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Fructose malabsorption and other intolerances  This thread currently has 39,232 views. Print Print Thread
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Melissa_J
Sunday, December 4, 2011, 8:15pm Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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Hello all-  I haven't read all of this thread, but recently took up an interest in fructose intolerance.

I'm back looking for more clues for my son, his health is like a 100 piece puzzle... so he's no longer allergic to milk, but it took me a few weeks to realize he is lactose intolerant.  So I started giving him chewable lactase pills, which seemed to help, until he started getting nausea in the morningtime again, and after drinking some lemonade I made with agave.  Then I started thinking about fructose and realized the chewable lactase has fructose as a first ingredient and it finally dawned on me that he never did well with apple juice or pears and has many symptoms of fructose intolerance.

Fructose malabsorption and lactose intolerance often go together, so it's odd that all the chewable lactase pills have either fructose or sorbitol (which is also bad for fructose malabsorption).  Yesterday I gave him a dextrose tablet with his lactase and it seemed to work...no bloating or nausea.  He's not eating a lot of dairy anymore, like he was when he first became able to eat it, so he doesn't have to take a lot of lactase.  I wish he could swallow pills, we'll have to work on that some more, then it is easier to avoid the fructose in chewables.

I don't know if anybody mentioned that fructose intolerance can cause hypoglycemia...that was my latest clue as his NMT practitioner said his mood swings had a lot to do with low blood sugar.  He would get sick an hour or two after eating.  I think I read somewhere, though I can't find it now, that it also causes people to be more prone to infections and illnesses.

He's a teacher, so none of this should surprise me, I just hate limiting his food choices any more than I have to.  But this is one what that I have to.  There are still plenty of sweet things he can still eat, just no HFCS (of course), no agave or honey, no apples or pears or their juice.  Vegetable Glycerine works well.  

Anyway, thanks for this thread!  I should feel happy for this epiphany, but I'm still in the early annoyance phase.  We'll adapt to it and be happy for it very soon.  So for for the last two days his tummy has been much improved, but he wants cookies... fortunately balanced sugars (with glucose > or = the fructose) are working for him.  


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Sunday, December 4, 2011, 10:04pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Just to confirm is the type o child intolerant to anything?

by the way FM, Dairy, Wheat and Soya problems often go together, it's all about the gut being permeable (leaky).

do you know their secretor status?

I manage my daughter Fm without too much difficulty now keeping compliant and on low fodmap foods most of the time, but now adding back all other foods slowly.

I have often heard of people stopping be allergic to milk by the way - think that was originally a wrong diagnosis.

have you had breath hydrogen tests done for lactose? and also galactose (I think- been ages since i did all this) to rule out SIBO and or methane gas opposed to hydrogen production.

does your child or children have bad breath in the evening when going to bed?


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Melissa_J
Sunday, December 4, 2011, 11:06pm Report to Moderator Report to Moderator

Hunter
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You mean my son?  He's a type A+ Secretor.  He is intolerant of many things...gluten, lactose, and now fructose.  He is still slightly allergic to egg whites.  Carageenan is very bad for him as well.  Seems fine with soy.  His milk allergy was anaphalactic, from 3 months old, but time and NMT therapy have helped it.  His egg allergy was also anaphalactic, but is now mild and fading.  He is nine years old, and almost 50 pounds, so he's pretty underweight.

I'm pretty sure SIBO is the cause of his fructose intolerance, as antibiotics or gastroenteritis both worsen it.  So for him, the teacher diet is good, although his SWAMI gives him less dairy than the typical teacher...it's more similar to the Type A diet.  He refuses to see any more doctors or have any more tests, so I have to pick my battles carefully on that front.  If I get more money, I may invest in my own breath hydrogen machine.  For now, I'm just eliminating high fructose foods to see how it goes, and so far it is an improvement.

I give him mannose daily, a component of deflect A, but he will only take supps that have a decent flavor in his smoothie....I don't know about deflect A, but deflect O tastes very bad.  I left out the ARA today after reading here.  He also takes supps to lower his histamine levels: vitamin C, no-flush niacin, calcium, B6, bromelain, quercetin and proberry.  Those have been very helpful for his allergies and mood swings, but they weren't the whole answer.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Melissa_J
Sunday, December 4, 2011, 11:07pm Report to Moderator Report to Moderator

Hunter
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I'll have to check his breath....some night when he hasn't eaten sardines .


