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Fructose malabsorption and other intolerances  This thread currently has 41,323 views. Print Print Thread
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PCUK-Positive
Saturday, June 26, 2010, 6:47pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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found the fructose thing on the condiments section because i have been analysing every item of food on swam and it was on the last page.... including honey high fructose corn syrup, etc etc. i would have picked up on it more quickly if i had noticed that a few months ago. that helps me know I'm in the right direction knowing that Emily is then again much more sensitive we have to look deeper still. which is exactly what I've done.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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TJ
Saturday, June 26, 2010, 6:48pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Fructose listed as an ingredient on its own is usually derived from corn starch here in the USA.  It could also come from wheat starch.
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PCUK-Positive
Saturday, June 26, 2010, 7:01pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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both are listed separately.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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TJ
Saturday, June 26, 2010, 7:07pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Age: 39
What I mean is that additive fructose is usually made from corn (or wheat) starch.  SOOO, it still has the corn/wheat lectins in it, on top of being fructose!  I think that's more the reason why fructose is a toxin in the GTD.
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PCUK-Positive
Saturday, June 26, 2010, 9:08pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53
the more i read about research into fructose absorption the more i realise that some of these researchers are not living in the real world. so many un answered questions. it's all about funding i think.... so annoying.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Possum
Sunday, June 27, 2010, 1:54am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Quoted from PCUK-Positive
the more i read about research into fructose absorption the more i realise that some of these researchers are not living in the real world. so many un answered questions. it's all about funding i think.... so annoying.
It is such a new area - that is possibly why... Apparently Australia is ahead of the world (even leading America) in this field...
"The diet for fructose malabsorption is still being researched and for that reason the food lists have changed over the years. Some of our dietitians are involved directly in that research. We do not provide the food lists without a consultation as fructose is often only a small part of the problem and we need to assess your tolerance to other potential triggers" Copyright 2009 Diet Solutions.
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PCUK-Positive
Monday, June 28, 2010, 2:02pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Maria Giovanna
Monday, June 28, 2010, 2:37pm Report to Moderator Report to Moderator

Teacher
Kyosha Nim
Language Expert
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Did you happen to find links to celiac disease and fructose problems as for lactose and casein intolerance it is common to be triggered from celiac? TIA ! Maria Giovanna


INTJ Italy celiac��
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PCUK-Positive
Monday, June 28, 2010, 2:44pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53
Yes thanks looking into all of that. having said that Emily is now (apart from parties and day's out) totally wheat, gluten, corn, dairy free and obviously on a low fairly fructose diet. almost fruit free.

I'll be speaking to Gastro friend shortly too.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Maria Giovanna
Monday, June 28, 2010, 3:01pm Report to Moderator Report to Moderator

Teacher
Kyosha Nim
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My question is how probable to have FM for a celiac as me, without complaints and ailments when compliant  with your actual info ? may be too specific but if you know anything thanks ! Maria Giovanna


INTJ Italy celiac��
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Goldie
Monday, June 28, 2010, 4:17pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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Thanks .. so much makes sense.. I dont eat chicken unless I am out as a cheat-- not worth it.. it just was not on my diet so I forgot about it.. just as well ..

the sugar thing will be interesting .. let me know as much as possible.. (i need to learn all I can***)  IS IT NOT NICE TO HAVE FOUND OUT WITHOUT DOC and their test.. dollars by the pound for other things.. AND KNOWING THAT if she has issues they are fixable and no cause for ALARM.. a glass of water fixes all..  

now a q?  do you possibly have flees in her bad ?? crazy for asking.. but what do dustmite thingies look like???

*** on even exchange for all the "take it easy and slow"  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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TJ
Monday, June 28, 2010, 7:34pm Report to Moderator Report to Moderator

54% Nomad
Kyosha Nim
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Thanks for those links PC.
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PCUK-Positive
Monday, June 28, 2010, 9:13pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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- Goldie -I have learnt never to rule out anything but fleas are unlikely now as no place for them to hide, no carpets, new bed, spotless new floors and roomed sealed for bad air from walls and lofts, air purifiers ans daytime airing. no furniture and no soft toys until problem sorted. she has done a lot of painting and drawing while not at school in the afternoon and all outside. we have no pets and the garden is very secure.

dust mites however are always present - goggle dust mite and picture to take a look. tiny but always around. even they are not so much of a problem as long as the skin is not broken which it rarely is now.



