted and small amount, walnuts the same, pumpkin seeds okay when Small amount. eggs sometimes depends on how cooked boiled get least reaction. spelt flour, some porridge, spring onions, onions, ginger, rice - depending on how much. brown rice even less. anything with citric acid or MSG, vinegar spice, bouillon cubes, even vegan supplement tals with b12 (thought to be "natural flavour or dextrose, sugar,), pizza, olives, baked beans, stock cubes, corn flour, raisins, dried apricots, some brands of puffed rice.

the list goes on.... but i think you get the idea.

things she does not generally react to are BTD - meat, fish, quinoa, not much else.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Possum
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Quoted from PCUK-Positive
actual tested challenge reaction from food include some may have underlying reaction form other things mixed with the food of course.

rainbow trout, Kale, Spinach, Parsley, Bananas, Butter, Avocado, chicory, peach, pear, apple, papaya, flax seed oil, carrots, parsnips, celery, leek, red grapefruit, Orange, melon, kiwi, strawberries, figs, guava, watermelon, sardines, sunflower oil (on anything = major reactions), some nuts, sometimes - almond but okay when roasted and small amount, walnuts the same, pumpkin seeds okay when Small amount. eggs sometimes depends on how cooked boiled get least reaction. spelt flour, some porridge, spring onions, onions, ginger, rice - depending on how much. brown rice even less. anything with citric acid or MSG, vinegar spice, bouillon cubes, even vegan supplementals with b12 (thought to be "natural flavour or dextrose, sugar,), pizza, olives, baked beans, stock cubes, corn flour, raisins, dried apricots, some brands of puffed rice.
Hmmm sounds like my list...So is this the list after the hair analysis? Any chance you could please PM the whole list, just for curiosity? Cheers...

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PCUK-Positive
Monday, June 14, 2010, 10:28pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Difficult the list is embedded in eight months of food diary, detailed every fifteen minutes, you can imagine there is files and files of info. we just took the food item off out initial list of BTD foods. so kinda did it in reverse for information purposes. didn't think it would take so long.

we also have files on all sorts of other diets from vegan to fiengold salicylte etc all coded but the list are massive and mainly in paper format.

example below

25/02/2010
                                  Immediate             decryption                             other
time                             reaction Y/N         of reaction or observation      coments          notes
wake                                                        L CHEEK CLEAR R CHK RED
7.00 WATER                        N    

7.15 BANANA                      N?                   ROSY CHEEKS                                              TOILET 1
       (ORGANIC SALISBURY'S)

7.30                                                        
7.45
8.00 PORRIDGE                   N                                                                                         TOILET 2
8.15
830                                                         DRY LEFT CHEEK                     AQUEOUS CREAM +
8.45
9.00 HUNGRY                                           TANTRUM - VERY HOT
9.15 WATER                                                                                          DRY SPOT ON RIGHT
9.30                                                            
9.45 PORRIDGE ANOTHER FULL BOWL                                                    SHOULDER
10.00 APPLE (NO SKIN)           N               EYES GLAZED TIRED


JUST A SAMPLE TOO DIFFICULT TO FILL IN TABLES ON THIS BOARD.



26/02/2010
7.00 mIN LOVELY MOOD           RED BELOW LEFT EYE FROM SCRATVH LEFT CHEEK SLIGHTLY RED BUT SKIN NOT SCRATCHED, RIGHT CHEEK VERY SLIGHTLY RED BUT SKIN NOT BROKEN LIPS CHAPPED. SLIGHT COUGH AFTER BANANA AT 7.15 (ALSO POSSIBLE REACTION TO BANANA CONFIRMED





Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Possum
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Aha!! Sorry I thought you mean list from the hair analysis.. Very good price on that btw Jeepers you have been diligent!!
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PCUK-Positive
Monday, June 14, 2010, 11:31pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Question re supplements - again - Sorry

Assuming a fructose Mal Absorption issue - . fructans, sorbitol, inulin, fructooligosaccharide

the sups i wnt to concentrate on are below woth a couple of comments re ingredients

polyvite mixed with food seems to invoke a reaction on cheek. only done a few times so not tested properly yet

polyflora - mixed with food- seems to be okay but what about -  base of larch arabinogalactan, chicory concentrate and banana concentrate prebiotics

proberry seems to get a reaction in the liquid form, have now got tablet form but M can't swallow as it's too big.

live cell - yet to test - hopeful

phytocal - not tested yet again hopeful.


harmonica - not even opened yet but thought it might be useful.


perhaps someone with a bit more knowledge on the supps and fructose mal absorption could advise for or against any supps for me.



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Monday, June 14, 2010, 11:35pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Info on A hydrogen breath test (or HBT)

is used as a clinical medical diagnosis for people with irritable bowel syndrome, and common food intolerances. The test is simple, non-invasive, and is performed after a short period of fasting (typically 8-12 hours). Even though the test is normally known as a "Hydrogen Breath Test" some physicians may also test for methane in addition to hydrogen. Many studies have shown that some patients (approximately 35% or more) do not produce hydrogen but actually produce methane. Some patients produce a combination of the two gases. Other patients don't produce any gas, which are known as "Non-Responders"; some physicians believe that these individuals actually produce another gas which has not been determined yet. In addition to hydrogen and methane, some facilities also utilize carbon dioxide (CO2) in the patients' breath to determine if the breath samples that are being analyzed are not contaminated (either with room air or bronchial dead space air).

[edit] Conditions
Tests vary from country to country, so the following information is provided as a rough guide to typical uses of the hydrogen breath test:

Fructose malabsorption - the patient takes a base reading of hydrogen levels in his/her breath. The patient is then given a small amount of fructose, and then required to take readings every 15, 30 or 60 minutes for two to three hours. If the level of hydrogen rises above 20 ppm (parts per million) over the lowest preceding value within the test period, the patient is typically diagnosed as a fructose malabsorber. If the patient produces methane then the parts per million for the methane typically rises 12 ppm over the lowest preceding value to be considered positive. If the patient produces both hydrogen and methane then the values are typically added together and the mean of the numbers is used to determine positive results, usually 15 ppm over the lowest preceding value.

Lactose malabsorption - the patient takes a base reading of hydrogen levels in his/her breath. The patient is then given a small amount of pure lactose (typically 20 to 25 g), and then required to take readings every 15, 30 or 60 minutes for two to three hours. If the level of hydrogen rises above 20 ppm (parts per million) over the lowest preceding value within the test period, the patient is typically diagnosed as a lactose malabsorber. If the patient produces methane then the parts per million for the methane typically rises 12 ppm over the lowest preceding value to be considered positive. If the patient produces both hydrogen and methane then the values are typically added together and the mean of the numbers is used to determine positive results, usually 15 ppm over the lowest preceding value. However, recent study suggest that testing may not correlate with any actual diagnosis. [1]

Small Bowel Bacterial Overgrowth Syndrome (SBBOS) or Small Intestinal Bacterial Overgrowth (SIBO) - the patient is either given a challenge dose of glucose, also known as dextrose (75-100 grams), or lactulose (10 grams). Breath samples are then collected at 15 minute or 20 minute intervals after the baseline is collected for 3-5 hours. Positive diagnosis for a lactulose SIBO breath test - typically positive if the patient produces approximately 20 ppm of hydrogen and/or methane within the first two hours (indicates bacteria in the small intestine), followed by a much larger peak (colonic response). This is also known as a biphasic pattern. Lactulose is not absorbed by the digestive system and can help determine distal end bacterial overgrowth, which means the bacteria are lower in the small intestine. Positive diagnosis for a glucose SIBO breath test - glucose is absorbed by the digestive system so studies have shown it to be harder to diagnose distal end bacterial overgrowth since the glucose typically doesn't reach the colon before being absorbed. An increase of approximately 12 ppm or more in hydrogen and/or methane during the breath test could conclude bacterial overgrowth. Recent study indicates "The role of testing for SIBO in individuals with suspected IBS remains unclear." Small Intestinal Bacterial Overgrowth in Irritable Bowel Syndrome Systematic Review and Meta-Analysis. Clin Gastroenterol Hepatol. 2009 Aug 12.

The excess hydrogen or methane is assumed to be typically caused by an overgrowth of otherwise normal intestinal bacteria. (citation needed)

Other breath tests that can be taken include: Sucrose Intolerance, d-xylose and sorbitol.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Tuesday, June 15, 2010, 12:12am Report to Moderator Report to Moderator

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Kyosha Nim
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if you type in Fructose malabsorption to face book there are a couple of groups there that you might find interesting.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Possum
Tuesday, June 15, 2010, 12:25am Report to Moderator Report to Moderator

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Ee Dan
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Cheers!!!
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TJ
Tuesday, June 15, 2010, 4:19am Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from PCUK-Positive
I checked out this website and read about what they do.  I have some misgivings, honestly.  I don't know how they could determine sensitivities just by testing hair samples!  But if you can verify the results they gave you with your own observations, that lends a lot of credence.  From the look of things, Emily has a lot more than just FM!

If you ARE a FMer, I'd be careful of larch arabinogalactan (ARA6).  Generally speaking it's great stuff but could cause a reaction like fructans can.  Chicory root can also be a problem for some.  Some people claim that taking probiotics makes them WORSE!

I'd use dextrose (another name for glucose) as a sweetener, and if eating something that may cause a reaction, eating some dextrose with it may prevent the reaction.  Fructose transport out of the small intestine can be facilitated by the presence of glucose; i.e. one fructose can ride "piggy-back" on one glucose.  I would also avoid all sugar alcohols (anything ending in -tol) since they inhibit fructose transport.

I would suggest taking an enzyme supplement that has cellulase in it.  This will help break up biofilms in the gut that protect bacteria and fungi, and will at the same time increase the amount of glucose present (I think?).
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Possum
Tuesday, June 15, 2010, 4:43am Report to Moderator Report to Moderator

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Ee Dan
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Quoted from TJ
I checked out this website and read about what they do.  I have some misgivings, honestly.  I don't know how they could determine sensitivities just by testing hair samples!  But if you can verify the results they gave you with your own observations, that lends a lot of credence.  From the look of things, Emily has a lot more than just FM!

If you ARE a FMer, I'd be careful of larch arabinogalactan (ARA6).  Generally speaking it's great stuff but could cause a reaction like fructans can.  Chicory root can also be a problem for some.  Some people claim that taking probiotics makes them WORSE!

I'd use dextrose (another name for glucose) as a sweetener, and if eating something that may cause a reaction, eating some dextrose with it may prevent the reaction.  Fructose transport out of the small intestine can be facilitated by the presence of glucose; i.e. one fructose can ride "piggy-back" on one glucose.  I would also avoid all sugar alcohols (anything ending in -tol) since they inhibit fructose transport.

I would suggest taking an enzyme supplement that has cellulase in it.  This will help break up biofilms in the gut that protect bacteria and fungi, and will at the same time increase the amount of glucose present (I think?).
Great info re the larch TJ!! Cheers I definitely have reactions to prebiotics made from chicory - one of the few things that make me extremely unpleasant to be near

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Lola
Tuesday, June 15, 2010, 4:53am Report to Moderator Report to Moderator

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TJ,
kind of describing what deflect is meant to do, and DR D has formulated every sacrificial sugar used in deflect to serve each BT gut......can t get more personalized than that

take a look at G Security to do the job as well!
http://www.4yourtype.com/prodinfo.asp?number=NP048


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Possum
Tuesday, June 15, 2010, 4:57am Report to Moderator Report to Moderator

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Ee Dan
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kind of describing what deflect is meant to do...
What; make you unpleasant to be near???
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PCUK-Positive
Tuesday, June 15, 2010, 10:11am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Thanks TJ I'll look into all of that - very helpful

We are now cutting out fruit and anything we know is high in fructose for the rest of the week. but her face is healing already. this morning its possibly the best it's been for a long time.

the other issues involves dust mites / cross of storage mites that won't let her cheek heal at night. we are addressing this with Olive oil and air purifiers and a anti dust mite regime.

Pollen also is a problem but again we are mind full of this and have stopped Emily going out in the garden in the morning, before 10 am when pollen is apparently most active. this helped a lot too. also we air the house a lot.

Thanks Lloa deftect has larch arabinogalactan - if okay I'll start a test using Deflect as I have loads of that (actually i bought a whole load of most of the supps to test with her and us) , I'll start using 1/4 of a tablet as she is 16 kilos. I would be grateful if yo were as specific with the other supps i mentioned taking into acounts M blood Type. Maybe TJ Different Blood type affects him with the supps differently to Emily, even slightly. just a thought.

It seems that (without double blinded research of course) that maybe us nonnies or maybe gathers have an issue with sugar - maybe they all have a version of Fructose Mal absorption. or is it just a variation on the diabetic theme. (the sugar is a big area of weakness in me too)




Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Possum
Tuesday, June 15, 2010, 10:21am Report to Moderator Report to Moderator

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Ee Dan
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PC there is also another fructose malabsorption (yahoo) group that is worldwide, I just found on the net...if you are interested - seems more active than the facebook ones
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Goldie
Tuesday, June 15, 2010, 11:49am Report to Moderator Report to Moderator

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Sam Dan
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P/C .. I ... don't know if you need to read this.. I told this before..

Yet, I am addressing food variety for a child coming of Possibly (non compliant) breast milk for so many years..

It took a year for my intestines to heal to the point where I felt healthier, and all I ate where a few things.

I can write them on here without issues, and hunger was in issue with me also.

Eggs for breakfast cooked in Ghee, if 2 are not enough then 3.. it will not hurt her ( porrige as far as I am concerned will not be good for her intestines and weaken them, allow the 'burring' through the intestinal wall and entering the system, which then the body first has to fight instead of rest from it. )

snacks Nuts walnuts or any she does not react to,  a fruit or choc.

11AM lunch of 8 oz steak/meat any size (as much as 16 ounces,if I needed it)..did that for years. or meat cooked stir fry over the first line of BENEFICIAL or super Ben vegetables.

snacks as above until

5PM  dinner same as lunches..

Snacks bananas blueberry smoothies endless

(for the kids I brought up) at first they were used to enormous portions of 'pasta' their staple, within a month they ate normal portions.  All they needed to teach their body was : food will be available, I do not have to hoard food or eat it before the other children will eat it... they came from a bad diet place..)  

Now maybe if I look at the food list of today, I was less restrictive with sweet potatoes carrots, green peppers, cucumbers, green salads with all sort of dressings to each his own, tom sauces, and butter jellies and Ezekiel toast bread.  This is what I and the kids ate for years.. not much else .. no restrictions anywhere for size or portions..

Juices replaced all in house milk.. other juices replaced orange juice..

today I am much more restricted.. much less sugar,

but with the kids.... IF I had to do it again I would follow the same plan.. easy simple, and if they ate other stuff outside of the house I KNEW I was not messing with their health.. (all O's)  and the stuff they ate out, was giving them just enough variety that they were exposed to all kinds of things.. and could learn to judge for them selves what was good what was not..  

I did not eat fish but if the kids wanted that was special ordered by them as they liked differing ones - I only eat tuna mixed with mayo..  

MOST IMPORTANT on the table we had a big pound bowel of hard candy.. next to nuts and fruit.. the kids soon after the first week left the candy sitting ..

oh and real cream ice-cream in the freezer,, actually they seemed to eat it out more than home..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Tuesday, June 15, 2010, 1:37pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Goldie i do love your posts but if may just mention a few things to remind you.

Emily reacts to pretty well any fruit, even the test amount - so endless fruit smoothies might not just be cool for a while at least. i do appreciate that you mention banana and blueberries being that they ar ebetter for Fructose problems.

this week we have no fruit, it's only another few days till the week end then we have a small portion of the recommended fruits. and then only every few days.

I am hopeful that in many months we can just return to normal as you hope too.

also steak makes her react like a wild cat - she definitely has a problem with that as she does with chicken. again we are sure that she will be better with these but not just yet.

spoke to consultant for allergies to chase up appointment - should be within the next week.

also looking at astrologist for breath test advice on fructose. more medical bills but hey.

got every book Dr D has written including his dads book now reading that now, but still waiting for the diabetic book - which is the one i want the most. post delays or something should be here this week.

nothing in the encyclopedia about fructose mal absorption though unless i missed it also not much on the search on this site again i would love it if someone would post more links for me to study.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Tuesday, June 15, 2010, 2:53pm Report to Moderator Report to Moderator

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Kyosha Nim
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Quoted from PCUK-Positive
the other issues involves dust mites / cross of storage mites that won't let her cheek heal at night. we are addressing this with Olive oil and air purifiers and a anti dust mite regime.
Have you considered the possibility that the pillow, bed, and/or bedding might be the culprit?
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deblynn3
Tuesday, June 15, 2010, 5:00pm Report to Moderator Report to Moderator

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Ee Dan
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wow, I've missed a lot. Pineapple maybe like grapfruit it digest differently? I love pears now I understand why they don't love me. (note to myself- get note pad for info thread)  You guys are getting over my head. Yes I Know I'm kind of short.