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Possum
Sunday, December 4, 2011, 11:50pm Report to Moderator Report to Moderator

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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Some say that swami is better for over 13 year old, although i have one for my 5 year old. but i am mindful of that-

The answer to his mood swings is to stop all dairy, and give him a teaspoon of flax oil initially every morning to see if he works well with it. then one mid afternoon as well, try it for a months and see how you get one. that and patinet calm but firm parenting of course.

I bought the breath tester. useful but read much about any test before you try them and be cautious as I'm sure you will. giving a higher than recommended dose of any sugar you are testing whether fructose, lactose or sorbitol would not be smart - i had an expert in FM advising at that stage.

I found that scrambled eggs and omelette's caused less problems than poached or fried eggs with Emily and max one a day. she seems to do better with it the morning.

50 pounds does seem low, Emily is 40 and 5 1/2 if she gets too much sugar od any kind she stay the same weight. simples as that.

Emily is dairy free has been for a while now. we do allow the occasional bit of dairy in her diet but only tiny amounts and not often - birthday parties, etc she get zero juice whether cordial or concentrate nada. she gets no apples of any kind no honey nothing high in fructose or related sugars.

took a few year to get the menu right for her but going great now. drop your email in a pm to me if you want some notes on that. although we concentred on blood type O (Emily) i have done a bit of work on A's re low fodmaps but always complaint with Blood type.

plenty of sleep is needed, Emily watches little tv no computers at home, no computer games, she is an O so lots of play and outings. although she loves yoga too lol

the whole answer for Emily is no dairy, no wheat, no soya, no corn, concentrating on blood type foods that are beneficial and low FODMAP. limited fruit (well spaced out) flax oil, sleep. zero medication. very small amount of phytocal and polyvite. proberry occasionally (capsule not liquids version) twice a week Harmonia deluxe in low FODMAP fruit smoothie.


how much smoothie does he get by the way and what fruits? (very important if he is a malabsorber0 and the weight would point to that)




Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Monday, December 5, 2011, 7:15am Report to Moderator Report to Moderator

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Melissa, are you giving him a probiotic?  I found that mine got better when I took them.
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Melissa_J
Monday, December 5, 2011, 8:43pm Report to Moderator Report to Moderator

Hunter
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Yes, he does take the probiotic, and it does seem to help.

I  need recipes for smoothies because I haven't reformulated anything he likes that works with all this.  He hasn't finished a smoothie in a few days now

I try to get him to eat turkey in breakfast, but he doesn't eat much now that I'm trying to cut down the sugar.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Monday, December 5, 2011, 11:44pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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sorry if i missed , what size is the smoothie. if he has FM it would need to be very small. basically the size or a small fruit. in total/ like a fruit shot size or a third of a normal small glass. that is the max emily can have without problems.

fruits suitable for BT A Secretor that are low fodmap are Beneficial-

Blueberry, Grapefruit, Lemon, Lime, Pineapple.

__________________________________________________________________  

Grapes, passion fruit, raspberry, and strawberry are neutral.

It may be an idea to make up a smoothie mix and freeze it into ice cube, or home made ice lollies which is what i do for Emily she has a small glass on Wednesday afternoon and one on Saturday too. in place or her normal fruit.

blueberry ratio would be about 1/6 to say pineapple but you can adjust to taste. i use ice cubes in the mixer to aid mixing 6 ice cubes then blue berries, then Fresh pineapple half, i then add other stuff but that is not compliant for sec A so find one that suit him from above.

to be honest blueberry and pineapple sound nice enough.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Melissa_J
Tuesday, December 6, 2011, 3:52am Report to Moderator Report to Moderator

Hunter
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Thanks!  So grapes are normally ok, fructose-wise?  I put too many blueberries in his last one, as I hadn't gone shopping and those were about all I had...  

Anyway, it just has to be big enough to hide his histamine-lowering supplements in, 10 oz. usually.  If he doesn't get those into his system, it is a rough day for all of us.

I think homemade almond milk is ok?  He likes creamy.  Soy does get downgraded for teachers, and almond is upgraded, I think because soy milk is not so good for SIBO.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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I understand what you are trying to do but I found that calming the FM or SIBO with a low fodmap version of BT diet works best. so combining geno diet and blood type is a stretch.


if he is on only blood type diet foods and no milks for a short while he might not need a histamine tablet.

have you read the allergie book also a great read - getting the environment right is also a good idea - so check rooms for moulds, duct, basically give thim the greatest chance to get well. just with food

a ten ounce smoothie would give anyone a problem that's too much fructose (regardless of anything) an adult would have a 6-8 ounce glass normally iand i would question that being too big. look out for foods giving him a reaction even blueberries as they are high in salicylates.

if you insist on using almond milk note what you add to it any oils? and flavours like vanilla, make sure the salt is sea salt, and keep portions small.  remember he is not an adult

Emily takes and took no medication. keep a food diary and see when ie is worst and thyen look at the food he had prior to that , but up to 5 days prior at worst. usually you can figure it out a day or so before.