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Goldie
Monday, June 28, 2010, 9:43pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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but how do you know its mites?? is it a rash or a bite??

my next door neighbors just got on infestation of I think flees, as one guy got all bitten on his legs.. many small bites..

and flees might be in a mattrazze???? but I believe you all around as you have dont your work..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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PCUK-Positive
Monday, June 28, 2010, 10:21pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,939
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Age: 53
sorry should have explained, the dust mites are thougt to inhibit the normal repair of damaged skin - found link in rare research a while ago - can see the link myself pretty obvious really but not sure if others do. there are no bites there was only scracthes from itching recently. but you have to let the skin heal completely to se that.


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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Possum
Monday, June 28, 2010, 10:25pm Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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You can have allergies to the dust mites themselves can't you?
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PCUK-Positive
Monday, June 28, 2010, 11:08pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Gender: Male
Location: UK
Age: 53
yes you can, even if you don't test positive to them. Emily is sensitive to storage mites which are an agricultural version of dust mites so to speak. there are also non European version (from memory).



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Monday, June 28, 2010, 11:15pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53
This relates to HEREDITORY FRUCTOSE INTOLERANCE but is worth a read. docto D might even be interested inthe bit at the end relating to genes which i have highlightrd in RED

History
•As in other autosomal recessive disorders, a pedigree is unlikely to reveal other family members with fructose 1-phosphate aldolase deficiency. Individuals who are obligate heterozygotes do not demonstrate the symptoms of hereditary fructose intolerance (HFI).
•Because the history may be vital to the diagnosis, the importance of taking an extensive dietary history, especially in individuals with hereditary fructose intolerance, cannot be overemphasized. Many soy formulas contain sucrose as a carbohydrate source that may supply enough fructose to cause clinical symptoms.
•Some affected infants refuse all sweets after becoming ill early in life; thus, a history of food rejection is also important.
Physical
•A clinically well patient demonstrates no abnormal physical findings.
•Acutely ill children are often tachypneic because of acidosis. They have enlarged liver and are slightly-to-moderately icteric. Accompanying hypoglycemia may cause tremors or seizures, as well as diaphoresis.
•Abdominal pain may be observed.3 •Exceptionally good dental hygiene is a common feature among children with hereditary fructose intolerance, presumably because of diminished carbohydrate intake.
Causes
Hereditary fructose intolerance is inherited as an autosomal recessive trait. The gene has been mapped to one locus, band 9q22.3.
•As of 1995, 21 mutations had been reported at this locus, most of them single-base substitutions.4



Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Goldie
Monday, June 28, 2010, 11:17pm Report to Moderator Report to Moderator

All Gatherer -70 Scorp/Sag on BTD/GENO 17 year
Sam Dan
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Location: East Coast
well all seems to point to the feces of the mites (from on ones own body) .. but once the sheets are washed in hot that should no longer be on issue.. but I really have no clue.. ====== I would faster wonder about taking showers or bathes that might be irritating the skin and result in itching when it dryes out over night.. but BY all means I am not clairvoiyant..

I think itches are more often along the  way of SYSTEMIC (internal) issues needing Benadril to get rid of on itch.. NOW I don't suggest that for a child as I know little about that either,  

but to me I would let the sensitive person/child eat all non responcive food for 6 weeks and see if she did not get better.. I would be surprised if she was not much better..

... BUT I also mean not allowing anything else.. I would be perfectly happy if the child would eat 3 SAFE items every day exclusively.. and let her insides heal.. BUT that takes trust that she will heal..

YET I am not there.. BUT I do believe that the constant adding of more of this and more of that (even in small amounts) does not allow for healing.. ONE item may not put ME over the top of food tolerance but add another AND I will respond positively or not..    

but I also have seen people stay a year on a total restrictive diet to get rid of a certain condition.. and if that is what it takes, then so be it..  


Being here is invaluable, but not enough. We need ALL the Doctors. I needed them for a very small cancer spot-I could never feel!!! Please do your mammograms! Doing so saved me from cancer later on. I am grateful! Thanks for learning from my experience! I was lucky! I wish the same for YOU!
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Possum
Monday, June 28, 2010, 11:24pm Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
Posts: 5,402
Gender: Female
Location: Wellington, New Zealand
Age: 53
Quoted from PCUK-Positive
This relates to HEREDITORY FRUCTOSE INTOLERANCE but is worth a read. docto D might even be interested inthe bit at the end relating to genes which i have highlightrd in RED