Swami, 100% me..
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Tuesday, June 15, 2010, 5:23pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Tj, we have replaced wooded bed with metal frame framed med, new mattress, although the old one was only 4 years old, new pillows, bedding gets changed and washed at 60 degrees every day, she now also has a new wooden floor, absolutely no furniture in the room just brand new wooden toys, and an air purifier, all soft toys are gone for a month to see results and will probably stay away as she has improved so much.

bedroom room is aired all day and purifiers run 24 hours, they have filters and uv lights the works. her pillow is left in sunlight all day when it shines too. dreading the winter actually as humidity will then be a problem but the theory is to get her as well as we can before the winter so she can fight off the humidity from a position of strengh.

she doesn't go out between 7 am and 10 am due to pollen, she stays away from birds, everything she touches these days is at least pure cotton. Even our own clothes are the same. in the afternoons we are outside if the weatehr allows full time. no baths only showers and not hot either every other day.

following a cross between allegies diet, hypoglycemic diet and no fruit this week. also low fructose nearly no fructose actually. skin condition good, slight ig type reaction from something. but only slight and not itching.

at night she has scratch sleeves, and her cheek is covered in the most expensive Olive oil we can find. seems to stop whatever dust mites are left also a little lavender oil under per pillow. lol. slowly but surely we can see a light at the end of the tunnel albeit a long tunnel.

but keep the info coming please and we shall do the same.

I am a fan of both the D'Adamo as you all know. and today reading The dads book helped get the hypoglycemia in my head. recommend that to possum.

Can also see what Goldie means regarding bananas and some stuff to be eaten once a month or once a week.

although their differing views on leicins does confuse me - but happy to stick with swami for me and Emily's mum.

am i to understand that the equivalent of a explorer is an Oa, and a gatherer a Oo, I'll find the thread and repeat that there.

I think the one thing that i am a bit pissed off about is my old friend and his zero fat vegan diet. as much as i rate him as a doctor and being ahead of his time. the hypoglycemia, FM mal absorption makes it very dangerous in my opinion to bandy that idea around still - so no more McDougalling for me. and now deleted off facebook.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Wednesday, June 16, 2010, 1:48am Report to Moderator Report to Moderator

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Kyosha Nim
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PC, sometimes I feel sorry for myself, then I read about people like your daughter who have it so much worse!  And from a much earlier age, too.  I don't have any other ideas for you right now, just well wishes.
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Possum
Wednesday, June 16, 2010, 9:20am Report to Moderator Report to Moderator

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Ee Dan
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Quoted from PCUK-Positive
...but keep the info coming please and we shall do the same. Did you see my other recommendation for the yahoo site?

I am a fan of both the D'Adamo as you all know. and today reading The dads book helped get the hypoglycemia in my head. recommend that to possum. Cheers

I think the one thing that i am a bit pissed off about is my old friend and his zero fat vegan diet. as much as i rate him as a doctor and being ahead of his time. the hypoglycemia, FM mal absorption makes it very dangerous in my opinion to bandy that idea around still - so no more McDougalling for me. and now deleted off facebook.Who is this?


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PCUK-Positive
Wednesday, June 16, 2010, 9:34am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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John McDougall recommends that everyone should be "fat free vegan" his take on the medical world was way ahead of its time 25 years ago, but the vegan thing for all just does not work. i tried it for 6 months and made myself and the family worse. not good for O's at all.

I finished Dr James book last night the first half is excellent but the second half not as exciting. very much worth a read though as an addition to Peters books. even just for the hypoglycemia and sugar bits.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Thursday, June 17, 2010, 12:19am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Interesting little read - Research about long-term effects of food allergies when left untreated -

http://community.livejournal.com/naturalliving/2739381.html

my thinking that gluten and sugar are linked like cross react dust and storage mites do - maybe an over simplifictaion. it's late i should sleep lol


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Friday, June 18, 2010, 7:58pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Friday, June 18, 2010, 8:18pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Friday, June 18, 2010, 8:32pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Friday, June 18, 2010, 8:47pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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sorbitol seems to be in a lot of things that you wouldn't expect like toothpaste vaccines


very dangerous for people with undiagnosed fructose intolerance

http://www.novaccine.com/vaccine-ingredients/results.asp?sc=23


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Saturday, June 19, 2010, 12:02am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Sorbitol:C6H14O6

Sorbitol plays a vital step in the 'polyol pathway'. The sudden injection of extra sorbitol can ruin the equilibrium of enzymes that regulate the conversion of glucose to fructose in a process associated with the onset of diabetes and its complications.  Further, the polyol pathway is involved with a complex network of metabolic activities; disruption leads to a cascade of problems such as mitochondrial failure, cell apoptosis, and DNA fragmentation.  In general, sorbitol induces cell hyperosmotic stress resulting in phosphorylation -- an important on/off switch regulating enzymes and signaling networks.
Citations include a government record prominently stating under Drug Warnings that sorbitol is "not to be injected".
http://www.sailhome.org/Concerns/Vaccines.html#Sorbitol

There is a growing opinion within the medical community that it should be listed as an active ingredient, because too much Sorbitol (about 50g or more for adults) can cause severe gastro-intestinal problems… Too much sorbitol in cells can cause damage… Sorbitol can also aggravate irritable bowel syndrome and fructose malabsorption.
Wikipedia.com - http://en.wikipedia.org/wiki/Sorbitol

EDF Suspected - gastrointestinal or liver toxicant. Less hazardous than most chemicals in 1 ranking system.  


Kind Regards PC. FIfHI Swami III Pro

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PCUK-Positive
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Kind Regards PC. FIfHI Swami III Pro

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Lola
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favor vegetable glycerin over other .....


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
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Kyosha Nim
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criptic as ever Lola. oxo


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I assumed she meant you should favour veg glycerin over the other
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Vegetable glycerin did NOT agree with me when I tried it, but it's a great sweetener alternative for many.
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Lola
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has some pretty interesting actions
Quoted Text
Dr D
Glycerine in a humectant. It is not a 'main ingredient' in the bar formula, since by far the main ingredient is the protein blend (egg/rice). Glycerine(ol) is a trihydric alcohol, (not a carbohydrate) and is the building block of all plant oils and nearly all animal fats. Without a humectant to hold moisture, any bar would be a rock-solid brick within hours of production. Glycerine is the only effective humectant that can be used by non-secretors, since it can be shunted to either fat metabolism or glucose production, depending on metabolic status. Glycerine can be a carb on occasion, a fat precursor on occasion, a phosphoglyceride precursor on occasion, and it can simply pass through the body unused. For non-secretors, this is perfect. Thus, although it is there for moisture retention, it also tends to optimize fat<->carb<->fat conversion which is genetically a problem with non-secretors.
The mentor that introduced me to the concept that lectins can exert metabolic effects in hampering weight loss was fond of having his patients drink glycerine as a way 'prime' the conversion of fat cell bound glycerol back to glycogen-glucose.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Ribbit
Saturday, June 19, 2010, 5:12pm Report to Moderator Report to Moderator

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I haven't read every post in this thread, but I wanted to say something to Policy Checker that somebody else might have already caught (so forgive me if I'm repeating): It's no surprise that she's hungry that often--she needs protein.  A banana is the last thing you want to feed somebody in the morning.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Kyosha Nim
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Thanks ribit - not sure where the banana came in without re reading the whole post again - but she is a protein eating machine anyway. Emily only has banana rarely and will continue to have it now that we know she can eat it without a problem in small amounts. lately this has been maybe once evry couple of weeks or less.

i have listed what she eats in detail and it amazes me how much protein she eats.

if i were to say anything it would be that she is satisfied the most i.e not so hungry when she eats quinoa.

today she went a bit funny after eating a whole haddock. at 5 pm. this was her 8th meal of the day. the only fruit she had was literally a 1/5 of a banana in the morning, but  after she had eaten twice already including having a boiled egg. 3 white grapes, and an ice cube size of pomegranateand that was mid afternoon as it was so hot. juice frozen oh and if you count a squeeze of lime in sparkling water. today she ate cod in the morning followed by turkey, lamb stew (strained), more turkey. by the way she does not put on much weight but looks healthy enough. thrown in there was a tiny amount of broccoli, a few green beans.


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Kyosha Nim
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Ribbit, just found the bit you were possibly looking at, if you look closely that menu was dated in February of this year and was just an example of how we were keeping records - long beofer we realised the true issues she had. we now have moved on quiete a bit and don't give her much fruit at all really. but thanks anyway for tyring to help. kind regards PC.


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Quoted Text
Lola >>>YOU ARE THE BOMB

Quoted Text
Dr D
Glycerine is a humectant. It is not a 'main ingredient' in the bar formula, since by far the main ingredient is the protein blend (egg/rice). Glycerine(ol) is a trihydric alcohol, (not a carbohydrate) and is the building block of all plant oils and nearly all animal fats. Without a humectant to hold moisture, any bar would be a rock-solid brick within hours of production. Glycerine is the only effective humectant that can be used by non-secretors, since it can be shunted to either fat metabolism or glucose production, depending on metabolic status. Glycerine can be a carb on occasion, a fat precursor on occasion, a phosphoglyceride precursor on occasion, and it can simply pass through the body unused. For non-secretors, this is perfect. Thus, although it is there for moisture retention, it also tends to optimize fat<->carb<->fat conversion which is genetically a problem with non-secretors.
The mentor that introduced me to the concept that lectins can exert metabolic effects in hampering weight loss was fond of having his patients drink glycerine as a way 'prime' the conversion of fat cell bound glycerol back to glycogen-glucose.  


I thought this was worht repeating, as I had missed it..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kyosha Nim
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Lola - favor vegetable glycerin over other ..... please elaborate. in simple terms for me thanks oxo

for example say "take on xyz amount of gglerserin tablet available fro xyz stoe and give a link. and coplete instructions


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Monday, June 21, 2010, 7:10pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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http://www.scientificamerican.com/article.cfm?id=jeremy-nicholsons-gut-instincts&posted=1

And your work has shown that the environment makes a huge contribution to your health.
People talk about the genes that make you fat, but really, if you sit on your butt eating pork rinds and Big Macs and watching television, you will get fat, no matter what your genes say. What you do to yourself is really important. Metabolism captures environmental signatures as well as genetic. Your environment involves things like drugs you're exposed to, the pollutants you're exposed to, the products of your gut microbes, the metabolic products of your diet—so when we do a broad-screen metabolic profile, we're capturing all of that information, plus information that links to genome variation. For me, metabonomics is the most holistic of the "-omics." In principle, it can capture the signature of everything.


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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Okay a very short version of my take on fructose or the main points.

Banana is handelled better when NOT ripe. it seems fruit contains less fructose when under ripe.

fructose seems to either cause insulin resistance or makes it worse mayv=be both

if you are having issues with fructose - stoping intake for two weeks can help a lot after that go easy and possibly eat fructose veg first then fructose fruit but at low levels - leave the sugary . sweets choc etc alone unless you want to be ill or worse.

stop drinking bear - get  into a modest amount of red wine if tjhat's compliant for you i guess.

when cooking vegetables don't (sweetify them) i.e sweet potato chips and the like.

obviously any kind of high fructose rubbish or anything else that's artificial should be avoided - some people don't agree with this and say you can eat detrose or what ever - doesn't make sense to me that! avoid it all!


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Tuesday, June 22, 2010, 1:24am Report to Moderator Report to Moderator

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Quoted from PCUK-Positive
Okay a very short version of my take on fructose or the main points.

Banana is handelled better when NOT ripe. it seems fruit contains less fructose when under ripe.

fructose seems to either cause insulin resistance or makes it worse mayv=be both

if you are having issues with fructose - stoping intake for two weeks can help a lot after that go easy and possibly eat fructose veg first then fructose fruit but at low levels - leave the sugary . sweets choc etc alone unless you want to be ill or worse.

stop drinking bear - get  into a modest amount of red wine if tjhat's compliant for you i guess.

when cooking vegetables don't (sweetify them) i.e sweet potato chips and the like.

obviously any kind of high fructose rubbish or anything else that's artificial should be avoided - some people don't agree with this and say you can eat detrose or what ever - doesn't make sense to me that! avoid it all!
Good summary pc!! Cheers... Yeah I still can't get my head around eating sucrose/dextrose to combat the effect of frusctose???

Oh & btw I have heard that "bears" are definitely high frustose - it's prob'ly all the honey they eat
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Lola
Tuesday, June 22, 2010, 3:09am Report to Moderator Report to Moderator

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Quoted Text
"bears" are definitely high frustose


you mean fustose, from fussy wussy???
he was a bear!!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Tuesday, June 22, 2010, 3:12am Report to Moderator Report to Moderator

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lol, dextrose really is fine--as long as corn is okay for you!  Dextrose=glucose, which is absorbed quite easily without any transports necessary.  I don't seem to have trouble with ripe bananas.  That's the only way I want them anyway.

Also, watch out for grapefruit juice.  I bought some and it didn't agree with me.  Turns out it had apple juice in it too.
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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the problem is that all the FM stuff doesn't take into account blood type. so for example corn is an avoid for me.

and once you have a few health issues you quickly run out ofthings to choose from.

I'm hoping the kick start theory will raise the threshold for M. or maybe increasing the exercises helps but between us we'll get there.



Kind Regards PC. FIfHI Swami III Pro

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Tuesday, June 22, 2010, 12:23pm Report to Moderator Report to Moderator

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P/C and all who made this journey... Yes, some people have a natural ability not to need sugar stuff, just like some have a great need for added salt, and some can eat cake and say I did not even have any cake for weeks.. and than there is me I fit all at different times.. but BTD is my savior.. without it there would be so little hope as I would never have gotten stronger/healthy.. even years later I get to feeling better for some discovery of on old or new interpretation or another..  small changes sometimes, small adjustments, make a big difference.  what is natural today may not be good tomorrow, and sometimes the reverse is possible, but allowing for self regulating once you only have beneficial foods in the house will bring out the best eating habits.   kids and some adults will eat right if they are given a chance to choose from super and from beneficials. . I see them as holding the building blocks together, while the neutrals are the stuff one can not avoid in so called polite society.  

the biggest gift of all this talk about what foods when and where.. is not only healthier living..........

Quoted Text
THE GREATEST GIFT IN BTD/GENO IS THAT WHEN YOU SUFFER FROM 'WRONG' FOODS AT LEAST YOU KNOW WHY... no need running to a doctor asking WHY this or that.. You KNOW and you know HOW to FIX your self from the insight out!!!!!!!!!!!!!!!!  saves millions.... saves teeth, saves looks, saves eyesight, saves the liver, improves intelligence, prevents premature aging while preventing stupid impulsive behavior while young... BTD/GENO are Building blocks to sanity for the generations to come!!!   


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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weroflu
Tuesday, June 22, 2010, 3:06pm Report to Moderator Report to Moderator

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to the op, have you considered that mercury poisoning is known to cause intolerance to gluten and casein. ( as per andrew cutler's book - amalgam illness)

policychecker, in cutler's book he has a unique method for interpreting hair mineral ratios to indicate toxicities of certain heavy metals.

i am not advocating to rush out and start chelating because it has its own set of problems especially for children. but of the many hundreds of health books i have read, this book stands up there with the best of them. andrew cutler is no slouch as he has a ph.d. in biochemistry.

many researchers have proposed the theory that mothers, like large fish (just kidding), are generationally accumulating heavy metals, and passing them intrauterinely and via breastmilk to children.
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Tuesday, June 22, 2010, 3:29pm Report to Moderator Report to Moderator

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Kyosha Nim
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I tried taking that into account with cilantro and other remedies regarding heavy metals but Emily reacted to them. so my priority is to get her to be able to eat without worry then we'll address the next issue.

I'll get his book next although i have quite a few to read still and I'm still waiting for the diabetic book which is now holding me up. still it gives me time to read more and more on FM. and yeast.

Personally i think Emily is over rthe worst of this thanks to our changing and being aware of her diet. but the next few weeks will tell for sure.




Kind Regards PC. FIfHI Swami III Pro

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Quoted from weroflu
to the op [Original Poster?], have you considered that mercury poisoning is known to cause intolerance to gluten and casein. ( as per andrew cutler's book - amalgam illness)
I assume this was directed at me.  I've never had a dental cavity, my mother never had amalgam fillings until after I was weaned, and I don't eat a lot of seafood.  Nevertheless, I have done some mercury cleansing type stuff in the past--mainly taking chlorella and milk thistle while trying to purge candida (i.e. no-carb diet).
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Tuesday, June 22, 2010, 4:53pm Report to Moderator Report to Moderator

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Quoted from PCUK-Positive
Personally i think Emily is over rthe worst of this thanks to our changing and being aware of her diet. but the next few weeks will tell for sure.

I think she may still have some toxin stored in the body that will come out over time, and she may have small reactions as that happens...  I think you're doing a great job assessing what is proper for her.  Although, things can change as she heals.


RH-, ISTJ
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Tuesday, June 22, 2010, 8:07pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
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Quoted from ABJoe

I don't believe as this author...  

Having been through serious allergy/sensitivity issues, anything that causes the body to become overly toxic will cause allergic/sensitivity symptoms.  This can include trauma, chemical exposure, drugs - prescription or not, wrong foods, disease, gut flora imbalance, etc...

Most of what you list are or can be symptoms, rather than causes...



I agree 100%. My problems all seemed to have stemmed from metal toxicity.  Get rid of the metals, get rid of stomach problems.  That's how it's been going for me.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Tuesday, June 22, 2010, 8:20pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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  Let me reassure you that most mental problems are just physical problems.  The mind = body + spirit/soul.  Our souls don't get depression, anxiety, paranoia, hallucinations, or any other kind of "crazy": those arise from weaknesses in the flesh.