Emily reacted after a 5 hours.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Goldie
Tuesday, December 6, 2011, 2:04pm Report to Moderator Report to Moderator

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my fav is : Eat the fruit whole -- Juice the vegetables..


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Agree Goldie or just eat the whole food and forget juicing altogether lol

Emily only has a smoothie on a Wednesday and a Saturday


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Melissa_J
Tuesday, December 6, 2011, 3:25pm Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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I referred to the teacher diet in that post because it is designed for SIBO issues, and has been a helpful diagnostic, not because he is on it.  His Swami also recommends BTD values for him.

His supps for histamines are just what I mentioned earlier: b3, b6, bromelain,  quercetin, c, and calcium, no prescription medication.  They have been the biggest step forward of everything we've tried for him.  I'm working on getting him to swallow the pills, but swallowing was one of his phobias, so that may take a while.

We're still just working on this, figuring things out.  

He will drink smoothies with some spinach in them as well, it doesn't have to all be fruit.  He doesn't usually drink the whole thing, maybe 2/3 of it.

Do you use Vegetable Glycerine?


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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aha i see yes I use the smoothie for supplements got confused when you said histamines. still a large amount of fruit in one go and not recommended by any low Fructose diet. which generally advise tint amounts of fruit and separated by 3 hours between next fructose load, he would still be digesting the first load being so big.

Emily survived on just meat at one stage due to reactions early on. would eat anything without a rash or bloating or bleeding - so the low fodmap does give you a breathing space and will de stress the whole situation.

Although I just use Dr D's polyvite and phytocal 1/4 of cap a day to start for a few months then worked up to half and then eventually one a day which is plenty for 40 lbs i think. certainly if active and happy which Emily is - you will find the flax oil has a big effect. really!

pm or email me a copy of food diary and I'll give you my 2 cent worth, if you like.

I don't use Vegetable Glycerine but not for any particular reason. why do you use it or want to use it?


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Melissa_J
Wednesday, December 7, 2011, 12:28am Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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Ah thanks, I see your point about the fruit.  He doesn't like much fruit, usually just has a few bites at dinner otherwise.  

Yeah, he's eating mostly meat lately.  He's tired of cheese, but last night I guess he went too long between eating and craved/demanded sweets.  Today I'm working on frequency so that doesn't happen again.

I was thinking vegetable glycerine would be a good sweetener, until he no longer craves sweet stuff, and good for his evergy level.  


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Dianne
Wednesday, December 7, 2011, 1:45am Report to Moderator Report to Moderator

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Melissa - I have not read all of this thread but can he do non-GMO soy lecitin granules (from Now)? It makes things creamy and would go well with the almond milk.
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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he shouldn't need a sweetener, or sweats until he is doing perhaps a little better. Emily had none for months at athe start, now she can have more but still not too much.

if you spread the sugar /fruit load he should crave less also Emily gets little starch so craves less

grapefruit first thing 7 am 45 mins later egg of some sort and Emily likes lamb meat balls.

I'm not so good with young A's but perhaps turkey or fish. Emily get s lots of vegetables and if she didn't eat them she got no fruit and she soon learnt the rules - never harsh but all ways firm. we used to give her compliant cereals but that casued more problems than it solved so much easeir to minimise or avoid them altogher - she may get rice puffs once a month. with goats milk.

she then get a fruit snack of half a plum, 4 grapes, 6 blueberries or 4 bits of pineapple (one of these only) at about 10.30 am. she then gets her lunch at 12 - 12-30 pm packed if at school quinoa, meat balls finely chopped veg in the quinoa, when she finishes school at 2.30 she get another small bit of fruit and then she get her dinenr at between 5 and 6 at the latest including veg and meat. she has fresh fish Tuesday evening, frozen fish on a Thursday and sometimes Sunday evening. she get a roast lamb or beef on Sunday but always the same times she gets roast chiken once a month. she know she will get no water with meals so she must drink before. and she know that come 7-30 pm she will be asleep. all a routine. forgot to say she get a teaspoon of flax oil in the morning before school and 1 teaspoon when she get home.  now on a Friday she is allowed a packet of plain crisps before she goes to the library and she looks forward to that. if she has been good and she usually is, she get a lollipop (candy- tiny) on Wednesday after ballet. and so on all spread out and no giving in to tantrums Ever - so she knows. we never have any now and she is as happy as Larry I mean she is just adorable thoughful beyond her years, bright, smart and loving.