History
•As in other autosomal recessive disorders, a pedigree is unlikely to reveal other family members with fructose 1-phosphate aldolase deficiency. Individuals who are obligate heterozygotes do not demonstrate the symptoms of hereditary fructose intolerance (HFI).
•Because the history may be vital to the diagnosis, the importance of taking an extensive dietary history, especially in individuals with hereditary fructose intolerance, cannot be overemphasized. Many soy formulas contain sucrose as a carbohydrate source that may supply enough fructose to cause clinical symptoms.
•Some affected infants refuse all sweets after becoming ill early in life; thus, a history of food rejection is also important.
Physical
•A clinically well patient demonstrates no abnormal physical findings.
•Acutely ill children are often tachypneic because of acidosis. They have enlarged liver and are slightly-to-moderately icteric. Accompanying hypoglycemia may cause tremors or seizures, as well as diaphoresis.
•Abdominal pain may be observed.3 •Exceptionally good dental hygiene is a common feature among children with hereditary fructose intolerance, presumably because of diminished carbohydrate intake.
Causes
Hereditary fructose intolerance is inherited as an autosomal recessive trait. The gene has been mapped to one locus, band 9q22.3.
•As of 1995, 21 mutations had been reported at this locus, most of them single-base substitutions.4

Very interesting pc!! As always; another good find...
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PCUK-Positive
Monday, June 28, 2010, 11:55pm Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,939
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Location: UK
Age: 53
Came across this which will help.

Yogurts – Non-fruit yogurts may contain fructose (vanilla, coffee).  For example, Yoplait’s vanilla yogurt does not list fructose; however, General Mills confirmed that fructose falls under the category of ‘natural flavorings

Medicines – Specifically for children like Children’s Tylenol or Advil or Benedryl and Zithromax, Amoxicillin…  Nearly ALL have high levels of fructose, and should be AVOIDED.

and the beauty of sugar free c**p - (play oon words) forgive me....

Sugar Alcohol Intolerance

A number of Sugar-free, sugar alcohol-based sweetners (sugar substitutes) are available on the market. These include Sorbitol, Mannitol and Xylitol. The reason these are low calorie sweetners is that they are very poorly digested and absorbed in the digestive tract, and are thus relatively 'inert' despite being sweet to the taste. They are thus used in a variety of products, including sweets and some medicines, particularly sublingual and chewable supplements, which often contain both Sorbitol and Mannitol, and sometimes all 3 (as well as Stevia)! Always read the label on sublingual and chewable supplements.

Unfortunately, as these sugar-alcohol sweeteners are poorly digested and absorbed, they pass through the digestive tract, and are digested to some degree by the bacteria in the colon, resulting in excess wind. These alcohol sugars are also laxative in their action, as dissolved particles in the chyme and stools attract water from the intestinal walls and bloodstream, and excessive consumption may also result in diarrhea. In general, alcohol sugars are to be avoided and a much better choice (for occasional use) is the plant-based Stevia, which does not produce these symptoms. (not my words and others disagree by the way)!


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Tuesday, June 29, 2010, 12:02am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
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Age: 53
missed a post from maria somehow.

i came across some mention of there being a link to all the intolerances and gut leakage. noted it somewhere and it will be filled or posted somewhere but for the moment can only find in my head which is not much use to you.

tendency's and individuals but the theme is there as the Dr's D have found long ago.

it's correcting the problems that seems to be so varied to me. some quick some slow and plenty in between -

i think i have read too much today. lol to sleep perchance not to dream oxo


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
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PCUK-Positive
Tuesday, June 29, 2010, 12:04am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,939
Gender: Male
Location: UK
Age: 53


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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Possum
Tuesday, June 29, 2010, 12:11am Report to Moderator Report to Moderator

Rh- Expluntherer... It means I'm an O...;-)
Ee Dan
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Age: 53
Dare I say it: "sweet dreams"??!!
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PCUK-Positive
Tuesday, June 29, 2010, 12:18am Report to Moderator Report to Moderator

Gatherer Rh+, NN, (lewis a+ b-) [Duffy Fy(a+b+) ]
Kyosha Nim
Posts: 4,939
Gender: Male
Location: UK
Age: 53
very good lol nytol


Kind Regards PC. FIfHI Swami III Pro

Partner (F) is O+(Non) MN. Duffy Fy(a+b+),  Lewis (a+ b-) Gatherer.
DD ( is O+(Non)NN, Duffy Fy(a+b-) Lewis (a+b-) Gatherer
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BTD Forums    Diet and Nutrition    Eat Right 4 Your Type  ›  Fructose malabsorption and other intolerances

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