I agree with this.  To a point.  But I disagree in totality.  Emotional and mental Trauma, negative thoughts, Unforgiveness, too much fear, can all set up chemical processes that affect your body negatively.  Your physical body.  It's a package deal.  Why do you think the Bible warns us to forgive 70 x 70?  Is it because the person that may have hurt us deserves it?  I guess I'll dig up some scripture to make my point clearer.  I would be careful to always point the finger at something physical.  Even in my case, being metal toxic is what caused a lot of my problems, but dealing with some "emotional and mental" issues has also been very healing.  Your mileage may vary, but I'm telling you my experience.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Kyosha Nim
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My Diabetes book finally arrived. I read that today.


Kind Regards PC. FIfHI Swami III Pro

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Wednesday, June 23, 2010, 11:13am Report to Moderator Report to Moderator

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(For those who need outsider things to guide them.. think of finding BTD/GENO as divine intervention.. )

Food sensitivity form having been exposed to (milk) for a long time is much easier to understand than any other hypothesis.. heal the gut and heal the mind.. M is so responsive that it is easy to heal her.. heal her and heal HER family ,, the shock of seeing her react to everyday foods was scary, discovering the good and then letting go of that fear is the right thing to do.. Letting her eat those things that leave her comfortable for a while will heal the spirit of the whole family.  Her reactions seem to be diminishing as you learned that she is on individual, a person in her own rights, a girl walking her own path.. what a wonderful discovery so simply shown/done with foods that are good for her.  So easy fixed and so much learned from it.. and in a year or two when her innards have healed somewhat ( on simple good food) then she will reach out and partake of life and show the world that healing from within is possible..  no need for more than that.. she is well on her way and as she grows she will discover her own value, her own love for some things and her own discarding of others.. the chin may be her guide.. and later some day she will discover some book that will explain her reason for doing that selecting and then she will come and join this chat group and pose some question or another, having long forgotten why her dad was so frantic at first, and why he became so trusting and relaxed that M would find her way.. I trust BTD?GENO.. and I trust M.. with it she has spunk, she has what it takes to grab life and have fun with it...  

(and if her body has something that is truly there like mercury - or not.. like candida - or not.. like, like, like - or not .. her body (and your's) will heal with BTD/GENO ALL by it self, in its proper form and on its own proper scheduale..every time with Beneficial foods.. ( trust that too)

Happy Fathers day!!!


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Kyosha Nim
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Gender: Male
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Thanks Goldie darlin.

Diabetic book is a great read by the way i think every O should buy it. actually after reading it possibly everyone should buy it.


Kind Regards PC. FIfHI Swami III Pro

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PCUK-Positive
Wednesday, June 23, 2010, 12:59pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
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Age: 53
I bought the footintol.com books regarding this, read them all last night. god what a mess mistakes all over the place, contradiction after contradiction.

asked thema  question on quinoa as there was no mention of it anywhere, there was reply suggested i buy a support version which cost loads and is probably rubbish so be warned

there 100 money back guarantee is very cleverly weighted against getting your money back.

i had to buy it but you shouldn't iif i knew what was in it i would have bought a proper book and saved a load of money.


Kind Regards PC. FIfHI Swami III Pro

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TJ
Wednesday, June 23, 2010, 2:44pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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PC, I'm sorry to hear about you getting taken!  What a shame that people out there take advantage of those who are sick and searching for answers.
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PCUK-Positive
Thursday, June 24, 2010, 10:12am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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Age: 53
They will getthe comupence in hell. lol


Kind Regards PC. FIfHI Swami III Pro

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Possum
Thursday, June 24, 2010, 10:45am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Quoted from PCUK-Positive
They will getthe comupence in hell. lol
I thought that read "computance" some sort of computer hell... isn't there some Bill Gates joke re that....along those lines??!!
Sorry re your bad experience pc!! Bummmer!!
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PCUK-Positive
Thursday, June 24, 2010, 11:16am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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Location: UK
Age: 53
they are a distant memory already just had some organic beef fillet with broccoli - feel much better now lol


Kind Regards PC. FIfHI Swami III Pro

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TJ
Thursday, June 24, 2010, 11:35am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Age: 39
lol
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PCUK-Positive
Thursday, June 24, 2010, 11:47am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53
hi tj , just re reading diabetic book at the mo and turned to type B page 107. suggest you read that chapter if you haven't already .

notice you are a non secretor too.

talks about B and metabolic syndrome, hypOglycemia, triglycerides, and odema - how compliant are you and how much of the following do yo eat (if you don't mind me asking)

chicken
lentils, peanuts, sesame seeds,
corn potatoes
wheat, buck wheat
processed sugar.



Kind Regards PC. FIfHI Swami III Pro

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TJ
Friday, June 25, 2010, 9:39pm Report to Moderator Report to Moderator

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Kyosha Nim
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Age: 39
I don't have the diabetes book.

These are basically the "red flags".  Out of that list, I have traces of potato (potato starch in the shredded mozzarella cheese), occasional small amounts of sugar, and traces of corn starch as an additive to supplements and a few foods.  None of the rest!
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Friday, June 25, 2010, 10:45pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
as a matter of interest what small amounts of sugar say for example over a week. and how about listing the fruit you would eat over a week (if you don't mind.)


Kind Regards PC. FIfHI Swami III Pro

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Goldie
Friday, June 25, 2010, 10:48pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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Quoted Text
there 100 money back guarantee is very cleverly weighted against getting your money back.

i had to buy it but you shouldn't iif i knew what was in it i would have bought a proper book and saved a load of money.


dID YOU PAY BY CREDIT CARD?? SOMETIMES THAT AFFORDS YOU 3 MONTH TO RETURN..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Goldie
Friday, June 25, 2010, 10:49pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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p/c WHAT HAS IMPRESSED YOU SO FAR IN THAT BOOK??


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
Friday, June 25, 2010, 11:06pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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The money is just not that important to me, life is too short and what goes around come around, and maybe they are not dishonest but merely arrogant or stupid. either way they do not deserve my time.

since checking everything in the books form that site actually nothing impresses me. it would be useful for someone who has no idea and is possibly better than knowing nothing - but dangerous because of all the hot air about being the only this and the only that about food intolerances. but it is flawed and full of obvious errors a that a child would spot. so i don't trust the advice and without trust it is worse than useless. one page warns you never to eat x, 3 pages later x is on a menu and these types of errors are all over the place which makes me think that it is designed to get you to get the more expensive option that includes support. real amateurs.


Kind Regards PC. FIfHI Swami III Pro

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Friday, June 25, 2010, 11:14pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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Location: UK
Age: 53
By the way - Emily's face id clear as a whistle. no problems with food, although some issues still around re environmental air issues. perfume, and dust today at the library. also a problem with the dust and inks in books which is quiet common. but compared to what we have been through it a breeze.

so another week and a half of low sugar diet and we then look to see thresholds to confirm our thinking. (very slowly. and we are also seeing a highly recommended paediatric allergies consultant. jst to cover all the bases.

made her some home made paneer cheese tonight for a picnic on Sunday "jazz in the park" now that will be a test. grass, sun (hopefully). to go along with her home made lamb meatball and turkey sausages (again all 100 compliant and home made and organic.

we are also having roast organic lamb before we go so she will be filled up a bit. hope she likes it as I'm missing the Spanish grand pix for it. no contest lol.


Kind Regards PC. FIfHI Swami III Pro

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TJ
Saturday, June 26, 2010, 1:07am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Age: 39
Quoted from PCUK-Positive
as a matter of interest what small amounts of sugar say for example over a week. and how about listing the fruit you would eat over a week (if you don't mind.)
Most weeks no sugar.  It's very much an occasional thing.  The steak on Tuesday had some can sugar in the marinade.  I wouldn't have had that if I'd know it was there.  (If you're interested in that story, it's posted at the end of the "Eye-opening articles about Celiac Disease" thread).  Occasionally my brother makes gluten-free baked goods that are moderately compliant for me, but he lives on the other end of NC!

I haven't been eating much fruit lately, either.  I had a kiwi at lunch.  It didn't agree with me.  If I'd eaten only half I think I would have been ok, but I can't say for sure.  I've also allowed myself banana, grapefruit, lime, blueberry, and strawberry.  But max two servings per day lately.

PC, glad to hear that Emily is making progress!

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Possum
Saturday, June 26, 2010, 1:44am Report to Moderator Report to Moderator

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Ee Dan
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Quoted from PCUK-Positive
By the way - Emily's face id clear as a whistle. Wonderful

...made her some home made paneer cheese tonight for a picnic on Sunday "jazz in the park" now that will be a test. grass, sun (hopefully)....hope she likes it as I'm missing the Spanish grand pix for it. no contest lol.
What a great Dad you are - all the research you do & effort you go to!! I'm glad you are getting results!! I am also amazed lately how the lack of "sugar" or carbs in any form is the only thing that really helps me!!

Again heaps of thanks to you TJ for alerting me to this malabsorption thing in the first place
I am almost convinced from reactions I get, (& an article I read) of the possibility that they pump the cheaper cuts of beef full of sugar water to increase the weight before mincing it
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PCUK-Positive
Saturday, June 26, 2010, 9:21am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53
I would half the fruit you eat and see if it gets half better for a week.

interesting idea about the beef - I'll add a bit of research into that -



Kind Regards PC. FIfHI Swami III Pro

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Possum
Saturday, June 26, 2010, 9:39am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Quoted from PCUK-Positive
I would half the fruit you eat and see if it gets half better for a week.
Hmmm half of nothing??!! Let's see...still nothing
I am not even thinking of reintroducing any fruit until my skin settles down again  Latest reaction was from a so called "antioxidant" (preservative 385) in some rice bran mayonnaise, which now that I look again at the label, does have "lemon juice from concentrate" in it also
I was, at the same time, trying to get into a morning habit of organic lemon juice in water...maybe all combined wasn't good...
Btw that article on beef was a UK one...
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TJ
Saturday, June 26, 2010, 10:19am Report to Moderator Report to Moderator

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Kyosha Nim
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At least the ingredients have to be listed on the beef.  I just didn't read them because I didn't expect there to be a "list" of ingredients--just "beef".
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Goldie
Saturday, June 26, 2010, 11:58am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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P/C TJ... I for my self.. I don't buy precooked or manufactured and messed with anything.. (as a rule-- going out is another issue -- but then I KNOW what the issue is-- it's me making bad choices... )

I find that making my own everything fresh is all I need.. in meat I just cut it in small thin strips with a fine knife.. or a cuisine type machine..  even meat might have water added, salt added, to keep it looking red???  ..  but fresh at least it cooks out??

BUT THE SUGAR issue is interesting...  I wonder if being on the diabetic BTD is the trick there?? but truth I would not have thought that even fruit could be that much of on issue..  

Quoted Text
I haven't been eating much fruit lately, either.  I had a kiwi at lunch.  It didn't agree with me.  If I'd eaten only half I think I would have been ok, but I can't say for sure.  I've also allowed myself banana, grapefruit, lime, blueberry, and strawberry.  But max two servings per day lately.


just as a precaution.. some of the fruits TJ ate is not on E list for O..   But you know many 30 years ago I started no sugar over night and a blue depression I had (totally unaware till then) went away.. totally accidentally.. just wanted to loose weight.. then I read that this is indeed so.. depression gone..  

but then for year before BTD I followed DR Atkins diet suggestions of meat and LOW carb foods.. fruit where the highest carbs so I just seldom ate them.. I did not even know HOW much GOOD I did my self...

I am certain had I not done all these things instinctively and then converted to BTD I would have been much worse health wise ... many years earlier..

so the good you do -- is now is steeped in my 32 years of belli aches and then fighting all the docs for the right to eat meat--- E is a lucky girl..

now how did you make the Paneer?? what does it taste like? that is not on the BTD.. but have you tested her ?? is she btd or geno? if you answered I never saw it..
  how do you make your own sausages??


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
Saturday, June 26, 2010, 3:55pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Location: UK
Age: 53
paneerr is on both mine and Amber's Swami, so we figured if we are going to stop fruit for a while we'll let a tiny amount of home made cottage /Paneer cheese) actually it rather bland, but you can spice it up or cook it it 's a bit like tofu in looks and Emily had a bit on turkey, just a tiny cude she thought it was wonderful. bless.

of course after i said that Emily's face was perfect last night, she scratched her face sometime during the night. the one noght that her scratch mites were forgotten to be washed. so again our fault you just can't be thorough and careful enough.

the cheese is easy peasy to make. goggle "show me the curry paneer" and watch the video it's to indian ladies and they are great.


Kind Regards PC. FIfHI Swami III Pro

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Goldie
Saturday, June 26, 2010, 5:32pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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/C thanks for the info.. but keep all new food away from all other known non reactive foods.. inbetween..in the morning at 10 or so would be best .. so that you really can see the results before she goes to sleep then if she has a reaction give her water to wash it out.. then by night she should be ok again..

what exactly is her non reactive foods she can eat so far without restricktion and what with restrictions?? do you mind typing it up again as it has changed.. and I would like to just look at it for some commom thread..  

p/s Mitts for mits..   


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
Saturday, June 26, 2010, 6:39pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Location: UK
Age: 53
the list is basically allowable meats, poultry and fish, non fructose veg or low, no sugars at the mo although she seems okay with glucose, but we only tried tiny tiny amount. and she had just drank a large glass of sparkling water. so difficult to be sure. which one helped. quinoa seems not to annoy her but we are limiting carbs a bit too. jst until we gaet to the bottom of this.

but basically it's eitehr carbs or just specifically fructose. this of course is in a ddition to her reacting to perfumes, chemical and then the dust mites not allowing the skin to recover unless she is soaked in olive oil and the more expensive the less they go near her. so we get cold pressed, unfiltered organic extra virgin olive oil. from Italy Il Casolare.

the base veg that we give her are broccoli, abd green beans. oh and beef is now reduced, as is chicken. again for the moemnt since she tested intolerant ot beef and her moods are shocking when she eats chicken. we left them both for about a months and then introduced one meal a week. the beef was slighly better but the chicken is now just gven once a week. beef once a month to see what happens. banana 1/3 is now once every two weeks. lemon and lime seems good, but she only gets a twist with her sparklling water alternated every otherd day and sometoimes this is skipped too. tomorrow is a slightly relaxed day becasue sf the picnic. and of course if england beat germany she can have a grape lol. if Jenson Button wins the Spanish Grand prix she can have and ise cream. so that at least is possible.

with all my research i missed that on our swami Dr D had already had Fructose as an avoid in the albeit in the condiments section.missed beacuase we never use any stuff like that but it has to go toward the sugar thing and FM.


Kind Regards PC. FIfHI Swami III Pro

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PCUK-Positive
Saturday, June 26, 2010, 6:47pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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found the fructose thing on the condiments section because i have been analysing every item of food on swam and it was on the last page.... including honey high fructose corn syrup, etc etc. i would have picked up on it more quickly if i had noticed that a few months ago. that helps me know I'm in the right direction knowing that Emily is then again much more sensitive we have to look deeper still. which is exactly what I've done.


Kind Regards PC. FIfHI Swami III Pro

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TJ
Saturday, June 26, 2010, 6:48pm Report to Moderator Report to Moderator

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Kyosha Nim
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Fructose listed as an ingredient on its own is usually derived from corn starch here in the USA.  It could also come from wheat starch.
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PCUK-Positive
Saturday, June 26, 2010, 7:01pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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both are listed separately.


Kind Regards PC. FIfHI Swami III Pro

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TJ
Saturday, June 26, 2010, 7:07pm Report to Moderator Report to Moderator

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Kyosha Nim
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What I mean is that additive fructose is usually made from corn (or wheat) starch.  SOOO, it still has the corn/wheat lectins in it, on top of being fructose!  I think that's more the reason why fructose is a toxin in the GTD.
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PCUK-Positive
Saturday, June 26, 2010, 9:08pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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the more i read about research into fructose absorption the more i realise that some of these researchers are not living in the real world. so many un answered questions. it's all about funding i think.... so annoying.


Kind Regards PC. FIfHI Swami III Pro

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Possum
Sunday, June 27, 2010, 1:54am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Quoted from PCUK-Positive
the more i read about research into fructose absorption the more i realise that some of these researchers are not living in the real world. so many un answered questions. it's all about funding i think.... so annoying.
It is such a new area - that is possibly why... Apparently Australia is ahead of the world (even leading America) in this field...
"The diet for fructose malabsorption is still being researched and for that reason the food lists have changed over the years. Some of our dietitians are involved directly in that research. We do not provide the food lists without a consultation as fructose is often only a small part of the problem and we need to assess your tolerance to other potential triggers" Copyright 2009 Diet Solutions.
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PCUK-Positive
Monday, June 28, 2010, 2:02pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Kind Regards PC. FIfHI Swami III Pro

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Maria Giovanna
Monday, June 28, 2010, 2:37pm Report to Moderator Report to Moderator

Teacher
Kyosha Nim
Language Expert
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Did you happen to find links to celiac disease and fructose problems as for lactose and casein intolerance it is common to be triggered from celiac? TIA ! Maria Giovanna


INTJ Italy celiac��
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PCUK-Positive
Monday, June 28, 2010, 2:44pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Yes thanks looking into all of that. having said that Emily is now (apart from parties and day's out) totally wheat, gluten, corn, dairy free and obviously on a low fairly fructose diet. almost fruit free.