she gets pumpkin seeds and walnuts as treats too. Now, we do allow avoids on birthdays, Christmas easter and we generally have a dessert on Sundays you know we try and not be too religious about it - god we used to be reall foodies before she was born, my partners a pastry chef and she owned a coffee shop and worked in 5 star restaurant too, opening 5 * hotels for companies, oh those were the days lol . we are not controlling out of choice - you just have to or she gets ill.

and once in a routine the stress melts away - at the start we were beside ourselves not knowing whatto do. but i still research and test everything looking for a better way

today for example she had pomegranate as a fruit in the afternoon - just a tiny bit (bit high in fructose, but we allowed for it earlier on with her food so she had more meat at lunch time. etc etc. as soon as you just buckle down and be cruel to be kind all the symptoms will disappear and then you'll be able to ease up every now and again. but i warn you it took a few years to get us to that stage. if some one like me had told me what to do ( and i had done it it would have taken a lot less.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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be very careful of soy anything re fodmaps they are a major problem. try them of course but we were warned off them from the experts in that field.

as for GMO although i know Diane said NON gmo, we don't use gmo anything and i would advise o to do the same. were leaky gut is concerned more than ever.


oh and i notice melissa that you said he doesn't like fruit, my partner also a fructose mal absorber is the same. listen to him on that one alone


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Melissa_J
Wednesday, December 7, 2011, 4:33am Report to Moderator Report to Moderator

Hunter
Sa Bon Nim
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Thanks-

He hasn't had any crashes today and is going along with the changes better than I expected.  More changes are needed, and I'm sure there will be bumps in the road, but today has been encouraging.


Type O+ blogger, secretor afterall. Gluten intolerant. With two gluten intolerant sons:  A+ Secretor 10 yo (also fructose intolerant and slightly egg allergic), and  O- 7yo.
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Wednesday, December 7, 2011, 4:13pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Good I am glad you getting there - You might like to read a bit about the "disaccharide effect" ALSO a hormone in the duodenum called (G.P.I.) and REACTIVE HYPOGLYCEMIA.

once you cut the sugar back and especially fructose the behaviour improves you will see the link -


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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cajun
Wednesday, December 7, 2011, 9:27pm Report to Moderator Report to Moderator

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Melisa,
As an A teacher myself, I can tell you that too much dairy and any gluten cause terrible allergy/sinus problems. I also used to have low blood sugar.
Small portions of pineeapple, bluberries, dates, figs, cranberries, or lemon/lime water in the late am or early pm are all I need. Even though my swami gives me several cheeses as neutrals I only get manchego as a super so I stick mostly with that. I also need fish and turkey about 4-5 days a week. Lentils and white beans are great,too, especially in combo with brown or wild rice.  
Wishing the best for your son!


 Ao  ISFJ   Taster   Rh+  

"God gave us the gift of life. It is up to us to give ourselves the gift of living well." Voltaire
"Whisper words of wisdom. Let it be." Sir Paul McCartney
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Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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different things work fordifeferent peole, Just be careful of the dried fruits, or avoid as drying concentrates the fructose and also inactivates the enzymes in the fruit. not sure about cranberries maybe that's a A thing but they are not listed as a low fodmap fruit in any recognised low fodmap diet, so be extra vigilant.

although cool for standard A's lentils and beans are not great for fructose management initially from again an O point of view but i Would avoid initially and perhaps test again in a months or two when you will see any differences much more pronounced after sticking to low fod maps. then you can carry on yourself and see what works, always trying to reintroduce foods when things are going well but staying within the confines of the blood type foods.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Sunday, December 11, 2011, 2:54pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,874
Gender: Male
Location: UK
Age: 53
Melisa, i think it was you i was talking to about grapes) after further research i would now not recommend grapes for a while, although a low fodmap food, they are other complications regarding galactose and stuff. also makes sure you don't just rely on the same fruit and veg ensure yo vary it within the limts of other low fodmaps or at least within the blood type guide lines for you son. I would ensure that honey, dried figs,are not used at all either.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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TJ
Sunday, December 11, 2011, 3:14pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
Posts: 3,486
Gender: Male
Location: Midvale, UT, USA
Age: 39
PC, galactose is passively absorbed like glucose, but there are still issues with grapes (especially white ones).
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BTD Forums    Diet and Nutrition    Eat Right 4 Your Type  ›  Fructose malabsorption and other intolerances

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