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Diagnosis – Lyme Disease!!!
Well, it looks like I might have Lyme Disease! Two weeks ago, I was reading a book that mentioned Lyme Disease symptoms and I thought OMG these look familiar! Then the next day my neighbor called and said “I was watching a medical TV show, and they were talking about Lyme Disease, and I think that might be what you have.” Two days later the specialist I’ve been seeing walked me through my recent 28 blood tests (yes 28!!! They had to use both arms to get enough blood!). And he thinks I may have Lyme Disease! I show signs of having multiple viral infections, which usually means positive for Lyme. So they started me on Antibiotics and Antiviral meds. I’m also taking some hormones, Cat's Claw and Hawthorn for the heart symptoms.
What a shock! I cried for two days straight and then I started doing research. I didn’t suspect Lyme, at first, because I didn’t know it could affect the heart. When people talk about Lyme you usually hear about arthritis symptoms. I have had some very strange and extremely painful joint problems over the last three years, but they mostly went away so I didn’t worry about it. I chalked it up to getting older. I’m 51 after all. But, apparently about 10% of people infected with Lyme have heart problems brought on by the disease. So, I guess this is why the Doctors at Kaiser couldn’t find anything wrong with me and thought I was just having panic attacks. And this is why I could eat so well and so strictly and still have health problems. The best food and vitamins in the world can only get you so far when you’re dealing with this nasty little beast.
I’m taking a very expensive blood test for Lyme and co-infections tomorrow. These results won’t be back for 3-4 weeks. But, I’m doing much better since I started the antibiotics and antiviral. I still haven’t gone back to work, but if I continue to improve the way I have these last two weeks I should be able to go back soon, cross your fingers for me.
I’m really grateful for this way of eating, well really this way of life. I can’t imagine how sick I would be if I hadn’t been eating this way. My poor heart has really been pushed to the test and so far it keeps on pumping. Heart problems run in my family (on both sides) and if I hadn’t been taking such good care of my body when this disease hit my heart I might have just had one massive heart attack and never lived to tell this tale.
5 comments
I am sorry to hear you have been diagnosed with Lyme Disease it can be a complicated disease to treat especially when you have had it for some time. Some of the lyme patients I have been in touch with have had heart problems which must be very frightening.
It sounds like it is your local hospital that has picked up on this which is great but just be sure they don't stop antibiotics after a short course and say all gone now it probably will not go so easily.
It is good to make contact wioth your nearest lyme group and check out Burrascano or iLADS guidelines at www.ilads.og
Sadly with all the controversy about diagnosis and treatment patients all over the world are struggling twice over once with the disease and again with the number of doctors that failed to diagnose them.
Thankfully I am nearly 100% now after 6 1/2 year illness and retired on ill health grounds.
Do your research well so you can best advocate for what treatment helps you. Good luck
Hi Janet,
I'm in CA so I don't know any Lyme Literate Doctors in Georgia. But here's a couple of websites that might help you find a doctor.
http://www.lymediseaseassociation.org/
http://www.chroniclymedisease.com/llmd-referrals
planetthrive.com/2009/08/buhner-healing-lyme/
Sometimes it's a little hard finding doctor, but be persistant. The first doctor I found was over a 3 hour drive each way. Now I only have to drive 45 minutes. Good luck! There is help out there including lots of good books with remedy advice.
Best,
Connie
Did you have your tonsiles removed?
At what age?
My daughter developed Lyme at 20, 5 years after she had her tonsils removed.
I believe research will show those who have tonsils removed have higher rates of Lyme.
Hi Paul,
My blood type is B+ and I still have my tonsils. But I think you may be on to something.
Thanks,
Connie
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