I'll be speaking to Gastro friend shortly too.


Kind Regards PC. FIfHI Swami III Pro

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Maria Giovanna
Monday, June 28, 2010, 3:01pm Report to Moderator Report to Moderator

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Kyosha Nim
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My question is how probable to have FM for a celiac as me, without complaints and ailments when compliant  with your actual info ? may be too specific but if you know anything thanks ! Maria Giovanna


INTJ Italy celiac��
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Goldie
Monday, June 28, 2010, 4:17pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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Gender: Female
Location: East Coast
Thanks .. so much makes sense.. I dont eat chicken unless I am out as a cheat-- not worth it.. it just was not on my diet so I forgot about it.. just as well ..

the sugar thing will be interesting .. let me know as much as possible.. (i need to learn all I can***)  IS IT NOT NICE TO HAVE FOUND OUT WITHOUT DOC and their test.. dollars by the pound for other things.. AND KNOWING THAT if she has issues they are fixable and no cause for ALARM.. a glass of water fixes all..  

now a q?  do you possibly have flees in her bad ?? crazy for asking.. but what do dustmite thingies look like???

*** on even exchange for all the "take it easy and slow"  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
Monday, June 28, 2010, 7:34pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Thanks for those links PC.
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PCUK-Positive
Monday, June 28, 2010, 9:13pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
- Goldie -I have learnt never to rule out anything but fleas are unlikely now as no place for them to hide, no carpets, new bed, spotless new floors and roomed sealed for bad air from walls and lofts, air purifiers ans daytime airing. no furniture and no soft toys until problem sorted. she has done a lot of painting and drawing while not at school in the afternoon and all outside. we have no pets and the garden is very secure.

dust mites however are always present - goggle dust mite and picture to take a look. tiny but always around. even they are not so much of a problem as long as the skin is not broken which it rarely is now.



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Goldie
Monday, June 28, 2010, 9:43pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,832
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Location: East Coast
but how do you know its mites?? is it a rash or a bite??

my next door neighbors just got on infestation of I think flees, as one guy got all bitten on his legs.. many small bites..

and flees might be in a mattrazze???? but I believe you all around as you have dont your work..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
Monday, June 28, 2010, 10:21pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
sorry should have explained, the dust mites are thougt to inhibit the normal repair of damaged skin - found link in rare research a while ago - can see the link myself pretty obvious really but not sure if others do. there are no bites there was only scracthes from itching recently. but you have to let the skin heal completely to se that.


Kind Regards PC. FIfHI Swami III Pro

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Possum
Monday, June 28, 2010, 10:25pm Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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You can have allergies to the dust mites themselves can't you?
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PCUK-Positive
Monday, June 28, 2010, 11:08pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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Location: UK
Age: 53
yes you can, even if you don't test positive to them. Emily is sensitive to storage mites which are an agricultural version of dust mites so to speak. there are also non European version (from memory).



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Monday, June 28, 2010, 11:15pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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This relates to HEREDITORY FRUCTOSE INTOLERANCE but is worth a read. docto D might even be interested inthe bit at the end relating to genes which i have highlightrd in RED

History
•As in other autosomal recessive disorders, a pedigree is unlikely to reveal other family members with fructose 1-phosphate aldolase deficiency. Individuals who are obligate heterozygotes do not demonstrate the symptoms of hereditary fructose intolerance (HFI).
•Because the history may be vital to the diagnosis, the importance of taking an extensive dietary history, especially in individuals with hereditary fructose intolerance, cannot be overemphasized. Many soy formulas contain sucrose as a carbohydrate source that may supply enough fructose to cause clinical symptoms.
•Some affected infants refuse all sweets after becoming ill early in life; thus, a history of food rejection is also important.
Physical
•A clinically well patient demonstrates no abnormal physical findings.
•Acutely ill children are often tachypneic because of acidosis. They have enlarged liver and are slightly-to-moderately icteric. Accompanying hypoglycemia may cause tremors or seizures, as well as diaphoresis.
•Abdominal pain may be observed.3 •Exceptionally good dental hygiene is a common feature among children with hereditary fructose intolerance, presumably because of diminished carbohydrate intake.
Causes
Hereditary fructose intolerance is inherited as an autosomal recessive trait. The gene has been mapped to one locus, band 9q22.3.
•As of 1995, 21 mutations had been reported at this locus, most of them single-base substitutions.4



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Goldie
Monday, June 28, 2010, 11:17pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,832
Gender: Female
Location: East Coast
well all seems to point to the feces of the mites (from on ones own body) .. but once the sheets are washed in hot that should no longer be on issue.. but I really have no clue.. ====== I would faster wonder about taking showers or bathes that might be irritating the skin and result in itching when it dryes out over night.. but BY all means I am not clairvoiyant..

I think itches are more often along the  way of SYSTEMIC (internal) issues needing Benadril to get rid of on itch.. NOW I don't suggest that for a child as I know little about that either,  

but to me I would let the sensitive person/child eat all non responcive food for 6 weeks and see if she did not get better.. I would be surprised if she was not much better..

... BUT I also mean not allowing anything else.. I would be perfectly happy if the child would eat 3 SAFE items every day exclusively.. and let her insides heal.. BUT that takes trust that she will heal..

YET I am not there.. BUT I do believe that the constant adding of more of this and more of that (even in small amounts) does not allow for healing.. ONE item may not put ME over the top of food tolerance but add another AND I will respond positively or not..    

but I also have seen people stay a year on a total restrictive diet to get rid of a certain condition.. and if that is what it takes, then so be it..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Possum
Monday, June 28, 2010, 11:24pm Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
Posts: 5,394
Gender: Female
Location: Wellington, New Zealand
Age: 53
Quoted from PCUK-Positive
This relates to HEREDITORY FRUCTOSE INTOLERANCE but is worth a read. docto D might even be interested inthe bit at the end relating to genes which i have highlightrd in RED

History
•As in other autosomal recessive disorders, a pedigree is unlikely to reveal other family members with fructose 1-phosphate aldolase deficiency. Individuals who are obligate heterozygotes do not demonstrate the symptoms of hereditary fructose intolerance (HFI).
•Because the history may be vital to the diagnosis, the importance of taking an extensive dietary history, especially in individuals with hereditary fructose intolerance, cannot be overemphasized. Many soy formulas contain sucrose as a carbohydrate source that may supply enough fructose to cause clinical symptoms.
•Some affected infants refuse all sweets after becoming ill early in life; thus, a history of food rejection is also important.
Physical
•A clinically well patient demonstrates no abnormal physical findings.
•Acutely ill children are often tachypneic because of acidosis. They have enlarged liver and are slightly-to-moderately icteric. Accompanying hypoglycemia may cause tremors or seizures, as well as diaphoresis.
•Abdominal pain may be observed.3 •Exceptionally good dental hygiene is a common feature among children with hereditary fructose intolerance, presumably because of diminished carbohydrate intake.
Causes
Hereditary fructose intolerance is inherited as an autosomal recessive trait. The gene has been mapped to one locus, band 9q22.3.
•As of 1995, 21 mutations had been reported at this locus, most of them single-base substitutions.4

Very interesting pc!! As always; another good find...
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PCUK-Positive
Monday, June 28, 2010, 11:55pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Came across this which will help.

Yogurts – Non-fruit yogurts may contain fructose (vanilla, coffee).  For example, Yoplait’s vanilla yogurt does not list fructose; however, General Mills confirmed that fructose falls under the category of ‘natural flavorings

Medicines – Specifically for children like Children’s Tylenol or Advil or Benedryl and Zithromax, Amoxicillin…  Nearly ALL have high levels of fructose, and should be AVOIDED.

and the beauty of sugar free c**p - (play oon words) forgive me....

Sugar Alcohol Intolerance

A number of Sugar-free, sugar alcohol-based sweetners (sugar substitutes) are available on the market. These include Sorbitol, Mannitol and Xylitol. The reason these are low calorie sweetners is that they are very poorly digested and absorbed in the digestive tract, and are thus relatively 'inert' despite being sweet to the taste. They are thus used in a variety of products, including sweets and some medicines, particularly sublingual and chewable supplements, which often contain both Sorbitol and Mannitol, and sometimes all 3 (as well as Stevia)! Always read the label on sublingual and chewable supplements.

Unfortunately, as these sugar-alcohol sweeteners are poorly digested and absorbed, they pass through the digestive tract, and are digested to some degree by the bacteria in the colon, resulting in excess wind. These alcohol sugars are also laxative in their action, as dissolved particles in the chyme and stools attract water from the intestinal walls and bloodstream, and excessive consumption may also result in diarrhea. In general, alcohol sugars are to be avoided and a much better choice (for occasional use) is the plant-based Stevia, which does not produce these symptoms. (not my words and others disagree by the way)!


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Tuesday, June 29, 2010, 12:02am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
missed a post from maria somehow.

i came across some mention of there being a link to all the intolerances and gut leakage. noted it somewhere and it will be filled or posted somewhere but for the moment can only find in my head which is not much use to you.

tendency's and individuals but the theme is there as the Dr's D have found long ago.

it's correcting the problems that seems to be so varied to me. some quick some slow and plenty in between -

i think i have read too much today. lol to sleep perchance not to dream oxo


Kind Regards PC. FIfHI Swami III Pro

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PCUK-Positive
Tuesday, June 29, 2010, 12:04am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53


Kind Regards PC. FIfHI Swami III Pro

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Possum
Tuesday, June 29, 2010, 12:11am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Dare I say it: "sweet dreams"??!!
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PCUK-Positive
Tuesday, June 29, 2010, 12:18am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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Age: 53
very good lol nytol


Kind Regards PC. FIfHI Swami III Pro

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Possum
Tuesday, June 29, 2010, 12:30am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Quoted from PCUK-Positive
nytol
after analysing lists...that "word" looks like another form of alcohol sugar...

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PCUK-Positive
Tuesday, June 29, 2010, 10:43am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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well spotted possum, that was done on purpose by the way lol. checking to see if you were paying attention.


Kind Regards PC. FIfHI Swami III Pro

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Possum
Tuesday, June 29, 2010, 10:46am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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TJ
Tuesday, June 29, 2010, 4:43pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Age: 39
I had hoped to have finished up the food intolerance guide I started by now, but I'm had so many other little personal intolerances come up lately, and they've kept me busy or sick!  Good to see that y'all are still doing research.  I'm adding it to my collection!
Quoted from PCUK-Positive
In general, alcohol sugars are to be avoided and a much better choice (for occasional use) is the plant-based Stevia, which does not produce these symptoms. (not my words and others disagree by the way)!
I will disagree.  But then, Stevia is a Toxin for Nomads.
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PCUK-Positive
Tuesday, June 29, 2010, 6:09pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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tj, that's why i put rhe (not my words) in brackets as i disagree too - but for fullness i quoted person accurately. they are all rubbish by my thinking. kind regards


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Goldie
Wednesday, June 30, 2010, 12:03pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,832
Gender: Female
Location: East Coast
Ok the above is a good sample of nearly all sorts of things not on BTD for gatherer or BTD for O or diabetic sugar sensitiveties..

Most of the above breakfast foods are sugar reaction triggering her hunger and her personality..  

and all or most of the foods listed above to my way of thinking are way to adult like foods to even consider.

if any of the avoids are eaten once in 4 days they will mess with the internal mechanisms that need time to heal.

if you consider that even one item can make you ill then immagin 5 different items..

to indicate how little little is .. immagin a little salt in water.. ok but add another 3 grains and you can drink it anymore .. so ine sprig or one spray or one pill or one smidgen in any form will not allow her super sensitive body to relax.. even passing by a backery might trigger a reaction internally..

I feel for you all but I also feel that simple means simple not over 50 items listed (avoids 99%)  above
that I as adult would not eat over a 10 year span even..

I wish you could settle on the btd for diabetes as far as itmes are concerned and NOT as far as choices..

the 'choices' are only a 'listing'  
.. if she can eat one item out of every section then she can eat that one item for month on end, without being policed about it.. just eat those few items whenever she feels the need.. self reliancy will build trust ..  if she does well with one item per meal then she is ok for many month to come.  if she has a chance to heal while at home then parties will only set her back a little..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
Wednesday, June 30, 2010, 12:15pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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Location: UK
Age: 53
As usual Goldie you have lost me. i pretty sure we actually agree on most things perhaps you are just taking my post out of context. and assuming my continued research is changing her diet a lot.

M's diet is pretty limited and pretty consistent and will be for a while with no great changes. she basically get lots of meat and fish and few fruits and a sprinkling of veg. plus eggs and lemon juice.

we found someone had added corn flour which i put a stop to and chocolate at school. which has no stopped. both of which explain a lot.

my comments re sugars etc are for others more than Emily. she already doesn't have much and is responding very well. the odd little treat is being stretched out so she doesn't notice so much. from once a week to once a month eventually.

I'm seeing other doctors to triple check i or they haven't missed something else. hence my research goes on and is interesting anyway.

people here helped me a great deal so if i can help others that continues the cycle "quid pro quo"

oxo


Kind Regards PC. FIfHI Swami III Pro

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Goldie
Wednesday, June 30, 2010, 1:18pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,832
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Location: East Coast
Quoted Text
we found someone had added corn flour which I put a stop to and chocolate at school. which has no stopped. both of which explain a lot


Yes walking past a bakery having used cinnamon makes me feel satisfied.. walking past a kitchen having used garlic can make me throw up.. for some a brush with the wrong nuts will give them hives.. the smell of chicken soup makes me ill ( chicken I see as a bad food no matter what unless grown at home with food you know about- like organic worms) chicken eggs when the chicken is feed ONLY corn or fish pellets - well you figure it..

onions browned become sugar.. banana a staple for years are now once a month.. so much to 'absorb' but
the new book should guide you .. I trust -- BTD for diabetic..and gatherer as 'background'  (maybe only for a year) will help her a lot unless she loses to much weight.. or has a tape worm.. )    

when you look at the foods you thought good for her (your above) list then you see how far you have come.. AND how without this board you would still be messing her up (and be afraid and scared)... so no issues with few foods repeated all throughout each half day as often as she is hungry.. you are on your way .. but careful with fruit at night as it might make her itch during sleep hours later.. like I said.. I truly feel for you all..

is this better written??


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
Saturday, July 3, 2010, 3:16am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Age: 39
It seems like cooked/canned fruits are a bigger problem than raw fruits.  I suspect this would hold true for fruit juices also.  I did some reading about this, and glucose in solution is converted to fructose at temperatures used in canning.  I guess that also explains why canned or cooked fruit is sweeter than its raw counterpart.   So, my suspicion that store-bought fruit juice is no good for me has an explanation, even for grapefruit juice.  I'll have to try some fresh-squeezed juice to see if that works ok for me.

I had some yogurt today, no sweetener, with just blueberries and some vanilla extract.  It didn't sit well.  Maybe what "fructmal" girl said in her blog is true, about not adding more piranha's to the piranha party in your gut!  So I will be laying off the yogurt and probiotics for now, once I use up the last of the yogurt.  Maybe I'll nuke it in the microwave to kill those little buggers!

On a brighter note, the blueberries by themselves, in moderation, are no trouble, and neither are the strawberries.  Pineapple is ok if used very sparingly, but maybe I'd do better to stick with bromelain pills!  A whole pink grapefruit, raw carrots, cooked sweet potatoes, peas, and green beans don't bother me either.

I'm overnight soaking some brown jasmine rice to cook and try tomorrow.  I had been using that bottled lemon juice in the soaking water with my brown rice, and the preservatives may have been the culprit there!  I hope....
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Possum
Saturday, July 3, 2010, 5:37am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Quoted from TJ
It seems like cooked/canned fruits are a bigger problem than raw fruits.  I suspect this would hold true for fruit juices also.  I did some reading about this, and glucose in solution is converted to fructose at temperatures used in canning.  I guess that also explains why canned or cooked fruit is sweeter than its raw counterpart.   So, my suspicion that store-bought fruit juice is no good for me has an explanation, even for grapefruit juice.  I'll have to try some fresh-squeezed juice to see if that works ok for me. I'm sure I read that tinned fruit in light syrup is better than in fruit juice due to balancing the fructose with sucrose?

I had some yogurt today, no sweetener, with just blueberries and some vanilla extract.  It didn't sit well.  Maybe what "fructmal" girl said in her blog is true, about not adding more piranha's to the piranha party in your gut!  So I will be laying off the yogurt and probiotics for now, once I use up the last of the yogurt.  Maybe I'll nuke it in the microwave to kill those little buggers! If you add a tiny bit of sugar, it would kill the bacteria & you may digest it better - again working on the principle above

On a brighter note, the blueberries by themselves, in moderation, are no trouble, and neither are the strawberries.  Pineapple is ok if used very sparingly, but maybe I'd do better to stick with bromelain pills!  A whole pink grapefruit, raw carrots, cooked sweet potatoes, peas, and green beans don't bother me either.
I assume not in the one meal??!!
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PCUK-Positive
Saturday, July 3, 2010, 11:33am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
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Age: 53
brown rice is higher in fructose than white apparently. and although i don't touch it try natural yogurt with no sugar. supposed to be better.


yeast problems seems to coincide with the fructose so be aware of that also keeps the carbs generally low.


Kind Regards PC. FIfHI Swami III Pro

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TJ
Saturday, July 3, 2010, 12:37pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Quoted from Possum
I'm sure I read that tinned fruit in light syrup is better than in fruit juice due to balancing the fructose with sucrose?
I'm even talking about fruit canned in its own juice.  This is about the fruit itself, not just the packing liquid!  I believe the process of cooking/canning converts some of the glucose in the fruit into fructose.
Quoted from Possum
I assume not in the one meal??!!
Of course not!
Quoted from PCUK-Positive
try natural yogurt with no sugar. supposed to be better.
I only buy plain, unsweetened yogurt.
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PCUK-Positive
Sunday, July 4, 2010, 8:25pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Entertaining site that might appeal to younger people with a fructose problem. plus of course those of us who feel young anyway....

http://avthompson.wordpress.com/what-is-fructose-malabsorption-disorder/

eg

Don’t get too worried, though. A tried and true “trick” of Fructmals is that we know that one molecule of glucose (dextrose) HELPS US ABSORB one molecule of fructose. For some reason, glucose takes fructose by the hand and carries it through the intestinal wall – assisting absorption.

For this reason, we usually carry dextrose/glucose powder or tablets around with us. I have a tube of Dex4 tablets and a roll of Dextrosol tablets in my purse. In Canada we have a candy called Rockets
http://tinyurl.com/6eo4vz
that are almost pure dextrose. In America the same candies are called Smarties. Many of us use these candies in a pinch.

This trick only works in SMALL doses. For emergencies. When you just realized you accidentally had some fructose. Pop some dextrose tablets and you probably won’t have a reaction (provided the accidental dose was small. You CANNOT have a couple of tablets and then go….eat a slice of apple pie. Too much fructose. No amount of dextrose/glucose will help you).


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Monday, July 5, 2010, 12:00am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Looking for deficiencies with regard to FM came across the following comment - I'll look into it further

Fructose malabsorption can also result in a number of key nutrient deficiencies including folic acid and zinc


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Monday, July 5, 2010, 1:56am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
pretty sure i listed this site earlier but worth a second look for anyone suffering from FM.

http://sites.google.com/site/fructmal/home


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Lola
Monday, July 5, 2010, 4:04am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
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Age: 57
gosh....all those sound corn derived to me!!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Possum
Monday, July 5, 2010, 5:05am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
Posts: 5,394
Gender: Female
Location: Wellington, New Zealand
Age: 53
Yeah Lola...as you know a lot of stuff on sites for celiac &/or fructose malabsorption sufferers aren't concerned with corn derived products I feel like saying to quite a few ppl on there (& I did to one in a PM) that if you followed recommendations for your BT you would find it a whole lot easier!!
As it is, a lot of them are trying to play a guessing game, while picking their way through a mine field...
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Lola
Monday, July 5, 2010, 5:13am Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
Posts: 50,989
Gender: Female
Location: ''eternal spring'' Cuernavaca - Mex.
Age: 57
if they insist on using C A .....
suggest they apply it as a facial scrub instead!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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PCUK-Positive
Monday, July 5, 2010, 11:14am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Tuesday, July 6, 2010, 1:24am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
Virtually all dextrose manufactured in the USA in derived from corn starch.   Seeing how corn lectin agglutinates B blood cells, I think I'll have to pass!
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TJ
Friday, July 9, 2010, 10:07pm Report to Moderator Report to Moderator

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Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
Here is the primer I wrote, a piece at a time.  I'm not bothering to include all the fancy formatting though, just enough to organize it.

What is Fructose?

Fructose is a single sugar, or monosaccaride.  Fructose is a part of table sugar, or sucrose, which is formed by chemically bonding fructose with glucose (blood sugar), another single sugar.  Fructose is what makes most fruits taste sweet.  Fructose is also found in honey, molasses, and agave syrup.  Food manufacturers often use heat and enzymes to convert some of the glucose in corn syrup into fructose, producing high-fructose corn syrup.  This is done because fructose tastes sweeter than glucose, so less is needed to sweeten a food product.  The body has to work to move fructose out of the small intestine into the blood, and uses a molecule called GLUT5 to do so.  (In contrast, glucose moves into the blood passively, without any extra work required.)

What is Fructose Malabsorption?

Clinically, fructose malabsorption is defined as the inability of one's digestive system to absorb at least 25 grams of fructose in one sitting.  Humans are normally able to absorb 25-50 grams of fructose in one sitting or meal.

For my purposes, a more practical definition is that fructose malabsorption happens anytime you eat more fructose than you can absorb.  The amount of fructose you can absorb at one meal can vary, depending on the amount of fructose transport available in your small intestine, and on the other kinds of foods you eat with it.  Eating fructose with fats, proteins, and fiber slows the digestive process, and may allow you to handle more fructose in one meal than if you ate the fructose-containing food alone.

Why Is Fructose Malabsorption Bad?

Ideally, whenever we eat fructose, our bodies will absorb all of it in the small intestine.  When that doesn't happen, the fructose moves into the colon with other waste products.  The presence of fructose in the colon can prevent water from moving out of the colon (because of osmotic pressure), causing diarrhea.

The bacteria and yeast that naturally live in the colon ferment some of the fructose, producing hydrogen, carbon dioxide, and methane, and causing abdominal bloating, cramps, and gas.  Over time, continued exposure to excess fructose can lead to bacterial overgrowth or yeast overgrowth.

     Depression

Scientists at the University of Innsbruck in Austria found that, in fructose malabsorbers, fructose binds with tryptophan, rendering it inabsorbable.  Tryptophan is important for making seratonin and melatonin, so fructose malabsorption can cause depression and difficulty with sleep.

     Bacterial Overgrowth

Bacteria naturally colonize the large intestine, and some of them make their way into the small intestine also.  When there are too many bacteria in the small intestine, they can interfere with digestion, causing malnutrition, constipation, diarrhea, body aches, fatigue, and acne.

The conditions that promote overgrowth of the "good" bacteria that usually inhabit your digestive system are also good for the "bad" bacteria you may ingest with your food, making you more vulnerable to food poisoning and other food-borne bacterial illnesses.

     Yeast Overgrowth

Yeasts are a form of fungus.  In a healthy digestive system, the yeast remains in its yeast form.  However, with abundant food (in the form of fructose or other unabsorbed foods) the yeast can convert to their fungal, or mycelial, form.  These mycelium are basically a colony of fungal cells, much like a mushroom.  The mycelium can grow a rhizome, a root-like projection, which pierces the intestinal wall, creating a condition called "leaky gut".

In this condition, toxins produced by the fungi can easily enter the bloodstream and cause symptoms like headaches/migraines, body aches, fatigue, depression, and anxiety.  Also, the fungi themselves can escape the intestine and colonize in other parts of the body, causing athlete's foot, jock itch, vaginal yeast infections, eczema, psoriasis, thrush (that yellowish-white gunk on your tongue), and other skin problems.

Another problem with leaky gut is that it permits food particles that are not completely digested to enter the bloodstream.  These food particles may be recognized by your immune system as invaders, provoking your immune system to attack, which can cause inflammation and fatigue.  Those food particles may interfere with metabolic processes, also causing fatigue through that channel.

Remember that fungi are nature's trash men, breaking down dead organic material.  When you focus on foods your body can use and avoid foods your body can't, you keep the yeast under control.
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Friday, July 9, 2010, 10:13pm Report to Moderator Report to Moderator

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Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
How Do I Prevent Fructose Malabsorption?

If you have problems with fructose malabsorption, here are some good ways to avoid those unpleasant symptoms.

Limit or avoid foods with more fructose than glucose
Fructose absorption is facilitated by the presence of glucose.  You might imagine that a fructose molecule can "catch a ride" with a glucose molecule on its way into the bloodstream.  So the first rule of prevention is to limit or avoid eating foods that contain more fructose than glucose.  One molecule of glucose has the same mass as one molecule of fructose, so you can figure this out by comparing grams of fructose in a food to grams of glucose.

Here are some common foods with more fructose than glucose (i.e. "excess fructose").  The number in ( ) is the approximate proportion of fructose to glucose (where available).  Lower numbers mean less fructose.  Less ripe fruits have less fructose.

          o cooked or canned fruit*
          o store-bought fruit juice*
          o pear (4.06)
          o apple (2.42)
          o mango (3.22)
          o Asian pear (4.40)
          o star fruit/carambola (3.21)
          o peach (2.32)
          o honey (1.21)
          o honeydew melon (1.46)
          o orange (1.31)
          o pineapple (1.35)
          o watermelon (1.33)
          o sweet cherry (up to 1.5)
          o grape (1.28)
          o guava
          o papaya/pawpaw
          o quince
          o date (1.24)
          o agave syrup

* Beware that cooking or canning converts glucose to fructose--hence the sweeter taste of cooked or canned fruits--so you should avoid any cooked or canned fruits. If you drink fruit juice, only use freshly-squeezed juices from acceptable fruits. Store-bought juices are cooked in the bottling process and are much higher in fructose than raw juice.

Limit foods with a high total sugar content
There are some foods that have more glucose than fructose, but that should still be used with caution because of total sugar content.  Even with help from glucose, the small intestine can only absorb so much fructose in one sitting.  Therefore it is a good practice to limit consumption of any sweet foods.  Dried fruit, fruit juice, candy, and other sweet confections are best limited because of their concentrated sugar.

Avoid eating fructose with sugar alcohols, fructans, and/or galactans
Sugar alcohols, especially sorbitol, are known to inhibit the absorption of fructose.  You can identify sugar alcohols on a list of ingredients by their -tol suffix.  Sugar alcohols, such as sorbitol, xylitol, mannitol, and erythritol, are often used as low-calorie sweeteners.  Many people find that consuming sugar alcohols are problematic even when consumed without fructose, often causing gas or diarrhea.  They also occur naturally in some foods, such as apple, pear, cherry, and stone fruits (i.e. peaches, nectarines, etc.).

Fructans are chains of fructose molecules.  They are poorly absorbed, but can be fermented by intestinal bacteria and yeast (i.e. gut flora).  Some people experience symptoms when eating large amounts of fructans without fructose, but the biggest problem with fructans is that, like sugar alcohols, they inhibit the absorption of fructose.  Inulin, oligofructose, and fructo-oligosaccharide (FOS) are types of fructans.  Some foods that contain significant amounts of fructans are: wheat-based foods, onion, leek, asparagus, globe artichoke, Jerusalem artichoke, chicory root, shallot, garlic, zucchini, mango, persimmon, watermelon, peach, pineapple, brown rice, and grapes.

Galactans, also called galacto-oligosaccharides, are chains of galactose molecules.  Like fructans, they are poorly absorbed and fermented by gut flora.  This is because the human small intestine doesn't produce the enzymes needed to cut up these chains into their individual sugars, which could be absorbed.  Also like fructans, galactans are not much of a problem alone, but mostly when eaten in conjunction with fructose.  Here are some foods that contain galactans: navy bean, kidney bean, green/string bean, black-eyed pea, chickpea (i.e. garbanzo bean), butter bean, lentil, cabbage, yellow bean, and Brussels sprout.
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TJ
Friday, July 9, 2010, 10:20pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
Other Problems with Fructose

Even when fructose is properly absorbed, it can still cause problems!  A study conducted and the University of California at Berkley found these effects from eating fructose:

   1. Four-fold greater intra-abdominal fat accumulation--3% increased intra-abdominal fat with glucose; 14.4% with fructose. (Intraabdominal fat is the variety that blocks insulin responses and causes diabetes and inflammation.)
   2. 13.9% increase in LDL cholesterol but doubled Apoprotein B (an index of the number of LDL particles).
   3. 44.9% increase in small LDL, compared to 13.3% with glucose.
   4. While glucose reduced the net triglyceride response after eating, fructose increased triglycerides 99.2%.

Conclusion

Frankly, it's nearly impossible to eliminate all these foods I've mentioned from your diet, and it's probably not necessary anyway!  You will need to experiment on your own to find out what works for you, and what doesn't.  I've already experienced benefits by implementing some of these ideas (along with others unrelated to fructose).

References

Fructose malabsorption is associated with decreased plasma tryptophan.
Fructose malabsorption and symptoms of irritable bowel syndrome: guidelines for effective dietary management
Goodbye, Fructose
Clinical Ramifications of Malabsorption of Fructose and Other Short-Chain Carbohydrates
Dietary fructose and gastrointestinal symptoms: a review
Sugars & Sweeteners
Table of Fruits and Sugars
The Fructose Malabsorption Diet
Fructose malabsorption
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TJ
Friday, July 9, 2010, 10:20pm Report to Moderator Report to Moderator

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Kyosha Nim
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Location: Midvale, UT, USA
Age: 39
If you have any corrections you think should be made, please post them here.  Thanks!
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Possum
Saturday, July 10, 2010, 12:41am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
Posts: 5,394
Gender: Female
Location: Wellington, New Zealand
Age: 53
Wow - terrific work TJ Once again, I can't thank you (Shelly & PC) enough for putting the last bits of this puzzle together for me... I am no longer getting breakouts from food I eat & feel way more in control, & all in the space of a couple of months... Armed with this sort of info, along with the GTD/BTD I can make even more informed (perhaps more understood) choices...  instead of experiencing the dread of eating something inadvertently
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Saturday, July 10, 2010, 12:52am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
Posts: 5,394
Gender: Female
Location: Wellington, New Zealand
Age: 53
"Galactans, also called galacto-oligosaccharides, are chains of galactose molecules.  Like fructans, they are poorly absorbed and fermented by gut flora.  This is because the human small intestine doesn't produce the enzymes needed to cut up these chains into their individual sugars, which could be absorbed.  Also like fructans, galactans are not much of a problem alone, but mostly when eaten in conjuction* with fructose.  Here are some foods that contain galactans: navy bean, kidney bean, green/string bean, black-eyed pea, chickpea (i.e. garbanzo bean), butter bean, lentil, cabbage, yellow bean, and Brussels sprout." *conjunction
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TJ
Saturday, July 10, 2010, 1:52am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Age: 39
Thanks for the edit!
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Lola
Saturday, July 10, 2010, 5:48am Report to Moderator Report to Moderator

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Sa Bon Nim
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Posts: 50,989
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Age: 57


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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TJ
Saturday, July 10, 2010, 1:29pm Report to Moderator Report to Moderator

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Kyosha Nim
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Location: Midvale, UT, USA
Age: 39
Thanks for the link, Lola.
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JJR
Saturday, July 10, 2010, 3:47pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Age: 42
I would've expected a higher number on dates and grapes.  That's good to know.  I know apples don't usually sit right with me.  And they're supposed to be OK for my BTD.  

I don't doubt that not digesting fructose will mess with you.  And what you wrote up all makes sense.  But again, I don't believe it is the root of the problem.  I think there is a reason someone doesn't digest fructose properly.  As you said, there is a normal range of fructose absorption.  The question is, why is that happening?  One possibility is that adrenals need to be healed.  Which from what I understand help you produce your digestive enzymes that come from your pancreas.  Obviously it will differ for others.  Or also being metal toxic will set up a breeding ground for bad bacteria.   Which would in turn upset the whole digestive system.  I believe Dr.D has stated that Explorers will typically battle yeast issues because of this.  

Anyways, just my 2 cents but I think what you put together is very good and following those guidelines will most likely help when there is an upset in the GI tract.  In my experience, staying away from sugars to a large degree helps.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Saturday, July 10, 2010, 8:37pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
A few random toughts on this subject- from notes while on holiday.

The Liver seems to be an issue that keeps coming up - also in the sense that people have a dark circles under their eyes. what actually caused hat effect?

and also on the heavy metal line of things - why are some people affected with inherited fructose intolerance but others of the same blood type and secretor status only suffering (possibly) from fructose malabsorption.

I can see the obvious yeast link. but not how to get rid of the fructose issue - which is my goal - regardless of how impossible that seems at the moment.

forgive me for asking a silly question - but can you get a heavy metal test done to find out if that actually is an issue? and if so can you link nme to what people have done after having this test - and do they also have fructose malabsorption.

I'm still working on all the sugars at the moment but my next line would be the why question i.e. what actually causes it i just need to confirm it first. seeing consultant on Tuesday to discuss and i now have a contact for a paediatric gastrointerologist.

I'm also getting a reaction with Emily from vitamins tablets. and at a very low dose like one tenth adult tablet on food. but checking this in a few days.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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JJR
Saturday, July 10, 2010, 8:46pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
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Location: Caledonia, WI
Age: 42
Are you directing those questions to me?  My doctor did a stool test that showed how much I was dumping.  He normally would start off with a hair test to see if there is a problem, but he instead started with a genetic test to see about my detox system.  It's a detoxigenomic test done by Genova Diagnostics.  It showed that I lacked glutathione S transferase in my liver and kidneys, therefore I wasn't getting rid of metals like I should.  Then he put me on glutathione orally and topically over my liver and kidneys.  That was a big key for me to start feeling better.  The levels of mercury I was dumping that the stool test showed was VERY HIGH, according to him.  

But you could simply get a hair test done I believe.

And yes, I have dark circles.  My liver has needed a lot of work and probably much to go.  And my kidneys too.  I take silymarin, and artichoke leaf extract to aid those, among other things.  And I take a kidney builder called renatrophin.  


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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PCUK-Positive
Saturday, July 10, 2010, 9:06pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
not directed especially at you abnoway but your welcome to reply and very helpful. i think we will all end up looking at similar areas, we just have to get there are own way. I have a cholesterol problem, but had no issues for 40 years (that were obvoius at least) except i had a sweet tooth?

I find it hard to understand why only some people, taking into account blood types, only get these problems and why some are so much worse than others, and why for example my daughter is reacting n such a strange way. if it is indeed the mercury or a vacinne issue.

maybe she is only reacting a small amount compared to some because she was so healthy and feed breast milk. etc.

it the not being able to put my finger on it quickly that is so frustrating fro me, and I'm on this full time now. i can't imagine how frustrating it is for others without that ability to delve into it in as much details as i am.

If Dr D lived in even the same timezone I'd be knocking at his door. but ill have to wait till he come to the UK. or maybe arrange to meet in Spain. (hint for the good doctor to take a holiday in Spain. lol


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Saturday, July 10, 2010, 9:30pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
not sure if you have seen this link, but you may like it. it's very long, but a must see.

https://www.the9steps.com/video7_view.php


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Sunday, July 11, 2010, 2:56am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Location: Midvale, UT, USA
Age: 39
Quoted from JJR
I would've expected a higher number on dates and grapes.  That's good to know.  I know apples don't usually sit right with me.  And they're supposed to be OK for my BTD.
Same story here re: apples.  The numbers can vary, depending on the source.
Quoted from JJR
I think there is a reason someone doesn't digest fructose properly.  As you said, there is a normal range of fructose absorption.  The question is, why is that happening
Quoted from PCUK-Positive
I can see the obvious yeast link. but not how to get rid of the fructose issue - which is my goal - regardless of how impossible that seems at the moment.

I agree that I wish it wouldn't be like that.  But there's nothing I can do to fix the fructose problem immediately.  My purpose in writing the primer isn't curing it but managing it.  I don't expect that I'll ever be cured of Celiac disease, but if I manage it properly, I won't need to.  In the short term, we just have to deal with things the way they are!  In the long run, you may find that healing the gut helps the situation.

I don't know if heavy metals or any other kind of toxicity has a role, but it's rarely a bad idea to get rid of toxins.

Hereditary fructose intolerance acts through an entirely different mechanism.  It is an "on or off" condition, where the liver is unable to process fructose, causing fructose to build up in and damage the liver.

ABNoWay, you are in a rather unique position here with your inability to produce glutathione S transferase.  That's likely to affect everything for you!
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Sunday, July 11, 2010, 11:21pm Report to Moderator Report to Moderator

33% Nomad, calories calories!!!!!!
Kyosha Nim
Posts: 4,960
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Location: Caledonia, WI
Age: 42
True, and very good points. I didn't see the fructose malabsorption thing as a genetic thing.  But if that is the case, I understand your work with this completely.  Just like my problem with metals.


  Now go eat a snickers.  JUST KIDDING!!!!!!!!!!!!!!!!!



The poster formerly known as "ABNOWAY"

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Kyosha Nim
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Ineed to know more acout the following;

FRUCTANS-
FRUCTO-OLIGO SACCHARIDES (FOS) = Articicial fibre added to some nutritional supplements.

RAFFINOSE- e.g green beans,



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Monday, July 12, 2010, 3:33am Report to Moderator Report to Moderator

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FOS also comes natural not artificial
http://www.dadamo.com/wiki/wiki.pl/Arabinoglactan
there are no artificial fos in any of Dr D s supplements
and all are gluten free
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?b-pres/m-1124825149/s-25/#num35


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Quoted from TJ
I don't expect that I'll ever be cured of Celiac disease, but if I manage it properly, I won't need to.  In the short term, we just have to deal with things the way they are!  In the long run, you may find that healing the gut helps the situation.
Glutamine helps to protect the lining of the gastrointestinal tract known as the mucosa. Glutamine is important for removing excess ammonia (a common waste product in the body). It also helps your immune system function and appears to be needed for normal brain function and digestion.
Home > Medical Reference > Complementary Medicine



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Quoted from Lola
FOS also comes natural not artificial
http://www.dadamo.com/wiki/wiki.pl/Arabinoglactan
there are no artificial fos in any of Dr D s supplements
and all are gluten free
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?b-pres/m-1124825149/s-25/#num35


Thanks I read that but Emily is off Fructans full stop. also raffinose, sorbitol and foods with excess fructose. for a period of time. and since I'm mirroring her diet to a large degree, what supps fall into line with this.

I suppose what i would like to know is what supps are better for this short term action and would it be better or even relevant to open caps and poor over food rather that swallowing caps.



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Spotted a disclaimer regarding fodmap, just to keep all informed...

Can a Low-FODMAP Diet Be Dangerous?

Low-FODMAP diet should not be introduced by any person with diabetes, hypoglycemia or other metabolic disorders, or in malnutrition, without prior consultation with a doctor.

It may be necessary to interrupt Low-FODMAP diet in any severe acute disease, after injury or surgery and in other urgent situations


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TJ, thanks for links, I will read carefully as I've gluten and casein intolerance and candida/yeast problems
and working on the immune system.  I have to say once I dropped gluten/dairy the hayfever I suffered with since age 3 almost disappeared.  
Lin


Gluten/Casein and Yeast sensitivity.
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I pour my caps over food constantly.....
individuality


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Confucius say! lol


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Quoted from Lola
I pour my caps over food constantly.....
individuality


I do that for the children.  Right now they're all taking ProBerry sprinkled over applesauce.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Quoted from Ribbit


I do that for the children.  Right now they're all taking ProBerry sprinkled over applesauce.


lol not such a good idea for a four year old fructose malabsorbant that's type O.


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PC, I haven't done the research on raffinose or stacchiose, and I figured my article was getting too long already.  I don't see how allowing small amounts of FOS could be bad.  Fructans and galactans can be troublesome by themselves in large amounts, but according to the articles I've read, their biggest problem is the inhibitory effect on fructose, i.e. if you don't eat them with fructose they are much of a problem.
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It would seem that limiting is the key, but not for 4 weeks as a lot of sites seem to recommend but for up to 8 weeks. so cabbage, brussel sprouts green beans asparagus, chickpeas, lentils, red kidney beans and baked beans which all made Emily react should be avoided before or after blood type diet, maybe just in extremely sensitive people, but my theory would be if it effects them it will effect everyone but maybe not appear to.

and I'm looking at all Fodmaps. I have to cover everything as I'm not a doctor so don't want to miss anything even if trivial.

as all the sites seem to disagree, and I've read hundreds of reports, i have to rely on what Emily has reacted to, and a broad overlay of different diets including blood type and low fodmaps. Emily circles under her eyes are getting worse so i have to cover everything and have to do it fairly quickly so if I'm being overly cautious that's not a bad thing. my diet for her is a worst case diet.

tomorrow is her third day of pretty much protein only so low fodmap foods come back tomorrow after seeing paediatric specialist. also speaking to several dietitians and gastro people, all giving different information.

some say 3 days to clear stuff from her system I thinks it's longer but i don't want her off carbs for longer than absolutely necessary. especially as she can't seem to take supplements.

lots to read before tomorrow

again you might be different due to blood type or any number of things also.


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quote from notes (ref date Aug 2007). (just arranged chat with author of report tomorrow afternoon, after speaking with colleague - sounds encouraging).

sources of GALACTANS (such as raffinose and stacchyose)

are baked beans lentils, chickpeas, kidney beans, black eyed beans, borlotti beans, 4 bean mix, cabbage, brussel sprouts, green beans, yellow beans, butter beans. (up to date at aug 2007).


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just had a thought - when i was younger i used to sprinkle loads of table sugar on everything like strawberries, porridge, wheatabix etc, used to have pears and sterilised cream or ice cream, in Spain they roll fruit in sugar around Christmas time (where we are most winters). funny little things eh lol

so what would be thought of as a terrible diet may have actually helped - and maybe why healthish eaters are being plagued by FM whilst the great unwashed are fine until they hit 20 then it all goes wrong around the waist (20 at best) lol


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Kyosha Nim
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i have theory that young children have built in issue with something in relation to their cheeks, whether it being absorbed through the inner cheek or just the fact that the skin is so thin or something. looking back at some first notes of Emily's problem involved breast feeding and hot temperatures and rosey cheeks but a similar reaction to now just not as bad as now. healthy fruit eating mother making sure not to eat too much sugar. almost makes you laugh. then being made worse by vegan diet and no sweets.

bowl of sugar for M tomorrow i think. lol


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Quoted from PCUK-Positive
sources of GALACTANS (such as raffinose and stacchyose)

are baked beans lentils, chickpeas, kidney beans, black eyed beans, borlotti beans, 4 bean mix, cabbage, brussel sprouts, green beans, yellow beans, butter beans. (up to date at aug 2007).
Aaah!! Some of the things I react really badly to!!

Quoted from PCUK-Positive
i have theory that young children have built in issue with something in relation to their cheeks, whether it being absorbed through the inner cheek or just the fact that the skin is so thin or something. looking back at some first notes of Emily's problem involved breast feeding and hot temperatures and rosey cheeks but a similar reaction to now just not as bad as now.
Interesting... Our daughter was just like this - unlike her brother who had no such symptoms... Daughter is probably a nonnie, or at least an explorer...quite allergic like me... whereas our son is most likely a gatherer...no issues except tendency for weight gain around tummy if consuming wheat, cheese & beer

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Kyosha Nim
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just spoken to diet solution in Australia wow, they are so much more up to speed than anyone re the fructose / FODMAPs thing -

actually without exception - agrees with Emily's diet completely different list to those on the internet by the way. and now reintroducing items back in. so very happy abou that.

Jaci Barrett - read all her research - way ahead of everyone i have spoken to and read about- which as you know is a lot.

http://dietsolutions.net.au/ she even arranges skype meetings at a very reasonable rate. so phone bills aren't an issue.

very impressed and as you are all aware i don't get impressed easily lol


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Sooo, I went to an out-of-town friend's going-away party last night.  I brought food, but I decided to eat some of the one thing I figured would be ok in moderation: watermelon.  It seems that I didn't use quite enough moderation.   My guts were gurgling a couple hours later, and this morning I feel dehydrated and my tongue is overrun with thrush.
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water melon big no no - Excess fructose!


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Paula 0+
Wednesday, July 14, 2010, 6:08pm Report to Moderator Report to Moderator
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Most of the foods I have reacted to on a blood allergy profile that was done quite awhile back were
most fruits!  Now I am thinking about this fructose thing.  I love to eat dried fruit to help me "go" but now I am wondering again.  Yesterday on a hike I was eating nuts and dried cherries.  Later my gut was gurgling alot.  I had also had a "green machine" juice in the am.  Boy, I am wondering if this is even why my liver enzymes were elevated in the past.  They went down after avoiding gluten for a good amount of time, but perhaps it's still fructose and I believe maybe lactose that are problems I still need to address.  
I got a newsletter from Delicious Living Mag and there was an article about fructose and an audio link.
http://deliciouslivingmag.com/podcasts/interviews/0728-fructose-fat/

Pretty interesting, although they are mostly talking about it in reference to weight problems and liver problems....
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My liver enzymes went up to high end of range and I struggle to get them down, I'm eating a gluten/dairy/casein/yeast and most of the time cane sugar free diet.  I 've been working on my gallbladder issues which I just read can cause liver enzymes to go up.  I've been trying to follow suggestions from the Body Ecology book (they have a website) and soaking nuts and grains for 8 hours before eating and felt an improvement (not perfect) in my intestinal reactions, less aggravation.


Gluten/Casein and Yeast sensitivity.
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TJ, are you eating any cultured vegetables?  


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Nope, my veggies are all rednecks and trailer trash.
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And beetnicks???
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Well, I highly recommend them.  First off, they taste great.  Secondly, they help your good bacteria and they will help heal your gut.  I eat some every day.


The poster formerly known as "ABNOWAY"

"Finally brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things." - Phillipians 4:8
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Posted July 2:
Quoted from TJ
Maybe what "fructmal" girl said in her blog is true, about not adding more piranha's to the piranha party in your gut!  So I will be laying off the yogurt and probiotics for now, once I use up the last of the yogurt.
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Regarding the raffinose/stachiose: I've started eating navy beans again this week.  I haven't had any difficulty digesting them.  Maybe compliant beans will not offer any trouble.  Your mileage may vary, though!
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Ha.


ISTJ, BTD since 5/05.  Battling chronic Lyme disease since ~1985.

"Everything is permissible for me, but not everything is beneficial..."  I Corinthians 6:12

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Ribbit, your mileage will definitely vary if you start eating navy beans.
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Wednesday, July 21, 2010, 4:35pm Report to Moderator Report to Moderator

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TJ - have a try of lactose free yogurt (avoiding the usual c**p in them like inulin and high fodmap fruits) or keep very simple plain yogurt down to 2 tables spoons.


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Not related to fructose, but I think I'd do better with Greek yogurt because most of the whey is strained out.
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I started looking at greet yogurt yesterday, but too much junk in the ones i was looking at.


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Cancer cells feed on fructose, study finds
Research shows the refined sugar helps cancer cells proliferate

http://www.msnbc.msn.com/id/38528161/ns/health-cancer/


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Very interesting policymaker!! Unbelievable that "U.S. consumption of high fructose corn syrup went up 1,000 percent between 1970 and 1990*

*researchers reported in 2004 in the American Journal of Clinical Nutrition.
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That's more than enough reason to repeal the sugar tariff.
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PCUK-Positive
Thursday, August 5, 2010, 7:10pm Report to Moderator Report to Moderator

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Kyosha Nim
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Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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TJ
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So, I seem to be tolerating watermelon and plums again now.

What changed?  Did I have too much gut flora? not enough fructose transport in my gut???  So weird, but thank goodness!  I was really missing out on all the wonderful watermelon that is currently in season!  I just have to be careful I don't over-indulge.
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PCUK-Positive
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Good news TJ, did you do a low fodmap for a time?


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Tom Martens
Friday, August 13, 2010, 2:34pm Report to Moderator Report to Moderator

O Neg - ENTJ -SWAMI says GT-1 Hunter
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This link is on other threads but I think it explains the Fructose malabsorption / intolerance / reaction/ syndrome x etc.

Our bodies metabolize Fructose differently than Glucose.  I think this explains a lot of what this thread is about.

Sugar: The Bitter Truth
http://www.youtube.com/watch?v=dBnniua6-oM


Be who you are.  Those who mind don't matter, those who matter won't mind.

FIfHI

M,M LeA+ LeB-

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PCUK-Positive
Friday, August 13, 2010, 5:01pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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I thought i put that thread on her as well as other threads,


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Tom Martens
Friday, August 13, 2010, 5:30pm Report to Moderator Report to Moderator

O Neg - ENTJ -SWAMI says GT-1 Hunter
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Quoted from PCUK-Positive
I thought i put that thread on her as well as other threads,


If you did, I'm just trying to spread the word.
I'm not trying to step on your toes


Be who you are.  Those who mind don't matter, those who matter won't mind.

FIfHI

M,M LeA+ LeB-

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PCUK-Positive
Friday, August 13, 2010, 5:37pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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hey no woriies lol, didn't mean it like that, I was worried i had forgotten. spread on...


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Goldie
Saturday, August 14, 2010, 11:12am Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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you are healing for years to come and suddenly things change for the better.. you are a miracle child, who is changing without much effort, all the body asked was to stay compliant with a little thinking and follow its advice, the body has a voice all its own .. you listen and it rewards you.


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
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Quoted from PCUK-Positive
Good news TJ, did you do a low fodmap for a time?
More or less.
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yvonneb
Monday, August 16, 2010, 9:21pm Report to Moderator Report to Moderator

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Here's a new word for me: FODMAPs. (Hi P.C.!)
Fermentable
Oligo-
Di-
And
Mono
Polyols.
Meaning: Certain people don't tolerate foods that contain short-chained carbohydrates called FODMAPs. If you google it you'll find food lists of the worst offenders.

Now, I have ulcerative colitis and I am hoping that Dr.D has considered the FODMAPS in SWAMI.
Does anybody know?
Or....if I stick to the SWAMI diet, are FODMAPS an issue at all then????

Thanks, guys!
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Lola
Monday, August 16, 2010, 9:31pm Report to Moderator Report to Moderator

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Quoted Text
Here is a basic flowchart of the food selection and physiologic quantifiers that were used in the GTD food selection algorithms. Most of the software was/is of my own construction.

http://www.dadamo.com/GenoType/7GTDflowchart.jpg

http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1202698596/s-13/highlight-Glycemic/#num13
factors that Dr. D. uses in classfying the foods for each genotype.
gtd forum
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?b-GTDdiet/

and now his new textbook which just came out, and more on the way.....there s no stopping him!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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yvonneb
Monday, August 16, 2010, 9:46pm Report to Moderator Report to Moderator

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Quoted from Lola


I don't think 'glycemic index' is the same. FODMAPs are not only about sugar. Apparently they are flagged for being osmotically active, fermentable, may interfere with absorption of fructose (hence aggravating symptoms of fructose malabsorption)

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TJ
Monday, August 16, 2010, 9:48pm Report to Moderator Report to Moderator

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Kyosha Nim
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I think I spoke too soon.  I very quickly got overrun with candida after starting back on fruits!   Between the freakin' candida and the celiac and other protein intolerances, I sure don't have much to choose from lately.
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Lola
Monday, August 16, 2010, 9:50pm Report to Moderator Report to Moderator

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Sa Bon Nim
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glad you also saw the rest of the links......
am putting your thread together with PC s, also dealing with fodmaps....
together you might want to discuss it
http://www.dadamo.com/cgi-bin/Blah/Blah.pl?m-1276358380/s-178/#num178


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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C_Sharp
Monday, August 16, 2010, 10:16pm Report to Moderator Report to Moderator

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It is not new information that certain carbohydrates such as raffinose, are difficult people to digest. Or that some people are not able to digest particular sugars that other people can.

The SWAMI database contains information on the composition of foods.

In the consumer version of SWAMI (Xpress) the program identifies what substances in foods that you might have problems with based on the data you enter on the data intake form. Also identifies nutrients that you may benefit from.

It then goes through the foods database to determine what foods contain things you need or do not need as indicated in the chart and listings Lola references above.

------------------------

In the version of SWAMI(GenoType) used by practitioners, The practitioner can set how it handles particular carbohydrates, such as, Fructose, Galactose, Glucose, Lactose, Maltose, Sucrose  ....

as necessary to meet the health needs of a particular client.



The Xpress version is doing this process for you automatically so you do not have to think about individuals sugars and starches.


MIfHI                            I follow a SWAMI diet.
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ABJoe
Monday, August 16, 2010, 10:18pm Report to Moderator Report to Moderator

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Quoted from TJ
I think I spoke too soon.  I very quickly got overrun with candida after starting back on fruits!   Between the freakin' candida and the celiac and other protein intolerances, I sure don't have much to choose from lately.

Fruit sugars will definitely help Candida run, but I found that there may be other reasons that the Candida runs when you have enough energy to clean house...

When I finally got enough energy from the healing gut to power the cells properly, they detoxed enough junk to make the Candida run profusely.  I had to continue to provide adequate energy while aiding the body in detoxing the "junk" to be able to continue to "power-up" the cells gradually and clear all of the pent up garbage from them to not overload the filtering system...  I've had the benefit of working with a practitioner to help me get through this, so passing along the knowledge - inn case you're having the same issue.  During this time, I just had to allow the Candida to run while detox progressed.


RH-, ISTJ
Wonderful Wife = A+ Teacher; Darling Daughter = A- SWAMI Explorer
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Possum
Monday, August 16, 2010, 10:20pm Report to Moderator Report to Moderator

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Cool info C_sharp
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PCUK-Positive
Tuesday, August 17, 2010, 12:40am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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The FODMAP info that will be important to you is the latest foods that have been tested, like in the last few weeks. these tests cost a fortune something like £10,000 per food item. so be wary of suitable lists.

but also a guiding hand into making sure they are necessary I speak with Jaci Barrett about this and i rate her - she is  at least aware of BTD also allows me (as such lol) to run her foods that also are BTD complaint for Emily.

her link is here http://dietsolutions.net.au/ and worth a chat. or you can read all hers and her colleagues research and every bit of similar research,  like i did also. took a while but worth it. but be warned the list on the INTERNET are often wrong completely or at best out of date.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Tuesday, August 17, 2010, 12:54am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Now, I have ulcerative colitis
but further help here
http://dietsolutions.net.au/specialities/inflammatory-bowel-disease/





Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Lola
Tuesday, August 17, 2010, 3:28am Report to Moderator Report to Moderator

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NOW you have UC or now is when your existing UC from the past
starts flaring up???

my best gf just cured her UC by adhering strictly to her swami
she can t stop praising GTD enough.....
all she regrets is not having listened to me way before, less damage would
have occurred, less flareups and unnecessary pain


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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TJ
Friday, August 20, 2010, 7:49pm Report to Moderator Report to Moderator

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Kyosha Nim
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I am seriously confused about what happened to this thread.  What was combined with it???
Quoted from ABJoe
When I finally got enough energy from the healing gut to power the cells properly, they detoxed enough junk to make the Candida run profusely.  I had to continue to provide adequate energy while aiding the body in detoxing the "junk" to be able to continue to "power-up" the cells gradually and clear all of the pent up garbage from them to not overload the filtering system...
Thanks, good point Joe!
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PCUK-Positive
Friday, August 20, 2010, 10:09pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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who know.....


Kind Regards PC. FIfHI Swami III Pro

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yvonneb
Tuesday, August 24, 2010, 1:18pm Report to Moderator Report to Moderator

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I posted this one before, but a glitch made it disappear, so here it is again:

FODMAPs are new to me (Hi pc!) They are short chained carbohydrates which cannot be tolerated by some people resulting in bloating, diarrhea, constipation, gas etc. - all familiar symptoms for people with IBD.
Having colitis myself I am very interested if FODMAPs are taken into account in SWAMI or...
if by eating a SWAMI diet are FODMAPs still a consideration at all!

Lola, you answered this before with a link to Dr.D's complete list of criteria highlighting the glycemic points.

My answer to that was, that FODMAPs are not only about their sugar connection.

They are also 'osmotically active', meaning they draw water into your intestines causing diarrhea
And they are 'fermentable', meaning they make a lot of gas as they are digested causing bloating.

Some of the worst FODMAP foods are on my superfood list and are even diamonds!

FODMAP stands for:
F ermentable
O ligo-
D i- and
M onosaccarines (all three are sugars)
A nd
P olyols (sugar alcohols)

FODMAPS include wheat, onions, artichokes, legumes (soy, beans, lentils, chickpeas), cabbage, brussel sprouts, dairy products including chocolate, honey, dried fruit (prunes, figs, dates, raisins), apples, pears, sweet cherries, peaches, agave syrup, watermelon, papaya,fructose corn syrup, sorbitol (naturally found in peaches, apricots, plums), xylitol (in some berries).
Sometimes these foods cause problems too: asparagus, leeks, garlic, chicory roots, chicory based coffee substitutes.

I don't think this is a complete list- maybe pc can help out there! Thanks!!

PS: Because FODMAP foods are full of all kinds of goodness nevertheless, any of the websites I visited to look this up stressed the need to eat a FODMAP diet only under the supervision of a nutritionist to balance out the shortfall that must result from cutting out these foods.




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Vicki
Tuesday, August 24, 2010, 1:24pm Report to Moderator Report to Moderator

Using Custom SWAMI Food List
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Any foods that you cannot tolerate, do avoid.  

You will have no shortage of choices on the BTD/GTD by avoiding those particular foods.  Most of them are neutral/avoid, anyway.  

As you heal, I would definitely try adding ghee to your diet.  The milk proteins are removed leaving just the milk fat.  
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Lola
Tuesday, August 24, 2010, 2:53pm Report to Moderator Report to Moderator

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what s up with FODMAPs and the Irish???
there must be some form of connection.....
according to your variables, Dr D s swami provides what your body needs.
personal allergic reactions or intolerances to a food, you need to monitor on your own, until your gut heals, then reintroduce gradually, with the help of a food log.


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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C_Sharp
Tuesday, August 24, 2010, 3:00pm Report to Moderator Report to Moderator

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These are my thoughts on FODMAPs and SWAMI:

(Shared in an earlier thread on this topic)

Quoted Text
It is not new information that certain carbohydrates such as raffinose, are difficult people to digest. Or that some people are not able to digest particular sugars that other people can.

The SWAMI database contains information on the composition of foods.

In the consumer version of SWAMI (Xpress) the program identifies what substances in foods that you might have problems with based on the data you enter on the data intake form. Also identifies nutrients that you may benefit from.

It then goes through the foods database to determine what foods contain things you need or do not need as indicated in the chart and listings Lola references above.

------------------------

In the version of SWAMI(GenoType) used by practitioners, The practitioner can set how it handles particular carbohydrates, such as, Fructose, Galactose, Glucose, Lactose, Maltose, Sucrose  ....

as necessary to meet the health needs of a particular client.



The Xpress version is doing this process for you automatically so you do not have to think about individuals sugars and starches.


MIfHI                            I follow a SWAMI diet.
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Goldie
Tuesday, August 24, 2010, 3:41pm Report to Moderator Report to Moderator

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I think in some instances the fluid lost is a quick bathroom visit is not bad as it flushes out some things ..

I think with a little care we should be able to see how we respond when still not healed..

fluid retention is a big issue in some.. so if a fruit could help ..not so bad??

for me most of those things are not on my diet plane anyway ..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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yvonneb
Tuesday, August 24, 2010, 4:18pm Report to Moderator Report to Moderator

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Quoted from Lola
what s up with FODMAPs and the Irish???
there must be some form of connection.....

Who do you think got me onto this      

C_sharp, your thoughts make a lot of sense- thank you!
So off to get my SWAMI I go....

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PCUK-Positive
Tuesday, August 24, 2010, 5:31pm Report to Moderator Report to Moderator

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Kyosha Nim
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swami rocks. but fodmap's has a place too... i overlay them with swami taking 1st place, so if it's not on swami it doesn't get eaten. but if it's on swami and it's a low fodmap, i't gets a gold star. the low fodmaps that are ben or super beneficial get the 2 gold stars.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Tuesday, August 24, 2010, 5:33pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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And by the way Lola, did you think you would get away unscathed, taking potatoes away from the Irish BTD'ers


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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PCUK-Positive
Tuesday, August 24, 2010, 5:36pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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The cat's owners, Stephanie and Darryl Mann, told the Coventry Telegraph their pet, named Lola, which is not yet a year old, was trapped in the bin for 15 hours.

http://www.telegraph.co.uk/ear.....-put-cat-in-bin.html


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Goldie
Tuesday, August 24, 2010, 8:38pm Report to Moderator Report to Moderator

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Sam Dan
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NO we scream let Lola out .. what about the person taking the video ..the cat was locked up for 15 hours??


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

Revision History (1 edits)
Goldie  -  Wednesday, August 25, 2010, 2:56pm
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PCUK-Positive
Wednesday, August 25, 2010, 12:06am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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it was a closed circut tv camera, so just recording, not maned by a person. what a witch, bad things will happen to her.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Lola
Wednesday, August 25, 2010, 4:29am Report to Moderator Report to Moderator

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how she lovingly tricks poor Lola!!!! not fair!!!


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Goldie
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All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
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PC yesterday I had added onions with my meat.. 1 small glass -cellery 2 stalks 3 small carrots- JUICED.. .. today I am all puffy.. could it be the combo fruit and veg juices.. ????? ....


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
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that could just be the onions Goldie - what exactly do you mean by puffy? PM if you like

knowing you the carrots were probably not small, why not just just eat them raw and give the juicing a miss. or have them steamed.

also don't eat fruit  or veg within three hours of eating other fruit or veg. so you keep any load of whatever is casuing you a problem down to a minimum

list me in detail what you ate today missing nothing and including approx weights. also how much awater give times of all foods and the time of puffiness.

include all sweets, ice creams, coffee and anything else including if you take any drugs.


Kind Regards PC. FIfHI Swami III Pro

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Lola
Friday, August 27, 2010, 9:21pm Report to Moderator Report to Moderator

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for those looking around or trying to follow other forms of 'diet typing' and systems
making you believe they are the answer.....
this here is a must read!!!
http://www.dadamo.com/B2blogs/blogs/index.php/2010/08/10/other-systems-of-diet-typing?blog=27


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Possum
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Do you mean anything connected to this thread as well 'cos that link doesn't seem to relate to any of this?
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Saturday, August 28, 2010, 1:59pm Report to Moderator Report to Moderator

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Don't worry Lola just r4ecovering from being stuck in a bin for 15 hours. lol not relevant at all.


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They are a response to metabolic diet, which some people who knock the BTD say works, but actually there is no little evidence to back this up. and the people recommending it always seem to have a financial interest or incentive to promote it. all rather shabby in my opinion.

Fructose malabsorption and any recommended low fodmap diet is a separate thing altogether it's not trying to replace anything it's a diet that may solve separate issues, it is not trying to replace the BTD, it's a separate entity altogether.

eventually a few people will realise this and stop going on about it so much. I live in hope.

So to clarify yet again, mt first rule is follow swami and the BTD, then i tweak that with foods that i know to be low in fodmaps. if a low fodmap food is not on my swami i do not eat it!

peace and love lol


Kind Regards PC. FIfHI Swami III Pro

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Saturday, August 28, 2010, 5:52pm Report to Moderator Report to Moderator

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Like Dr. D himself says, "Keep what works".
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Good advice! the science of waste basketry, if it works keep it, if it does not work BIN it.


Kind Regards PC. FIfHI Swami III Pro

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Possum
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So with you on that one!!! We are all individuals & no one knows that more than us nonnies
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Kyosha Nim
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The Italians, they'll get there in the end, bless them....

http://www.economist.com/node/16740669


Kind Regards PC. FIfHI Swami III Pro

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Possum
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From that same article pc -

"While scientists puzzle out the details, parents can approach dinnertime negotiations with renewed determination." Yeah but only if they all read & agree with this
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Sunday, August 29, 2010, 1:39am Report to Moderator Report to Moderator

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talking about which, Emily had a bit of a reaction today while standing next to a fence that was being painted with a creosote based paint.  a few house down our Park.

then discovered a relative of her mum's had the same thing happen 25 years ago. brought him out in boils all over his body in seconds.

Emily's eased down after a few hours but only when olive oil was applied.

food seems to be sorted but chemical sensitivey still there. the research continues.....


Kind Regards PC. FIfHI Swami III Pro

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Possum
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Goodluck!! I got petrol last night & was careful to request that the attendant filled my car... Even so, something made me break out last night...
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Lola
Monday, August 30, 2010, 4:12pm Report to Moderator Report to Moderator

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speaking of which.....
does anybody have a clue as to the whys, in Michel Montignac s sudden death???
the so called father of orthomolecular, proponent of the glycemic index hype???

born in 44.....76 y o now, I believe is no age to die!!
causes of his death are apparently unknown??? strange!
all these diet gurus are slowly disappearing.....
wonder what his type was and what his fantastic diet looked like....
people have followed his advice for ages.....
I must confess, haven t read any book of his to this date......
I simply lacked curiosity, I guess


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Quoted from Lola
does anybody have a clue as to the whys, in Michel Montignac s sudden death???
the so called father of orthomolecular, proponent of the glycemic index hype???

Seems to be very private...  
Just statements that he died (apparently in a clinic?) and had a private funeral.  


RH-, ISTJ
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Monday, August 30, 2010, 5:36pm Report to Moderator Report to Moderator

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Quoted from Lola
I must confess, haven t read any book of his to this date......
I simply lacked curiosity, I guess


? no comment then..... lol



Kind Regards PC. FIfHI Swami III Pro

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Possum
Monday, August 30, 2010, 8:20pm Report to Moderator Report to Moderator

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Quoted from Lola
speaking of which.....
does anybody have a clue as to the whys, in Michel Montignac s sudden death???
the so called father of orthomolecular, proponent of the glycemic index hype???

born in 44.....76 y o now, I believe is no age to die!!
causes of his death are apparently unknown??? strange!
all these diet gurus are slowly disappearing.....
wonder what his type was and what his fantastic diet looked like....
people have followed his advice for ages.....
I must confess, haven t read any book of his to this date......
I simply lacked curiosity, I guess
Oh my goodness I didn't know bout this!!!   The reports I am reading say he was 66 not 76 Even more surprising then...

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Possum  -  Monday, August 30, 2010, 8:33pm
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ABJoe
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Quoted from Possum
Oh my goodness I didn't know bout this!!!   The reports I am reading say he was 66 not 76 Even more surprising then...

2010 - 1944 = 66...  Basic math...  Yes, makes you wonder why he died...


RH-, ISTJ
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Lola
Monday, August 30, 2010, 10:03pm Report to Moderator Report to Moderator

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I suck at math!!!!

66 definitely isn t an age to die!!!
Atkins at least had an excuse!!! a hit in the head does kill anyone, but MM?
most natural Drs down here are totally into orthomolecular advice and see no further...
it s like they have these eye shields and only have eyes for MM......frustrating to say the least.....they all simply dismiss any mention of BT/GT physiological, genetic individualized advice given by Dr D.

I seriously consider OM advice extremely one size all fitting......
many of you following his teachings, what exactly is so absolutely fantastic about OM?
that isn t already included in Dr D s guidelines......


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Possum
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Quoted from Lola
I suck at math!!!!
You may suck at math - your words not mine but I sure do suck at abbreviations... What is MM & OM???

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Lola
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Michel Montignac
Orthomolecular  


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Possum
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Ah Cheers...It is so obvious when you have it explained...
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Possum
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Just been reading on the Salicyalte Sensitive forum & there may be a link to fructose intolerance here...this post is edited from a couple of contributions by one person...

"Here is what my dietician suggested - that salicylate sensitivity is genetically passed down. She attributes the cause of the problem as being poor B6, B12 and/or folate conversion problems which in turn causes a build up of the amino acid cysteine. This acid can't be correctly metabolized by the digestive tract and causes trouble with the liver.

Further research has revealed that poor B6, B12 absorption can be caused by several things including a deficiency in pancreatic enzymes, low hydrocloric acid, low intrinsic factor output, and calcium deficiency which is needed to process B12. Salicylates can damage the stomach lining which produces intrinsic factor causing poor B12 absorption.

There might also be a link between salicylates and candida. Salicylates are hormones which can act as a mild antibiotic which can throw off the balance of good to bad intestinal bacteria. The symptoms of salicylate sensitivity and candida are strikingly similar. This could be why you have those other weird symptoms like hives. Time to give up the sugar! But only for a while.

I have read that the fruit now being grown is genetically selected to have higher levels of salicylates. Salicylates are the hormones that plants produce to keep them from bacteria and fungus. This new generation of fruit have a longer shelf life."

Just in case any of you are interested...
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''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
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Quoted Text
Just been reading on the Salicyalte Sensitive forum & there may be a link to fructose intolerance here...this post is edited from a couple of contributions by one person...

"Here is what my dietician suggested - that salicylate sensitivity is genetically passed down. She attributes the cause of the problem as being poor B6, B12 and/or folate conversion problems which in turn causes a build up of the amino acid cysteine. This acid can't be correctly metabolized by the digestive tract and causes trouble with the liver.

Further research has revealed that poor B6, B12 absorption can be caused by several things including a deficiency in pancreatic enzymes, low hydrocloric acid, low intrinsic factor output, and calcium deficiency which is needed to process B12. Salicylates can damage the stomach lining which produces intrinsic factor causing poor B12 absorption.

There might also be a link between salicylates and candida. Salicylates are hormones which can act as a mild antibiotic which can throw off the balance of good to bad intestinal bacteria. The symptoms of salicylate sensitivity and candida are strikingly similar. This could be why you have those other weird symptoms like hives. Time to give up the sugar! But only for a while.

I have read that the fruit now being grown is genetically selected to have higher levels of salicylates. Salicylates are the hormones that plants produce to keep them from bacteria and fungus. This new generation of fruit have a longer shelf life."

Just in case any of you are interested...  


Possum interesting.. I always knew that I need B6 and have often tested for low B12 .. now I wonder if I ate fruits when that happened ???

I looked at BIG plums yesterday and refused to buy them thinking they are 'modified'?  I think I was right .. I bought small prune plums instead, but my habits usually is not to eat much fruit, now maybe that is something to look at in a different light according to your writing.. interesting..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
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Don't get me started on Sugar .


Kind Regards PC. FIfHI Swami III Pro

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P/C did you see this thread

http://www.dadamo.com/cgi-bin/Blah/Blah.pl?b-nonnie/m-1283554403/

Diabetes/Alzheimer connection x10 at 25 year old..  needing to start planning  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Possum
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Quoted from PCUK-Positive
Don't get me started on Sugar .
I wouldn't dream of it...   Interestingly enough sugar (not that I would eat it ever) is low in salicylates compared to fruit...So eating tinned pears in syrup rather than fruit juice is recommended Now where have I heard that before?   See, compares to theories relating to fructose malabsorption

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Goldie
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fruit in any shape I think is less harmful..I buy them now in slices, so I eat one slice instead of half..

fruit juices are to concentrated and to many in a glass..

Quoted Text
Interestingly enough sugar (not that I would eat it ever) is low in salicylates compared to fruit.


interestingly I never felt that sugar was any issue with me.. if I have other stuff I never crave sugar, when I drank it in coffee, it never bothered me half so much as a drop of milk might..

I never felt worse with choc fudge stuff around a devils food cake.. the fat content might have made it a S U P E R  FOOD!?????    the sugar I have in my cupboards is for guest only, I never crave it.. (30 years)

I also like 85% choc better now then reg milk choc..so the sugar ..... how the body knows!!!

interesting..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
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yes read that thread Goldie. old news oxo

Some fruits are very high in salicylates others are not. some people can eat one high salicylate fruit or veg and not another, so it's not that easy. like wise with amines.

but it's not necessarily all about salicylates just because there is a lot of people who think they have a salicylate problem.

they key is the absorption. hence the low fodmaps. yawn...... peace and love.


Kind Regards PC. FIfHI Swami III Pro

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Possum
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What's the yawn for? Bored with the discussion? Disagree/disinterested? Or what?
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Quoted from Goldie
fruit in any shape I think is less harmful..I buy them now in slices, so I eat one slice instead of half..
Just be careful of the "preservatives they use on fruits and veggies...which is apparently called "stay fresh"." Check Frosty's last comment on the thread on fast food... Might be better (& non doubt cheaper) for you to slice the apple or whatever, & brush it with lemon

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PCUK-Positive
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sorry possum not aimed at you , just been going on about fodmaps for so long, with the same questions that keep being repeated, the same doubts being brought up, it's a bit repetitive. no offence meant.

but i think I'll stop re-posting and let people discover for them selves.


Kind Regards PC. FIfHI Swami III Pro

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PC thanks..    the lemon is good.. I use it in a fine spray bottle and it works fine to keep fruits sliced..  

but the best for me is still meat broth and green leaves for breakfast.. then meat and veg twice after, and seeds/nuts in-between.

Getting used to the idea all over again.  adherence to a sparten life..?? OR???

Spartan as in warrior to keep on .....!  imagine the years Dr D put in? he is a good lead for perseverance..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Saturday, October 9, 2010, 1:51am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Found this site while researching stuff for M, somemight find it useful.

http://www.lactofree.co.uk/lactose-detector/


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Goldie
Sunday, October 10, 2010, 8:31pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,832
Gender: Female
Location: East Coast
PC In the end : what did you get out of BTD/GENO.. curious because you had a hard case to fix..  

I would expect that SUPER BENEFICIALS act as medicinal foods that heal the gut.. as a point of interest how many fruit/sugar things are on BDT/GENO/SWAMI?  is it little enogh not to cause issues to flare??

how compatable are the suggested fruits?


some where I wonder what heals fisrst. super B or elimination?

thanks for letting me know.  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!

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Goldie  -  Monday, October 11, 2010, 2:10pm
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brinyskysail
Thursday, November 18, 2010, 4:36pm Report to Moderator Report to Moderator

explorer~FM~lactose, soy, grain free
Ee Dan
Posts: 1,229
Gender: Female
Location: Bedford, PA
Age: 25
I know (all too well) that brown rice is definitely bad for fructmal, but does anyone know if that includes brown rice protein?  I'm figuring it does (isn't it just the "coat" of the rice grain that contains fructans?), but I'm just trying to find a variety of protein sources.


There is a good in every bad  
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TJ
Thursday, November 18, 2010, 10:33pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
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Location: Midvale, UT, USA
Age: 39
Could you point me to your source?  I looked all over trying to find support for that claim.

How do you react when you eat brown rice?  I can't make a call on whether rice protein contains fructans because I don't yet believe rice contains fructans.
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brinyskysail
Saturday, November 20, 2010, 3:12am Report to Moderator Report to Moderator

explorer~FM~lactose, soy, grain free
Ee Dan
Posts: 1,229
Gender: Female
Location: Bedford, PA
Age: 25
@TJ
I have no specific source - everything I've ever seen/read about fructose malabsorption lists brown rice as being a food to definitely avoid.  It's very true; I react to brown rice the same as I would react to high fructose corn syrup  


There is a good in every bad  
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Goldie
Sunday, November 21, 2010, 3:33pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,832
Gender: Female
Location: East Coast
I think I just decided that cocoa is a neutral not good for me   I get a water retention effect from it?? can not be possible.. could it be that I need something with it?? besides hot water..

It goes away after about 4 hours.. interesting..

I never knew choc to do that, nor choc icecream .. hmmm?


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Lola
Sunday, November 21, 2010, 6:54pm Report to Moderator Report to Moderator

GT1; L (a-b-); (se); PROP-T; NN
Sa Bon Nim
Admin & Columnist
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the coffeemate you are adding to your drink is causing the retention......


''Just follow the book, don't look for magic fixes to get you off the hook. Do the work.'' Dr.D.'98
DNA mt/Haplo H; Y-chrom/J2(M172);ISTJ
The harder you are on yourself, the easier life will be on you!
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Melissa_J
Sunday, December 4, 2011, 8:15pm Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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Hello all-  I haven't read all of this thread, but recently took up an interest in fructose intolerance.

I'm back looking for more clues for my son, his health is like a 100 piece puzzle... so he's no longer allergic to milk, but it took me a few weeks to realize he is lactose intolerant.  So I started giving him chewable lactase pills, which seemed to help, until he started getting nausea in the morningtime again, and after drinking some lemonade I made with agave.  Then I started thinking about fructose and realized the chewable lactase has fructose as a first ingredient and it finally dawned on me that he never did well with apple juice or pears and has many symptoms of fructose intolerance.

Fructose malabsorption and lactose intolerance often go together, so it's odd that all the chewable lactase pills have either fructose or sorbitol (which is also bad for fructose malabsorption).  Yesterday I gave him a dextrose tablet with his lactase and it seemed to work...no bloating or nausea.  He's not eating a lot of dairy anymore, like he was when he first became able to eat it, so he doesn't have to take a lot of lactase.  I wish he could swallow pills, we'll have to work on that some more, then it is easier to avoid the fructose in chewables.

I don't know if anybody mentioned that fructose intolerance can cause hypoglycemia...that was my latest clue as his NMT practitioner said his mood swings had a lot to do with low blood sugar.  He would get sick an hour or two after eating.  I think I read somewhere, though I can't find it now, that it also causes people to be more prone to infections and illnesses.

He's a teacher, so none of this should surprise me, I just hate limiting his food choices any more than I have to.  But this is one what that I have to.  There are still plenty of sweet things he can still eat, just no HFCS (of course), no agave or honey, no apples or pears or their juice.  Vegetable Glycerine works well.  

Anyway, thanks for this thread!  I should feel happy for this epiphany, but I'm still in the early annoyance phase.  We'll adapt to it and be happy for it very soon.  So for for the last two days his tummy has been much improved, but he wants cookies... fortunately balanced sugars (with glucose > or = the fructose) are working for him.  


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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PCUK-Positive
Sunday, December 4, 2011, 10:04pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Just to confirm is the type o child intolerant to anything?

by the way FM, Dairy, Wheat and Soya problems often go together, it's all about the gut being permeable (leaky).

do you know their secretor status?

I manage my daughter Fm without too much difficulty now keeping compliant and on low fodmap foods most of the time, but now adding back all other foods slowly.

I have often heard of people stopping be allergic to milk by the way - think that was originally a wrong diagnosis.

have you had breath hydrogen tests done for lactose? and also galactose (I think- been ages since i did all this) to rule out SIBO and or methane gas opposed to hydrogen production.

does your child or children have bad breath in the evening when going to bed?


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Melissa_J
Sunday, December 4, 2011, 11:06pm Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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Age: 39
You mean my son?  He's a type A+ Secretor.  He is intolerant of many things...gluten, lactose, and now fructose.  He is still slightly allergic to egg whites.  Carageenan is very bad for him as well.  Seems fine with soy.  His milk allergy was anaphalactic, from 3 months old, but time and NMT therapy have helped it.  His egg allergy was also anaphalactic, but is now mild and fading.  He is nine years old, and almost 50 pounds, so he's pretty underweight.

I'm pretty sure SIBO is the cause of his fructose intolerance, as antibiotics or gastroenteritis both worsen it.  So for him, the teacher diet is good, although his SWAMI gives him less dairy than the typical teacher...it's more similar to the Type A diet.  He refuses to see any more doctors or have any more tests, so I have to pick my battles carefully on that front.  If I get more money, I may invest in my own breath hydrogen machine.  For now, I'm just eliminating high fructose foods to see how it goes, and so far it is an improvement.

I give him mannose daily, a component of deflect A, but he will only take supps that have a decent flavor in his smoothie....I don't know about deflect A, but deflect O tastes very bad.  I left out the ARA today after reading here.  He also takes supps to lower his histamine levels: vitamin C, no-flush niacin, calcium, B6, bromelain, quercetin and proberry.  Those have been very helpful for his allergies and mood swings, but they weren't the whole answer.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Melissa_J
Sunday, December 4, 2011, 11:07pm Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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I'll have to check his breath....some night when he hasn't eaten sardines .


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Possum
Sunday, December 4, 2011, 11:50pm Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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PCUK-Positive
Monday, December 5, 2011, 2:26am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Some say that swami is better for over 13 year old, although i have one for my 5 year old. but i am mindful of that-

The answer to his mood swings is to stop all dairy, and give him a teaspoon of flax oil initially every morning to see if he works well with it. then one mid afternoon as well, try it for a months and see how you get one. that and patinet calm but firm parenting of course.

I bought the breath tester. useful but read much about any test before you try them and be cautious as I'm sure you will. giving a higher than recommended dose of any sugar you are testing whether fructose, lactose or sorbitol would not be smart - i had an expert in FM advising at that stage.

I found that scrambled eggs and omelette's caused less problems than poached or fried eggs with Emily and max one a day. she seems to do better with it the morning.

50 pounds does seem low, Emily is 40 and 5 1/2 if she gets too much sugar od any kind she stay the same weight. simples as that.

Emily is dairy free has been for a while now. we do allow the occasional bit of dairy in her diet but only tiny amounts and not often - birthday parties, etc she get zero juice whether cordial or concentrate nada. she gets no apples of any kind no honey nothing high in fructose or related sugars.

took a few year to get the menu right for her but going great now. drop your email in a pm to me if you want some notes on that. although we concentred on blood type O (Emily) i have done a bit of work on A's re low fodmaps but always complaint with Blood type.

plenty of sleep is needed, Emily watches little tv no computers at home, no computer games, she is an O so lots of play and outings. although she loves yoga too lol

the whole answer for Emily is no dairy, no wheat, no soya, no corn, concentrating on blood type foods that are beneficial and low FODMAP. limited fruit (well spaced out) flax oil, sleep. zero medication. very small amount of phytocal and polyvite. proberry occasionally (capsule not liquids version) twice a week Harmonia deluxe in low FODMAP fruit smoothie.


how much smoothie does he get by the way and what fruits? (very important if he is a malabsorber0 and the weight would point to that)




Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Monday, December 5, 2011, 7:15am Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Age: 39
Melissa, are you giving him a probiotic?  I found that mine got better when I took them.
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Melissa_J
Monday, December 5, 2011, 8:43pm Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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Yes, he does take the probiotic, and it does seem to help.

I  need recipes for smoothies because I haven't reformulated anything he likes that works with all this.  He hasn't finished a smoothie in a few days now

I try to get him to eat turkey in breakfast, but he doesn't eat much now that I'm trying to cut down the sugar.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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PCUK-Positive
Monday, December 5, 2011, 11:44pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
sorry if i missed , what size is the smoothie. if he has FM it would need to be very small. basically the size or a small fruit. in total/ like a fruit shot size or a third of a normal small glass. that is the max emily can have without problems.

fruits suitable for BT A Secretor that are low fodmap are Beneficial-

Blueberry, Grapefruit, Lemon, Lime, Pineapple.

__________________________________________________________________  

Grapes, passion fruit, raspberry, and strawberry are neutral.

It may be an idea to make up a smoothie mix and freeze it into ice cube, or home made ice lollies which is what i do for Emily she has a small glass on Wednesday afternoon and one on Saturday too. in place or her normal fruit.

blueberry ratio would be about 1/6 to say pineapple but you can adjust to taste. i use ice cubes in the mixer to aid mixing 6 ice cubes then blue berries, then Fresh pineapple half, i then add other stuff but that is not compliant for sec A so find one that suit him from above.

to be honest blueberry and pineapple sound nice enough.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Melissa_J
Tuesday, December 6, 2011, 3:52am Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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Location: Utah, USA
Age: 39
Thanks!  So grapes are normally ok, fructose-wise?  I put too many blueberries in his last one, as I hadn't gone shopping and those were about all I had...  

Anyway, it just has to be big enough to hide his histamine-lowering supplements in, 10 oz. usually.  If he doesn't get those into his system, it is a rough day for all of us.

I think homemade almond milk is ok?  He likes creamy.  Soy does get downgraded for teachers, and almond is upgraded, I think because soy milk is not so good for SIBO.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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PCUK-Positive
Tuesday, December 6, 2011, 1:58pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
I understand what you are trying to do but I found that calming the FM or SIBO with a low fodmap version of BT diet works best. so combining geno diet and blood type is a stretch.


if he is on only blood type diet foods and no milks for a short while he might not need a histamine tablet.

have you read the allergie book also a great read - getting the environment right is also a good idea - so check rooms for moulds, duct, basically give thim the greatest chance to get well. just with food

a ten ounce smoothie would give anyone a problem that's too much fructose (regardless of anything) an adult would have a 6-8 ounce glass normally iand i would question that being too big. look out for foods giving him a reaction even blueberries as they are high in salicylates.

if you insist on using almond milk note what you add to it any oils? and flavours like vanilla, make sure the salt is sea salt, and keep portions small.  remember he is not an adult

Emily takes and took no medication. keep a food diary and see when ie is worst and thyen look at the food he had prior to that , but up to 5 days prior at worst. usually you can figure it out a day or so before.

Emily reacted after a 5 hours.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Goldie
Tuesday, December 6, 2011, 2:04pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
Posts: 5,832
Gender: Female
Location: East Coast
my fav is : Eat the fruit whole -- Juice the vegetables..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
Tuesday, December 6, 2011, 2:05pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Agree Goldie or just eat the whole food and forget juicing altogether lol

Emily only has a smoothie on a Wednesday and a Saturday


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-